Aching legs from Small Fiber Neuropathy

Posted by rwinney @rwinney, Oct 23, 2019

One of my relentless symptoms from neuropathy is profusely aching legs. Does anyone share this symptom with me? At times I wonder if it could be another issue. They hurt so bad and create pain when walking continuously. Both legs feel heavy, tired and can't get much mileage. When I walk it's as though they are full of lead and they make me go at a turtles pace. If I stop and don't move they may settle a bit but then same old situation as I walk again. Only relief is being elevated and wrapped with heat or soaking in warm water. That buys me maybe a half hour or an hour tops. Same goes for any topicals. A tight wrap feels good almost like a weighted blanket does. Something about tightening the muscles does too.
I appreciate comments or feed back you may have to share on this.
Thanks all,
Rachel

@tfarrell

Preaching to the gallery. My right calf has just about disappeared, I have trouble getting up if I’m on my knees and I get pain so bad at night I just want to take a hammer and beat my legs. I’m tired from getting the attacks 2-3 nights a week and waking up in the morning wondering where my legs are.

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Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now through.my whole body and should n't be on phone but will go crazy if o don't reach out and take away from myself by redirection.. Can't see well from bad eyes and head So forgive me if there are typos.. Calf pain has been so bad it feels like gunshots. It feels like somebody takes their fingers and just rips my skin apart. It feels like knives are slicing them. Brutal.
I'm sorry to vent to a stranger. And I don't mean to do it. Please know you're not alone in your pain. Feel free to post any time. There's always a good support group to help.Be well this evening.
Rachel

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Hi rwinney,
Sorry to hear about your acute pain. Are you on the FB protocol that John Bishop is on?
Jager

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@jager5210

Hi rwinney,
Sorry to hear about your acute pain. Are you on the FB protocol that John Bishop is on?
Jager

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Thank you. Yes, I am.

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@rwinney

Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now through.my whole body and should n't be on phone but will go crazy if o don't reach out and take away from myself by redirection.. Can't see well from bad eyes and head So forgive me if there are typos.. Calf pain has been so bad it feels like gunshots. It feels like somebody takes their fingers and just rips my skin apart. It feels like knives are slicing them. Brutal.
I'm sorry to vent to a stranger. And I don't mean to do it. Please know you're not alone in your pain. Feel free to post any time. There's always a good support group to help.Be well this evening.
Rachel

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No worries, thanks for the words of encouragement and I hope you are feeling better soon. Take care

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@ecc79

No worries, thanks for the words of encouragement and I hope you are feeling better soon. Take care

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Thank you as well. And I hope you are feeling better soon too. We are stronger than the pain and no matter what, we can not let it defeat us! (I'm too stubborn to let that happen- hah). Have a peaceful day.
Rachel

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@rwinney

Thank you as well. And I hope you are feeling better soon too. We are stronger than the pain and no matter what, we can not let it defeat us! (I'm too stubborn to let that happen- hah). Have a peaceful day.
Rachel

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You too Rachel. I don’t take any pain medicine. I take whatever life gives me

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@rwinney

Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now through.my whole body and should n't be on phone but will go crazy if o don't reach out and take away from myself by redirection.. Can't see well from bad eyes and head So forgive me if there are typos.. Calf pain has been so bad it feels like gunshots. It feels like somebody takes their fingers and just rips my skin apart. It feels like knives are slicing them. Brutal.
I'm sorry to vent to a stranger. And I don't mean to do it. Please know you're not alone in your pain. Feel free to post any time. There's always a good support group to help.Be well this evening.
Rachel

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@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my toes and balls of feet were in a vice today. Stopped the Low Dose Naltrexone for a few days, because I did not think it was helping. I guess it was, because I was in utter agony until I took Kratom. Brought pain down from a 10 to a 6 or so. Considering Dorsal Root Ganglion Stimulation. Just cannot deal with this anymore. Got medical marijuana card, and I am using it more than I like to. Rachel, Rachel, Rachel……this is not fair. From where do we gather strength? How often do you just cry? Tears trickling down my eyes today, as I chugged Kratom. Unbelievable. Had lumpectomy, and wound up with this mess. I am so sorry I am so low. Gotta put the spirit of God inside me. Find the joy…somehow…. Lori Renee

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@rwinney

Hi. I'm so sorry. Believe me, I do know your pain. I'm in rotten pain now through.my whole body and should n't be on phone but will go crazy if o don't reach out and take away from myself by redirection.. Can't see well from bad eyes and head So forgive me if there are typos.. Calf pain has been so bad it feels like gunshots. It feels like somebody takes their fingers and just rips my skin apart. It feels like knives are slicing them. Brutal.
I'm sorry to vent to a stranger. And I don't mean to do it. Please know you're not alone in your pain. Feel free to post any time. There's always a good support group to help.Be well this evening.
Rachel

