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Adenosquamous carcinoma of the pancreas (ASCP)
I have adenosquamous pancreatic cancer, which is a rare sub-type. Does anyone else have this diagnosis? What treatment(s) are you receiving and how are you doing?
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Welcome @pasc22, I'm tagging @kimberbee on this discussion. Her mom also has adenosquamous carcinoma of the pancreas (ASCP).
As you noted, adenosquamous carcinoma of the pancreas is rare and accounts for only 1 to 4% of all pancreatic cancers.
@pasc22, may I ask about your treatment plan? Will you have surgery? Chemo?
Hi Colleen,
Thanks for reaching out. I had a distal pancreatectomy in January 2022. The pathology report showed that it was adenosquamous. At that point my tumor was stage 1B with no lymph node involvement and negative surgical margins. I then had 6 months of chemotherapy with FOLFIRINOX. We were hoping for a cure or at least long-term remission. Unfortunately, my CT scan in January 2023 found metastases in my liver. I am now on gemcitabine + Abraxane.
There doesn't seem to be a lot of information about this sub-type and what treatments might work better against it than the standard ones for pancreatic adenocarcinoma. So, I was hoping to compare notes with others who are in my position. Thanks for directing me to kimberbee. I'd appreciate any other ideas you may have.
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1 ReactionYou may also be interested in joining this discussion:
- Anyone on Gemcitabine with Abraxane? How long? Effective? https://connect.mayoclinic.org/discussion/gemcitabine-and-abraxane/
I have adenosquamous carcinoma of pancreas, diagnosed 5/6/20, stage 1B, removed 1/2 body, 7 lymph nodes, tail and spleen. Followed by 6mo FOLFIRINOX. Last scan in June 23, clear.
3 spots on liver and 1 on lung same size as before.
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1 ReactionHi @cancer007, I hope @pasc22 will join me in welcoming you as they also have pancreatic adenosquamous carcinoma (ASC). It sounds like your cancer was caught early being staged at 1B. Have the spots on the liver and lung been identified as related to the cancer? Did that change the stage? How was the cancer discovered?
The discovery of my Carcinom was made by a non-related MRI. I had no symptoms of pancreatic problems. The spots on my liver were present in follow-up CT scan. The lung spot presented itself @ my 30 months CT Nov 2022. A 3 mo chest only CT showed no change. As did my full 3 year scan last May. We'll take another peek @ everything with December scan. There has been no mention to me of any metastatic. Note my CA 19-9 values have never been higher than midrange.
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1 ReactionMy mom got diagnosed with Pancreatic adenosquamous carcinoma confirmed today.
Drs recommending Folfirnox
Can anyone give me any info on this type of cancer? Any survival stories?
burta3,
I am sorry to hear of your mom's diagnosis.
I am not a medical profession, and simply did a quick online search ... here is a JohnsHopkins article - https://www.hopkinsmedicine.org/health/conditions-and-diseases/pancreatic-cancer/pancreatic-cancer-types.
Is she bring seen at a pancreatic center of excellence? If not, please consider calling pancan.org for assistance.
Yes she was seen at cedar Sinai and we are awaiting a response from the mayo clinic
Hi @burta3, I moved your post about adenosquamous carcinoma of the pancreas, a rarer type of pancreatic cancer to this existing discussion:
- Adenosquamous carcinoma of the pancreas (ASCP) https://connect.mayoclinic.org/discussion/adenosquamous-pancreatic-cancer/
I did this so that you can connect with @pasc22 @cancer007 @kimberbee, who have experience with ASCP. How are you and your mom doing?