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Aching legs from Small Fiber Neuropathy

Posted by Rachel, Volunteer Mentor @rwinney, Oct 23, 2019

One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel

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janstar61 | @janstar61 | Jun 11, 2021
In reply to @artscaping "Hi there...I just want to acknowledge your description of SFN in your legs. That is exactly..." + (show)
@artscaping

Hi there…I just want to acknowledge your description of SFN in your legs. That is exactly the way mine feel in the morning. They also feel a little heavy. I truly have to lie in bed until the achy heaviness goes away and I can tackle my day. Do you use any topicals or other medication to get your legs to sit up and take notice n the morning?

May you be safe, protected and free.
Chris

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I am way past topicals. My legs skin feels like I have 3rd degree burns all over them. Third degree burns with tight nylon stockings pulled over them. I also have fibromyalgia. I am on both Lyrica and an opioid patch. That is the only thing that keeps me sane.

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Mentor
Chris Trout, Volunteer Mentor | @artscaping | Jun 11, 2021
In reply to @dck "I was diagnosed with idiopathic SFN two years ago. My legs are currently achy, heavy, and..." + (show)
@dck

I was diagnosed with idiopathic SFN two years ago. My legs are currently achy, heavy, and tired feeling. My feet are dumb but not completely so. I find that a warm bath in the evening helps along with a topical spray called "That Stuff for Pain". I use it in the evenings when my symptoms are a little more pronounced. Going on walks during the day is also effective. I thought that I would try some CBD topical cream. Just bought one that is 500 mg THC and 25 mg CBD. Fingers crossed….

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Good evening @dck. Thanks for sharing on connect. I also have achy, heavy legs in the morning. I do find that an Aveeno Bath is soothing for my entire body. I love walking and do some stretchy yoga when my cranky knee permits it.

I am a little concerned about your CBD topical. I have been using medical cannabis for about 7 years. I have never heard of a 500/25 combination of THC and CBD. Are you sure? That is 20 to 1. THC to CBD. As far as I can go is a 1:3 CBD to THC. Please check for me so I don't worry about you.

May you be free of suffering and the causes of suffering.
Chris

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Doug K | @dck | Jun 12, 2021

Chris, I checked the cream and it is as I described. The manufacturer is Proofly. I am located in Canada. I agree that it is an unusually high mix and, in fact, the exact product is not presently available on the manufacturer's web site. I have been told that because the product is a topical cream, there is no possibility that the THC will have a hallucianic effect. I did use a 50-50 mix before. That experience was positive but I wanted to see if this product produced a better/worse effect.

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retired123 | @retired123 | Aug 28, 2021

Have you had an ultrasound for venous insufficiency? The heavy aching legs is a main symptom. See a vein specialist for a diagnosis.

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