Adult Life after a Traumatic Brain Injury (TBI)

Posted by dawnpereda @dawnpereda, Sep 27, 2017

Hi, My name is Dawn and I am an RN. Just over two years ago I received a work related injury. This injury has left me with a traumatic brain injury (TBI). Even though two years have passed, I still suffer with lingering tbi symptoms. I have some issues with memory. Some things I remember with no problems, other things I just don’t remember and I can’t explain why… I also suffer with issues related to mood dis-regulation. I can be angry at times and not understand why or end up having explosive outbursts. This has greatly impacted my life. I still work but no longer with patients. Also, this has been a huge turn around for my family. I’m no longer the mom who has everything under control. I used to work full time, manage my kids’ schedules, pay household bills, and keep my house clean. Now I struggle to remember to brush my hair before leaving for work. My husband pays the bills and my kids write their schedules on a large calendar (that hangs in our dining room) so I can visually be reminded where they are and what they are doing. I am a “new” me and I never would have imagined this journey for myself.

I know there are things out there for youth that suffer from concussion/tbi, but I don’t always find a lot of discussion/support for adults, like myself. I get up every day and work to live my life to its fullest. If you would like to know more about my life and journey, you can listen to a podcast that I did with my family. Its called “Terrible, Thanks For Asking”. We’re season 1, episode 5. Its brutally honest. If any of this rings true to your life please join this discussion with me. Thanks for your time!

@neet

I don’t know if my symptoms are from the TBI or the cyst

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Hello "@neet",
I wanted to say hi and see how your doing. I am often amazed at the after affects of a head injury. They can be far more complicated that a person realizes. I'm hoping you have found some answers and some peace. Please keep us updated.
Thanks, Dawn

Liked by Lisa Lucier, Leonard

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@ujeeniack

i CAN ONLY THINK OF LLT,RED LIGHT LASER THERAPY AS A POSSIBILITY.

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where do I get light therapy ?

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@cathy514

where do I get light therapy ?

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@cathy514
Hi there,
I believe Merry @merpreb will see and respond to you. I’m sure she has some information on this. If you don’t hear from her you can send her a private message.
Good luck,
Jake

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@jakedduck1

@cathy514
Hi there,
I believe Merry @merpreb will see and respond to you. I’m sure she has some information on this. If you don’t hear from her you can send her a private message.
Good luck,
Jake

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@jakedduck1
I'm very sorry but I've never had laser or light therapy. I really do not know anything about it. Perhaps someone else does?

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@merpreb

@jakedduck1
I'm very sorry but I've never had laser or light therapy. I really do not know anything about it. Perhaps someone else does?

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@merpreb
I thought you used some kind of light box.
Jake

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@cathy514

where do I get light therapy ?

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@cathy514
Are you talking about laser light therapy for pain control? What are you trying to accomplish?
Jake

Liked by Lisa Lucier

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@jakedduck1

@merpreb
I thought you used some kind of light box.
Jake

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@jakedduck1 – Yes for depression, not a treatment for physical illnesses. What is the purpose for laser light therapy?

Liked by Leonard

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Hi…. Was wondering if I could get some advice…. ? My husband fell last year and now lives with a tbi… He's refusing any kind of therapy… He falls all the time… I'm hurting myself picking him up… Isn't that self neglect.. ? I was told to get guardianship which will make him very mad.. Should I do that… ?! he needs therapy

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Hi! I don't know why it took so long to think of coming to a chat with my questions. I do it in other areas of my life. I am writing because my son finds it difficult to put these questions into words. My son is 45 years old. He was thrown from the back of a jeep when he was 16 and incurred a closed head injury. He did not receive a great deal of medical care other than diagnosis and tests related to that diagnosis. No one suggested follow-up therapy, etc. He has problems with his short term memory, cannot follow conversations with quick give and take or follow verbal directions but very good with hands on tasks. He does have explosive rage which is much reduced in a calm and regulated environment. But my question is about a physical phenomena that happens periodically. When under stress the area where his head hit during the accident will swell and become sore to the touch. My son will get a bad headache on that side of his head, he will feel a strong pressure behind his eye on that side and the veins, etc. will bulge out in the subject area. He does not have insurance for testing, etc. Does anyone have experience with this happening to them and what do you do about it. Also, I wonder if he would be eligible for medicaid due to the multiple impacts on his body and in his ability to gain employment that will support him. He does work but certainly is not able to handle complex tasks or multi=task outside of his specific functions. Any feedback is appreciated.

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@anncgrl

Hi! I don't know why it took so long to think of coming to a chat with my questions. I do it in other areas of my life. I am writing because my son finds it difficult to put these questions into words. My son is 45 years old. He was thrown from the back of a jeep when he was 16 and incurred a closed head injury. He did not receive a great deal of medical care other than diagnosis and tests related to that diagnosis. No one suggested follow-up therapy, etc. He has problems with his short term memory, cannot follow conversations with quick give and take or follow verbal directions but very good with hands on tasks. He does have explosive rage which is much reduced in a calm and regulated environment. But my question is about a physical phenomena that happens periodically. When under stress the area where his head hit during the accident will swell and become sore to the touch. My son will get a bad headache on that side of his head, he will feel a strong pressure behind his eye on that side and the veins, etc. will bulge out in the subject area. He does not have insurance for testing, etc. Does anyone have experience with this happening to them and what do you do about it. Also, I wonder if he would be eligible for medicaid due to the multiple impacts on his body and in his ability to gain employment that will support him. He does work but certainly is not able to handle complex tasks or multi=task outside of his specific functions. Any feedback is appreciated.

