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SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011

Alzheimers

Posted by @seventypluss, Jul 7, 2011

Surprised not to see a discussion on this topic. Anyone out there?

Liked by readncoffee

Reply

Posted by @LeeAase, Jul 7, 2011

The community just launched yesterday, and as of right now we have about 200 members. Discussions on various topics will pick up as the community grows.

Liked by SeventyPluss


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 7, 2011

Oh my goodness!!! A brand new event. I knew it was new, but wasn’t aware it was THAT new. 200 already is good. And you’re right … discussions will pick up. Thanks for responding. I assume you’re a tech person with MC. Good job!


mcrchicago
@mcrchicago

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Joined: Jul 06, 2011
Posted by @mcrchicago, Jul 7, 2011

i am the eldest daughter of two dementia patients. They are in their mid 80s and I am in my early 60s. Mother suddenly in precipitous decline. I am more terrified by the minute.


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 7, 2011

I am caregiver of s/o age 79 with dementia. I know the roller coaster ride I’ve been on for the past four years. I can’t imagine how it must be to have TWO. Do you belong to any online support groups? Or community?


klhowell
@klhowell

Posts: 1
Joined: Jul 07, 2011
Posted by @klhowell, Jul 7, 2011

I know how you are feeling and you are not alone. I am the youngest of two (45 yo) and my mother is declining very rapidly with alzheimers. She is 82 but I remain steadfast to be her strength as we get through this.


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 7, 2011

And I’m very sorry to hear of your mother’s sudden decline. What I’ve learned from the groups to which I belong is that sudden decline is quite unusual, and to look for a UTI or other illness, or medication issues.


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 7, 2011

You made a very good statement: “… you are not alone.” That’s so important to realize and understand, because even when you KNOW that, there are days when you FEEL alone anyway. I’m sorry about your mother, too. I love what you said about being her strength as you get through it. How long has she been diagnosed?


rttextor
@rttextor

Posts: 6
Joined: Jul 16, 2011
Posted by @rttextor, Jul 21, 2011

That is so very young as I am 68 yrs old and my mom is 96. We now have Hospice workers that has been wonderful.


rttextor
@rttextor

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Joined: Jul 16, 2011
Posted by @rttextor, Jul 21, 2011

UTI – Very common
Medications. My mom is off everything except her heart medication and she has done well.


readncoffee
@readncoffee

Posts: 7
Joined: Oct 28, 2012
Posted by @readncoffee, Oct 28, 2012

My heart and support go out to you! Do not be afraid for there are many caring people and places to help you with this double burden…we love our parents, and without a doubt, seeing them fail so IS terrifying! E-mail me at any time.


rttextor
@rttextor

Posts: 6
Joined: Jul 16, 2011
Posted by @rttextor, Jul 20, 2011

My mom is 96 with Alz. As a social worker for many year’s, I have been able to access many resources. I would like to pass this on to anyone going through this with their family. Join Alz. Association and you will get tons of information. If you have a smart phone, they send daily updates of the latest research. Join Alz. support group, ask your Hospice Asso. to do an assessment as many elderly are eligible if they have other medical issues. Insist your physician writes a scrip for home healthcare. They can set up meds, do light housework and shop. These little things help so much. Good Luck with your family. Your not alone.

Liked by readncoffee


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 21, 2011

And I’m sorry I neglected to acknowledge what you are dealing with with your precious mom. It’s not easy … my heart goes out to you. Bless your precious mom and God bless you! Are you a resident of Minnesota?


rttextor
@rttextor

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Joined: Jul 16, 2011
Posted by @rttextor, Jul 21, 2011

We began this journey 10 years ago. Thank you for your kind words. We are very fortunate as my mom has not been aggressive but, very sweet in her disposition. This is not always the case for all families. I would recommended a book that was written by a coach…small handbook that is wonderful. I don’t have his name at the moment but, if you go on-line you would find it i’m sure. We are in Michigan. My son lives in Blaine, Mn. so visit often.


SeventyPluss
@seventypluss

Posts: 11
Joined: Jul 07, 2011
Posted by @seventypluss, Jul 21, 2011

The reason I inquired about residency had to do with the availability of the Alz Assn. Are you referring to the state organization or the national? I used to live in Blaine, by the way. 🙂


readncoffee
@readncoffee

Posts: 7
Joined: Oct 28, 2012
Posted by @readncoffee, Oct 28, 2012

A book I was told to read is “The Thirty Hour Day.” Cannot remember the author, but ii is available online (Amazon, B & N, etc.). It was my MD who recommended I read it, and altho some parts do not apply to my/spouse’s situation, it is stratighforward, and easy to comprehend. Recommend.

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