Aching legs from Small Fiber Neuropathy

Posted by rwinney @rwinney, Oct 23, 2019

One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel

@lioness

@lorirenee1 I'm sorry to hear your in so much pain today Remember we are Pain Warriors and don't let this pain define us Have you tried soaking your feet in Epsom Salt water may help The magnesium in E.S helps nerves as well as muscles Praying 🙏 for you and all of us in pain today Pray the Holy Spirit will help you today.Linda

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@lioness Hi Linda, Yes, this pain utterly sucks. No description. Coincidentally, I filled my foot spa with Epsom salt today, and soaked. Relieving. Very relieving. Now that my Kratom is wearing out, I will do a few puffs of marijuana, and the day will go by. Thanks for prayers, and they are returned back to you. God Bless, Lori Miller

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@lioness

@rwinney I will feel o.k. today tomorrow who knows Yesterday it was my Right hip and groin giving me trouble where do you live Rachel? I live on Calif.all my life I lived in PA. Glad to get out of the snow

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So sorry for your pain. I have the cold luxury of living in NY.

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@rwinney

So sorry for your pain. I have the cold luxury of living in NY.

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@rwinney Oh you poor soul haha I n
Moved out here to help raise my grandson ,glad I did no one left in PA but good friends but family comes first huh You are a good helper with advice Stay strong bear

Liked by rwinney

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@lorirenee1

@rwinney Rachel, A giant thanks just for being there for me. You get it. You know. Wish I could take a magic wand and make us healthy. We are such vital human beings. So alive, in spite of this. Just a giant thanks for being there. Do not even know what to say……..God Bless. Lori Renee

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Back atcha Lori! I noticed in your bio that you were a teacher. Many thanks to you for your work. Such a needed, underpaid, valuable job.

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@lioness

@rwinney Oh you poor soul haha I n
Moved out here to help raise my grandson ,glad I did no one left in PA but good friends but family comes first huh You are a good helper with advice Stay strong bear

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😊

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May I ask anyone out there…if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.

Also, and I believe @jimhd suffers from this…my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.

My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.

Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.

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If you have pain in the groin it is most likely your hip. I am getting ready to have a THR…If heat helps you have you considered getting a small sauna.. I have thought about it, but I'm not sure it helps me.

Liked by lioness

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@rwinney

May I ask anyone out there…if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.

Also, and I believe @jimhd suffers from this…my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.

My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.

Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.

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This might indeed be a good new thread, @rwinney, on the subject of swallowing discomfort and pain, if you'd be willing to start it.

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@lisalucier

This might indeed be a good new thread, @rwinney, on the subject of swallowing discomfort and pain, if you'd be willing to start it.

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I'd be happy to start it and you can move my post there, correct?

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@rwinney

May I ask anyone out there…if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.

Also, and I believe @jimhd suffers from this…my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.

My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.

Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.

Jump to this post

I'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to California while I was in college. I have esophageal dysmotility and silent reflux and whatever. I chew everything endlessly until it's pureed. The little bite of food makes its way to the top of my esophagus, then it moseys on down to the bottom of the esophagus and waits for the valve to open and allow the food to get to my stomach. Right now I'm eating pancakes in a restaurant. I don't want to know how many calories of syrup I've used to make it easier to swallow. My poor wife, who isn't with me, finishes her meal when I'm only half way. Usually she plays games on her tablet while I finish the chore of swallowing. I find that I am eating less because I get tired of the process. That's something the speech therapist warmed me of, and told me not to lose any more weight. Recently swallowing liquid has become an issue. Not supposed to drink carbonated drinks or use a straw.

I'm done with chewing now, so I'm going to head home.

Happy Chewing!

Jim

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@peggyn

If you have pain in the groin it is most likely your hip. I am getting ready to have a THR…If heat helps you have you considered getting a small sauna.. I have thought about it, but I'm not sure it helps me.

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@peggyn Thank Peggy I thought it may get be I live in a senior building ,no sauna but can get to one I will use heating pad more Hope your haven't my a good day

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I have Neuropathy, but I am not to the point you are yet.

Has Mayo assessed you for Chronic Pain Syndrome?

Mayo has an excellent Pain and Rehabilitation Program if you qualify to attend the 3 week training.

Have a great day!

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@jimhd

I'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to California while I was in college. I have esophageal dysmotility and silent reflux and whatever. I chew everything endlessly until it's pureed. The little bite of food makes its way to the top of my esophagus, then it moseys on down to the bottom of the esophagus and waits for the valve to open and allow the food to get to my stomach. Right now I'm eating pancakes in a restaurant. I don't want to know how many calories of syrup I've used to make it easier to swallow. My poor wife, who isn't with me, finishes her meal when I'm only half way. Usually she plays games on her tablet while I finish the chore of swallowing. I find that I am eating less because I get tired of the process. That's something the speech therapist warmed me of, and told me not to lose any more weight. Recently swallowing liquid has become an issue. Not supposed to drink carbonated drinks or use a straw.

I'm done with chewing now, so I'm going to head home.

Happy Chewing!

Jim

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@jimhd I read your post àbout swollowing There isva thick liquid you can take that helps I can't think of the name of it but perhaps @becsbuddy can remember it

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@rwinney

May I ask anyone out there…if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.

Also, and I believe @jimhd suffers from this…my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.

My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.

Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.

Jump to this post

@awinney Hi again, Rachel, I do have a problem with heat, every single morning when I wake up. My entire legs feel like they are on fire. As soon as I start moving out of bed, it disappears. While it happens, it feels horrible. I have also had 2 strange episodes of esophagus problems when eating. Each time, I almost felt like I had a kink in my esophagus, and could not get my food down. I felt like I had to stand tall, to unkink my esophagus, and of course, stopped eating completely. I have a history of esophageal reflux that started as a reaction to meds. I really have any answers to these temperature and esophagus problems, because I never pursued answers. Don't know if this is too smart, or not. Just get so tired of physical health problems. Yeesh!!!! Lori R

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@healingone

I have Neuropathy, but I am not to the point you are yet.

Has Mayo assessed you for Chronic Pain Syndrome?

Mayo has an excellent Pain and Rehabilitation Program if you qualify to attend the 3 week training.

Have a great day!

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Hello. Who is your post meant for?
Rachel

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