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Aching legs from Small Fiber Neuropathy
One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel
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May I ask anyone out there...if you also experience uncontrollable temperature regulation, flush skin/ face, dizziness? I have experienced all of these symptoms for several years and understand that it's part of my autonomic and sensory neuropathic discomforts. Ruled out menopause as I was greatly confused for some time.
Also, and I believe @jimhd suffers from this...my newest "trick" is swallowing discomfort and pain. It began last September and I thought it was happening because of dense food (peanut butter sandwhich) but has now progressed to happening with a simple sip of water. My esophagus feels every bit go down from a tiny pill to a chunk of meat. There are times when the food or pill feels as if it lingers in the top of my stomach or at the sides of my throat. I now need to cut food smaller, chew longer and drink more. Still, I'm very uncomfortable for the next 1-2 hours. I never choke but the sensations are there. Sometimes more noticeable than others. Overall it's discomfort but there can be pain that makes me feel like I need to stand tall and elongate my body for things to pass through. Have doubled over from it too.
My research tells me it's muscle weakness from SFPN, which explains the inconsistency, verses digestive problems. Either way, I'm back with a gastroenterologist while tryng to figure out my "chronic copper poisoning" for the past year and going for an esophogram with endoscopy on tap.
Come one, come all with any thoughts, experiences or advice on any if this. I probably should have started a new thread.
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4 ReactionsIf you have pain in the groin it is most likely your hip. I am getting ready to have a THR...If heat helps you have you considered getting a small sauna.. I have thought about it, but I'm not sure it helps me.
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1 ReactionThis might indeed be a good new thread, @rwinney, on the subject of swallowing discomfort and pain, if you'd be willing to start it.
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3 ReactionsI'd be happy to start it and you can move my post there, correct?
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2 ReactionsI'm a native New Yorker, lived in Brockport, Canandaigua and Jamestown. Then my parents moved to California while I was in college. I have esophageal dysmotility and silent reflux and whatever. I chew everything endlessly until it's pureed. The little bite of food makes its way to the top of my esophagus, then it moseys on down to the bottom of the esophagus and waits for the valve to open and allow the food to get to my stomach. Right now I'm eating pancakes in a restaurant. I don't want to know how many calories of syrup I've used to make it easier to swallow. My poor wife, who isn't with me, finishes her meal when I'm only half way. Usually she plays games on her tablet while I finish the chore of swallowing. I find that I am eating less because I get tired of the process. That's something the speech therapist warmed me of, and told me not to lose any more weight. Recently swallowing liquid has become an issue. Not supposed to drink carbonated drinks or use a straw.
I'm done with chewing now, so I'm going to head home.
Happy Chewing!
Jim
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4 Reactions@peggyn Thank Peggy I thought it may get be I live in a senior building ,no sauna but can get to one I will use heating pad more Hope your haven't my a good day
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1 ReactionI have Neuropathy, but I am not to the point you are yet.
Has Mayo assessed you for Chronic Pain Syndrome?
Mayo has an excellent Pain and Rehabilitation Program if you qualify to attend the 3 week training.
Have a great day!
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2 Reactions@jimhd I read your post àbout swollowing There isva thick liquid you can take that helps I can't think of the name of it but perhaps @becsbuddy can remember it
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1 Reaction@awinney Hi again, Rachel, I do have a problem with heat, every single morning when I wake up. My entire legs feel like they are on fire. As soon as I start moving out of bed, it disappears. While it happens, it feels horrible. I have also had 2 strange episodes of esophagus problems when eating. Each time, I almost felt like I had a kink in my esophagus, and could not get my food down. I felt like I had to stand tall, to unkink my esophagus, and of course, stopped eating completely. I have a history of esophageal reflux that started as a reaction to meds. I really have any answers to these temperature and esophagus problems, because I never pursued answers. Don't know if this is too smart, or not. Just get so tired of physical health problems. Yeesh!!!! Lori R
Hello. Who is your post meant for?
Rachel