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Hi, @anncgrl – I moved your post to this discussion so you can read what others have said on life after a traumatic brain injury (TBI) and talk with those who have had similar experiences. Click VIEW & REPLY in your email notification to get to your post.

About your question regarding whether your son would be eligible for Medicaid, this government page may provide some useful information https://www.usa.gov/medicaid.

I thought @jakedduck1 @dawnpereda @lakelifelady and others here may be able to offer you support as you search for answers on the swelling and soreness your adult son has in the area where he suffered the hit when he's under stress. Hoping they can let you know if they've seen this kind of phenomena in themselves or others. @etadams has also mentioned having an adult son with a TBI. @oceanfun1 mentioned suffering from TBI-related emotional outbursts that reminded me of what you talked about with your son's emotional responses at times.

You mentioned your son's explosive rage is much reduced in a calm and regulated environment. What does he do or do you do to promote that kind of environment for him?

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@anncgrl

Hi! I don't know why it took so long to think of coming to a chat with my questions. I do it in other areas of my life. I am writing because my son finds it difficult to put these questions into words. My son is 45 years old. He was thrown from the back of a jeep when he was 16 and incurred a closed head injury. He did not receive a great deal of medical care other than diagnosis and tests related to that diagnosis. No one suggested follow-up therapy, etc. He has problems with his short term memory, cannot follow conversations with quick give and take or follow verbal directions but very good with hands on tasks. He does have explosive rage which is much reduced in a calm and regulated environment. But my question is about a physical phenomena that happens periodically. When under stress the area where his head hit during the accident will swell and become sore to the touch. My son will get a bad headache on that side of his head, he will feel a strong pressure behind his eye on that side and the veins, etc. will bulge out in the subject area. He does not have insurance for testing, etc. Does anyone have experience with this happening to them and what do you do about it. Also, I wonder if he would be eligible for medicaid due to the multiple impacts on his body and in his ability to gain employment that will support him. He does work but certainly is not able to handle complex tasks or multi=task outside of his specific functions. Any feedback is appreciated.

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@anncgrl My dad had a traumatic brain injury and skull fracture at age 64. Although he improved, he was never the same, and he also had the explosive rage events or would get emotional and cry, so I know how this changes a family.

My first thoughts about your son are to check his blood pressure. You can buy a good cuff for that and check at different times of the day. If he has a rage episode, try to check after that. Doctors recommend that normal resting blood pressure should be under 120 over 80. If he has high blood pressure at rest, it may be getting dangerously high when he is upset. Blood pressure medicine can be pretty inexpensive. A family friend of ours lost his wife to a sudden stroke, and that stroke occurred at the site of a head injury when she had bumped her head a couple months earlier. It makes me wonder if the trauma all those years ago damaged or weakened blood vessels, and getting angry raises blood pressure. There can also be weakness or bulging blood vessels. All of that needs an evaluation by doctors. I have no knowledge of Medicaid or how that works, but you need to try for it. You might also call a medical center and ask if they have programs to help those in need who can not pay, and how you can apply for assistance. Your town's village hall may be able to recommend agencies that could help.

Here are some links about blood pressure, strokes and aneurysms
https://www.mayoclinic.org/diseases-conditions/brain-aneurysm/symptoms-causes/syc-20361483
https://www.mayoclinic.org/tests-procedures/blood-pressure-test/about/pac-20393098
https://www.mayoclinic.org/diseases-conditions/stroke/symptoms-causes/syc-20350113
https://www.mayoclinic.org/diseases-conditions/high-blood-pressure/symptoms-causes/syc-20373410

Liked by Lisa Lucier

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Hi so sorry for your accident left you this way , i understand somewhat , both my son who is now in his 30's and myself suffer from head injury his was when he was young lad ,he was at the park and some teenagers were showing off with some girls that visit uk in summer anyway cut long story, short he has outbursts he didn't understand for long time why because before his accident he was happy kind and lovely lad ( he still is to his mum ) other people that don't understand why it can be hard for them to understand you, and what your going through. Sometimes he would just not handle work issues, other times he would just train at the gym his training helps him alot especially now… he understands better why this happens your head injury effects your patience because that is where in your brain injury to do with processing . Our Precious brains can handle alot. He has changed his lifestyle we always trying to find ways to help balance between training and his calm down time i message him positive thinking and walk when he can't take sounds/ noise can sometimes set his anger off or when he and i can't talk ,we find calm place to walk or be , hope this helps you, your issues better, to understand is half the battle, and maybe that can help your precious family to be patient with you , fresh nutrition helps( he studied to be sports nutritionist help him focus on others, calm heart is a happy one so we keep smiling.
tc kind regards swift Hug from England

Liked by Lisa Lucier

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