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seventypluss

Alzheimers

Posted by @seventypluss in Brain & Nervous System, Jul 7, 2011

Surprised not to see a discussion on this topic. Anyone out there?

Tags: alzheimers disease

readncoffee likes this

Posted by @LeeAase, Jul 7, 2011

The community just launched yesterday, and as of right now we have about 200 members. Discussions on various topics will pick up as the community grows.

SeventyPluss likes this
seventypluss

Posted by @seventypluss, Jul 7, 2011

Oh my goodness!!! A brand new event. I knew it was new, but wasn't aware it was THAT new. 200 already is good. And you're right ... discussions will pick up. Thanks for responding. I assume you're a tech person with MC. Good job!

mcrchicago

Posted by @mcrchicago, Jul 7, 2011

i am the eldest daughter of two dementia patients. They are in their mid 80s and I am in my early 60s. Mother suddenly in precipitous decline. I am more terrified by the minute.

seventypluss

Posted by @seventypluss, Jul 7, 2011

I am caregiver of s/o age 79 with dementia. I know the roller coaster ride I've been on for the past four years. I can't imagine how it must be to have TWO. Do you belong to any online support groups? Or community?

seventypluss

Posted by @seventypluss, Jul 7, 2011

And I'm very sorry to hear of your mother's sudden decline. What I've learned from the groups to which I belong is that sudden decline is quite unusual, and to look for a UTI or other illness, or medication issues.

rttextor

Posted by @rttextor, Jul 21, 2011

UTI - Very common
Medications. My mom is off everything except her heart medication and she has done well.

klhowell

Posted by @klhowell, Jul 7, 2011

I know how you are feeling and you are not alone. I am the youngest of two (45 yo) and my mother is declining very rapidly with alzheimers. She is 82 but I remain steadfast to be her strength as we get through this.

seventypluss

Posted by @seventypluss, Jul 7, 2011

You made a very good statement: "... you are not alone." That's so important to realize and understand, because even when you KNOW that, there are days when you FEEL alone anyway. I'm sorry about your mother, too. I love what you said about being her strength as you get through it. How long has she been diagnosed?

David Goldsmith likes this
rttextor

Posted by @rttextor, Jul 21, 2011

That is so very young as I am 68 yrs old and my mom is 96. We now have Hospice workers that has been wonderful.

readncoffee

Posted by @readncoffee, Oct 28, 2012

My heart and support go out to you! Do not be afraid for there are many caring people and places to help you with this double burden...we love our parents, and without a doubt, seeing them fail so IS terrifying! E-mail me at any time.

rttextor

Posted by @rttextor, Jul 20, 2011

My mom is 96 with Alz. As a social worker for many year's, I have been able to access many resources. I would like to pass this on to anyone going through this with their family. Join Alz. Association and you will get tons of information. If you have a smart phone, they send daily updates of the latest research. Join Alz. support group, ask your Hospice Asso. to do an assessment as many elderly are eligible if they have other medical issues. Insist your physician writes a scrip for home healthcare. They can set up meds, do light housework and shop. These little things help so much. Good Luck with your family. Your not alone.

readncoffee likes this
seventypluss

Posted by @seventypluss, Jul 21, 2011

And I'm sorry I neglected to acknowledge what you are dealing with with your precious mom. It's not easy ... my heart goes out to you. Bless your precious mom and God bless you! Are you a resident of Minnesota?

rttextor

Posted by @rttextor, Jul 21, 2011

We began this journey 10 years ago. Thank you for your kind words. We are very fortunate as my mom has not been aggressive but, very sweet in her disposition. This is not always the case for all families. I would recommended a book that was written by a coach...small handbook that is wonderful. I don't have his name at the moment but, if you go on-line you would find it i'm sure. We are in Michigan. My son lives in Blaine, Mn. so visit often.

seventypluss

Posted by @seventypluss, Jul 21, 2011

The reason I inquired about residency had to do with the availability of the Alz Assn. Are you referring to the state organization or the national? I used to live in Blaine, by the way. 🙂

readncoffee

Posted by @readncoffee, Oct 28, 2012

A book I was told to read is "The Thirty Hour Day." Cannot remember the author, but ii is available online (Amazon, B & N, etc.). It was my MD who recommended I read it, and altho some parts do not apply to my/spouse's situation, it is stratighforward, and easy to comprehend. Recommend.

seventypluss

Posted by @seventypluss, Jul 21, 2011

Wonderful information. I've found that if something isn't suitable at the moment, in a while it IS, so I try to keep a record of resources. Thanks so much for your input, and don't stop sharing with us, please. Sue

window

Posted by @window, Sep 9, 2011

I, too, am very surprised not to see a dementia/Alz discussion per se. Try Caring.com We have an excellent group there

readncoffee likes this
weary

Posted by @weary, Sep 15, 2011

My husband has early onset alz. He is 58 years old and diagnosed at Mayo last August. I would like to chat with anyone who is experiencing the same situation.

prince

Posted by @prince, Sep 18, 2011

We are dealing with Parkinsons and the Cognitive loss with it. My husband's tremor started 5 years ago and he still can play some golf. He can no longer drive and is feeling like a prisoner in his own home. I am trying to plan interesting days for him. His greatest loss is his ability to communicate and track conversations. We are looking for a support group to help us with coping with this.

jolene

Posted by @jolene, Sep 20, 2011

Thanks to each of you for your information. I will be back as I learn more that might be helpful to others.

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