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Advice to caregivers from another viewpoint - pt with dementia
Hello all, I have dementia but I’m still aware of the situation. Another post about YouTube prompts me to add my $.02. Caregivers, when interacting with your patient, you don’t need to be so serious!! We can all laugh at ourselves and laughter is good medicine. Check out some YouTube videos on Dementia Comedy. Dementia Humor etc. Some of it is hilarious. Speaking for myself only, it doesn’t hurt my feelings. Speaking to me as if I am to be pitied is much worse.
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Yes, please do keep in touch. It's great to have support partners in this. I think I told you, my husband is in the 22nd infusion. And so far, so good. A few MRI's to check for brain swelling, but they are telling me now, no more MRI's unless he has headaches. His outlook is good, he's a bit more organized than he was, his backpack, keys, watch, wallet in the same place every night and he's doing that - not me. So he's remembering. Not great at sequencing his thoughts, and helping with strategies in complex situations, but he's good, his outlook is good, he's a kind man, and he keeps telling me he's my care partner. He eats well, we're out walking, we're just trying to go with the flow in all of this, to see if we can slow this amyloid plaque down. In the middle of all of this, he stopped me the other day, leaned down, tied my sneaker and told me he was my care partner. We just need to take all the good we can get. Take care of you, too.
Best, Karla