Adenocarcinoma Robotic RLL Lobectomy: Does age affect outcome?

Posted by bbtn @bbtn, May 16, 2023

Hello all,
I've been diagnosed with NSCLC adenocarcinoma. The nodule is approximately 2.5 cm I'm told. I'm scheduled for a right lower lobectomy next week on the 26th at Vanderbilt. I'm really getting crazy anxiety about this and would love some input from people who have had this procedure. I'm 64 and wondering if my age is going to affect the outcome.
Any advice is appreciated
Bunnie

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@bbtn

Thats exactly the mindset I need to get to...thank you! You sound like you're as busy as I am so I will keep the walking routine added as I work back into my regular activities after surgery.

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I would have to agree with walk all you can. I had my two lower lobes of my right lung removed. I was about dead when I went to Dr. They made a 6 to 8 incision on my back, and of course smaller ones for chest tubes. So I was in the hospital about one month. But I left with no narcotics. Worked hard at Getting better. Doing good now. WALK

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@franciekid

Bunnie, I am a healthy 78 and was diagnosed with EGFR adenocarcinoma on Feb 25th. Stage 1b, nodule smaller than 3cm, no lymph node involvement. I had robotic assisted surgery at Northwestern Hospital in Chicago. 1/3 of one lobe of my right lung was removed along with the nodule. I have had no adverse effects, including no noticeable loss of breathing. My thoracic surgeon told me if I were a biker used to 15 mile rides (I’m not!), I could comfortably bike 10 miles. Finally, what does your thoracic surgeon say? Mine was incredibly helpful and encouraging. I always ask doctors what they would advise their moms or wives in similar circumstances. Good luck - and ask what the consequences are of NOT having the surgery.

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Bunnie, my story was very similar to yours. NSCLC adenocarcinoma with a tumor of 2.5 to 2.0 cm. I had 3 one-day sessions of chemo and immunotherapy, 3 weeks apart. Robotic surgery 4 weeks later. Removed the middle lobe of my right lung. Pathology could not examine the tumor, as found completely destroyed by chemo. Also, of 37 lymph nodes annihilated by robot, or sampled, pathology found no sign of cancer. Quick recovery of surgery, only spent 2 nights in hospital with good pain control. 3 Weeks later now, still recovering with mild pain medication. My 4 incisions are healing nicely. The area around the ribs is still sensitive to the touch, or when getting in or out of a car. I was told this is normal, related to both muscle pain as nerve pain because of handling of robotic instruments in between ribs. Could take some more weeks to completely heal. I am 7 years older than you, I do not think age itself would affect the outcome, being healthy is most important I guess. More advice : try to walk around a lot, especially the first week. I took my first short walk with a nurse only 6 hours after waking up from surgery. Also, when told to limit the weight in your hand at the surgery side to -say -8- pounds, please do stick to it…I had more, and regretted…Always listen to your body : sleep when it makes you yawn, rest when it says you feel tired. Most important : ask a lot of questions to your doctors, expect serious and honest answers, build up confidence. I had terrible anxiety in the early 6 weeks. Up to the moment that I received my diagnosis, and the proposal for the treatment. Decided at the spot. First chemo 1 week later. For me, that was the moment that most uncertainty vanished. As did most anxiety. Both are very related. Just my experience. Hope any of this helps. Good luck.

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@debhol

Hi- I had robotic surgery as well but upper L lobe, stage 1b . Mine was 3 weeks ago and I am still having lots of pain . Surgeon says it’s nerve pain, Wondering how long your pain lasted?
Thanks! Glad you’re doing well .

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Hi Deb, I had the same surgery as you at the end of October. The nerve pain lasted a few months for me but was minimized by lidocaine patches and Lyrica. By February, the nerve pain was gone. I was diligent in walking four times a day for 15-20 minutes and am convinced that the walking facilitated my recovery. Best of luck!

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@bbtn

Thats exactly the mindset I need to get to...thank you! You sound like you're as busy as I am so I will keep the walking routine added as I work back into my regular activities after surgery.

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Just also realize that all of us are different and you may have a different recovery period or pains. You may even feel down a little afterward. That is most of the time when your weaning off the medications, but I think it’s also just because the realization sets in of what was in our body and then thinking “what’s next?” But don’t stay in that too long! You have to remain positive and eat healthy and move around as much as possible.

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@cmcguire10

I honestly just had to start thinking and believing that:“This is what my surgeon says is the best thing for me and getting the cancer out.” There is No doubt that it’s scary! But once I put that in my mind, I just wanted it done. As soon as I woke up in my room, I asked when I could get up and walk. That is THE BEST thing you can do for your body. It helps get anesthesia out, it helps blood circulate to help prevent blood clots and it just makes you feel better because you are moving. I had the RAT surgery as well. One incision under the left breast/rib cage and three in the back. Three incisions about an inch long and one about 2 inches. Oh and the chest tube hole. All healed now, but like I mentioned, along the bra line is tender but very very manageable. Don’t even need any type of pain meds. I walk at least a mile every night and want to do a lot more but I am back to working full time and still have a family at home that I make dinner for and laundry, etc. Just don’t feel like sitting will be good for you because it’s not! Rest yea but then get back to moving. It also helps you remain positive!

