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Jackie Bell
@jbell22

Posts: 11
Joined: Jan 19, 2015

Adult congenital heart disorder - right facing aorta

Posted by @jbell22, Feb 7, 2017

I have a right facing aorta with an abhorrent left subclavian artery and a kommerellis diverticulum. I have had one surgery and am looking at more. My question/query is this: does anyone with a heart condition get heart pain just from talking? The more I talk (just with friends, on the phone etc) and the louder I talk increases my pain. My surgeon is suggesting now that I might have an aorta which is attached to my breastbone and I might now need an aortapexy – symptoms being the talking issue. Anyone familiar with this? Thank you. ☺

REPLY

Jackie, I did a quick search of the conversations on Connect and didn’t find any discussions about pain from talking. None-the-less I’m going to tag a few people who I think might have some thoughts. @cynaburst @predictable @debcrawford and @PatMattos.

Jackie, I hadn’t heard of aortopexy so looked it up and found this abstract of a study called “The role of aortopexy in severe tracheomalacia” https://www.ncbi.nlm.nih.gov/pubmed/16516630 Is this pain something you’ve always had?

@colleenyoung

Jackie, I did a quick search of the conversations on Connect and didn’t find any discussions about pain from talking. None-the-less I’m going to tag a few people who I think might have some thoughts. @cynaburst @predictable @debcrawford and @PatMattos.

Jackie, I hadn’t heard of aortopexy so looked it up and found this abstract of a study called “The role of aortopexy in severe tracheomalacia” https://www.ncbi.nlm.nih.gov/pubmed/16516630 Is this pain something you’ve always had?

Jump to this post

Thank you, Colleen for the site. The pain when talking started at the same time my heart condition made itself apparent – two and a half years ago. I was 54 when I fell very ill and learned about my congenital heart condition.

I would sometimes get out of breath from talking, but no particular pain. Though I had an entirely different heart condition. hope you get some answers.

@cynaburst

I would sometimes get out of breath from talking, but no particular pain. Though I had an entirely different heart condition. hope you get some answers.

Jump to this post

Thank you. ☺

I also get out of breath sometimes when I am talking, but have never had any pain with it. My heart problems are also different then Jackie’s. Hope they find the reason for her condition.

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