All pain gone after one "test"

Me again, I wanted to ask you if you don’t mind, do you have a condition that's been diagnosed? Just w9ndering cause I do know how rotten it is when you're going through all types of time consuming appointments especially when you're hurting and not knowing what this heck is going on? I'm pretty sure It's no bagfull of cuddly kittens even if one knows. Yikes. Hope some really good stuff comes your way soon nannybb. Neat name luv how it sounds ... 💐 🌹 🌸 You are not alone...ever.
@nannybb

That sharp focused eye for detail. Yup, the extras in products people don't think about can definitely mess with the Px meds.@mrmik

@bunstuffer
Im an old nurse, 👵🏻 age 85. In the early years of my nursing career I worked at the large Mayo Clinic Hospital, St Mary’s in Rochester, Minnesota.The Med Room on the medical floor had several bottles of mostly Bourbon.
They were prescribed for patients to help with circulation. It’s seems very old fashioned now but there were no medications that were as effective then.

I thought that I might have long term Lyme's about two years ago. I had Lyme's back in 2009. Really had me in it's painful grasp. Finally got a script for the stuff they typically prescribe for it(the old brain is just not working that well anymore). Within half a day all the pain subsided. Then around 2013 or so, I had another tick bite. Got a single pill script as a preventative measure. I have experienced a lot of pain since my ski fall in 2016. Had all kinds of meds, SCS, pain pump, etc, to little avail. Now, I was retested about a year and a half ago. As expected, the presumptive test was positive, but the Western blot did not show enough bands to be considered positive for Lyme's. My PCP put me on a fourteen day script of DOXYCYCLINE! (There it is!).

My question is: anyone out there in a similar situation? Had Lyme's maybe onece or twice but never confirmed by bloodwork and still have associated pain? I know I am grasping at straws here, but I don't want to overlook any possibility. Thank you!

Hi Willow,

I'm surprised you haven't found an acupuncturist who your insurance will cover. I used to live in Nor Cal (Danville) and use the John Muir Hospital system. I'm sure you've heard of them. They may offer acupuncture or dry needling as part of their practice.

And yeah, if you find a Medicare-approved provider, they handle the paperwork. That's why I suggested Muir. And in my experience, Muir is an excellent healthcare provider.

All the best to you.

Joe

Interesting, thanks. Alcohol is out for me as I've been sober for 14 plus years now.

One thing I tried recently, just for fun while on a cruise, is acupuncture. I was treated for my upper and lower back.

My back is very stiff in the am and takes a while to loosen up. After my first acupuncture treatment, my entire back was relaxed, and I woke up without any lower back stiffness.

I'm going to keep doing acupuncture. Medicare Part B covers 12-20 treatments/year for the lower back, although I plan on doing more.

Joe

@ellesea01 Does Gap come in a time release form? Would that help if you decide to take a smaller dose?

@ellesea01 Thank you so much ❣️ Your words of encouragement really helped. I moved from Fl. to Oregon to be near family close to the time of covid. I thankfully found work as an essential, so I was pretty much guaranteed an income. I have been floating along until this cancer diagnosis and operation. My son has started seeing how I need help, but he has his own family and work schedule. I am moving away from the toxic person I mentioned. When I can get a handle on the pain and get moved and back to working, I know much of my anxiety will lessen. As I posted somewhere before, I could have had a nurse advocating for me if I had gone the way of chemical treatments. Because I chose surgery, I was pretty much on my own. It has helped tremendously to be a part of this forum. My getting a second opinion from a NETs specialist was due to advise in here. I know many have much more grave problems in treatments than myself. That's another good thing about this site. You can have the ability to look outside of your situation and be an encouragement for another...just like you did for me. Again, thank you. One day at a time. 🙏

@ellesea01 My name came about from being a professional nanny for 25 + years . First it was Nana, then Nanny B. One day, two of my children (twins) asked what my maiden name was. It begins with a B as well. So they started calling me Nanny BB, and it stuck. The "children" are now in college. Whew.
I have carcinoid tumors. I was operated on, and then told I have more in both lungs post-op. It is the pain from the operation that I am dealing with now. Going for the second opinion has me thankful and a bit anxious at the same time. Being able to reach out in this forum let's me know you are correct. I am not really alone. You are a sweetheart. Many people in here are, as well.

@ellesea01 And I have done research on just this one point of how plastic affects our wellbeing and how much of it is in the products we come in contact with. If I eat a frozen dinner, the plastic tray it is microwaved in will leach out a certain amount of plastic. And that is just one thing. I have started using toothpaste "pills" as they come in a glass container and are free of added chemicals. Also switched my deodorant. Diary of a C.E.O. is a great podcast to get good health advise.