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Thats exactly the mindset I need to get to...thank you! You sound like you're as busy as I am so I will keep the walking routine added as I work back into my regular activities after surgery.

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@bbtn

Franciekid,
That is encouraging! How long did it take you to get back to your regular routine? Were you in the hospital long? Its great that you're doing so well. My surgeon is also very helpful and encouraging (though I've only met with her once).

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I did have Tramadol for pain which I only needed for a few days. DO TAKE WHAT THEY GIVE YOU BEFORE THE PAIN STARTS. Your block will mean you feel great when you first get home, so it’s important to take your painkiller BEFORE the pain starts. Walk as soon as you can, even if it’s only around the house.

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@bbtn

Thats awesome news! Thats exactly what my surgeon said....walk walk walk even before the surgery. Hoping I can get over being scare before the surgery date!

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I honestly just had to start thinking and believing that:“This is what my surgeon says is the best thing for me and getting the cancer out.” There is No doubt that it’s scary! But once I put that in my mind, I just wanted it done. As soon as I woke up in my room, I asked when I could get up and walk. That is THE BEST thing you can do for your body. It helps get anesthesia out, it helps blood circulate to help prevent blood clots and it just makes you feel better because you are moving. I had the RAT surgery as well. One incision under the left breast/rib cage and three in the back. Three incisions about an inch long and one about 2 inches. Oh and the chest tube hole. All healed now, but like I mentioned, along the bra line is tender but very very manageable. Don’t even need any type of pain meds. I walk at least a mile every night and want to do a lot more but I am back to working full time and still have a family at home that I make dinner for and laundry, etc. Just don’t feel like sitting will be good for you because it’s not! Rest yea but then get back to moving. It also helps you remain positive!

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@flusshund

RATS is the best. I had four small incisions and almost can't find one of them anymore. As to the surgery, at least you're a woman. My wife and I had a consultation with my surgeon before the surgery. At one point, he turned to my wife and told her to be prepared because I would be depressed after the surgery for three reasons,
1. He's young. He said most people requiring this surgery were 20 years older.
2. He's a man. And we men don't emotionally handle such things as you women (talking to my wife), and
3. He's an engineer, and they tend to overthink things.
At that point, I replied, "Wheen, have I eeeever overthought anything?" Then we all had a good laugh, which my wife and I kinda needed about then.

You may have guessed I'm a pretty positive person, but I still had a bit of anxiety before. Sounds like you're doing fine and you're right. It'll be good to get rid of that thing. Plus, they'll be able to get a good look at it and definitively tell you what type of cancer you have which will determine future treatments. I have the EGFR mutation, so I take a small pill once a day. That's it!

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Omg I love your positivity! I needed that! And that conversation could have been my husband and I cause face it...you guys are horrible at being sick 🤣

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@bbtn

Hi Matthew
Yes mine will be rats as well. My surgeon suggested walking and more walking up till the surgery so I've been pounding the pavement through my neighborhood. I keep flip flopping between looking forward to getting this out of my lung and being really scared cause of well surgery. Its good to see so many people have had the same and are up and living their lives soon after though!

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RATS is the best. I had four small incisions and almost can't find one of them anymore. As to the surgery, at least you're a woman. My wife and I had a consultation with my surgeon before the surgery. At one point, he turned to my wife and told her to be prepared because I would be depressed after the surgery for three reasons,
1. He's young. He said most people requiring this surgery were 20 years older.
2. He's a man. And we men don't emotionally handle such things as you women (talking to my wife), and
3. He's an engineer, and they tend to overthink things.
At that point, I replied, "Wheen, have I eeeever overthought anything?" Then we all had a good laugh, which my wife and I kinda needed about then.

You may have guessed I'm a pretty positive person, but I still had a bit of anxiety before. Sounds like you're doing fine and you're right. It'll be good to get rid of that thing. Plus, they'll be able to get a good look at it and definitively tell you what type of cancer you have which will determine future treatments. I have the EGFR mutation, so I take a small pill once a day. That's it!

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@flusshund

Hi bbtn,

I had an upper right lobectomy in 2018 back when I was still 58 years young to remove a 3 cm cyst. Do you know what type of surgery you'll have? I had RATS, or robotic-assisted, which is the least invasive and has the shortest recovery time. I was discharged from the hospital 2 1/2 days after the surgery because my surgeon said, "There are sick people there." I had 30 days of opioid pain medication at home following the surgery. After that, I took Tylenol when needed.

It IS major surgery, but had brain surgery two years later and the recovery from lung surgery is way faster. The good news is you have three lobes on the right side. After they remove one, the others will gradually expand until you've recovered much of your lung capacity. I know a long-distance runner who had the right lower lobectomy and was back to serious running a couple of years later.

I'm a dog owner, so I'm always walking which does help. I was taking short walks within a week of returning home.

Congratulation on finding this forum. It helped me a lot. Feel free to ask questions as there are a lot of helpful, experienced people here.

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Hi Matthew
Yes mine will be rats as well. My surgeon suggested walking and more walking up till the surgery so I've been pounding the pavement through my neighborhood. I keep flip flopping between looking forward to getting this out of my lung and being really scared cause of well surgery. Its good to see so many people have had the same and are up and living their lives soon after though!

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