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@rwinney Oh I'm so sorry Rachel Can you get in and take a hot shower ?That always helps me .Epsom salts good for pain Vinegar does the same .Apple Cider though ,heating pad Hope you find some relief Thinking of you Linda

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@lorirenee1

@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my toes and balls of feet were in a vice today. Stopped the Low Dose Naltrexone for a few days, because I did not think it was helping. I guess it was, because I was in utter agony until I took Kratom. Brought pain down from a 10 to a 6 or so. Considering Dorsal Root Ganglion Stimulation. Just cannot deal with this anymore. Got medical marijuana card, and I am using it more than I like to. Rachel, Rachel, Rachel……this is not fair. From where do we gather strength? How often do you just cry? Tears trickling down my eyes today, as I chugged Kratom. Unbelievable. Had lumpectomy, and wound up with this mess. I am so sorry I am so low. Gotta put the spirit of God inside me. Find the joy…somehow…. Lori Renee

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@lorirenee1 I'm sorry to hear your in so much pain today Remember we are Pain Warriors and don't let this pain define us Have you tried soaking your feet in Epsom Salt water may help The magnesium in E.S helps nerves as well as muscles Praying 🙏 for you and all of us in pain today Pray the Holy Spirit will help you today.Linda

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So very, very sorry and can't thank you enough for sharing.
Rose

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@lioness

@rwinney Oh I'm so sorry Rachel Can you get in and take a hot shower ?That always helps me .Epsom salts good for pain Vinegar does the same .Apple Cider though ,heating pad Hope you find some relief Thinking of you Linda

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Hey Linda
Yes ma'am, got in shower but was painful on body. Some days are just a bear and I know I will survive them because I'm stronger than your average bear! Girl, I live with heat packs. They are a huge help to me most days and I recommend heat to many. Thank you my friend for caring. Have a wonderful day.
Rachel

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@lorirenee1

@rwinney Hi Rachel, Your pain description is brutal, and yet I get it. Felt like my toes and balls of feet were in a vice today. Stopped the Low Dose Naltrexone for a few days, because I did not think it was helping. I guess it was, because I was in utter agony until I took Kratom. Brought pain down from a 10 to a 6 or so. Considering Dorsal Root Ganglion Stimulation. Just cannot deal with this anymore. Got medical marijuana card, and I am using it more than I like to. Rachel, Rachel, Rachel……this is not fair. From where do we gather strength? How often do you just cry? Tears trickling down my eyes today, as I chugged Kratom. Unbelievable. Had lumpectomy, and wound up with this mess. I am so sorry I am so low. Gotta put the spirit of God inside me. Find the joy…somehow…. Lori Renee

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Hello and so good to hear from you. Been thinking about you as I have not seen you post in a while. Sorry about the LDN. As @artscaping so gently reminds me (and she is absolutely correct), there are no take it all away answers. Once I began to understand that reality, acceptance came my way…sort of. I can not tell a lie…I have my days, and yesterday was one of them! My poor husband. It does break my heart (and I'll get mad about it for you) that once people survive cancer, surgeries, etc…this misery awaits them. Indeed – not fair. But if we sit around playing woe is me, life continues on without us. Damn it All! Such a catch 22. I wish you peace and clarity today. Be well.
Rachel

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@birdierobin

You too Rachel. I don’t take any pain medicine. I take whatever life gives me

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Brave soul.

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@rwinney I will feel o.k. today tomorrow who knows Yesterday it was my Right hip and groin giving me trouble where do you live Rachel? I live on Calif.all my life I lived in PA. Glad to get out of the snow

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@rwinney

Hello and so good to hear from you. Been thinking about you as I have not seen you post in a while. Sorry about the LDN. As @artscaping so gently reminds me (and she is absolutely correct), there are no take it all away answers. Once I began to understand that reality, acceptance came my way…sort of. I can not tell a lie…I have my days, and yesterday was one of them! My poor husband. It does break my heart (and I'll get mad about it for you) that once people survive cancer, surgeries, etc…this misery awaits them. Indeed – not fair. But if we sit around playing woe is me, life continues on without us. Damn it All! Such a catch 22. I wish you peace and clarity today. Be well.
Rachel

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@rwinney Rachel, A giant thanks just for being there for me. You get it. You know. Wish I could take a magic wand and make us healthy. We are such vital human beings. So alive, in spite of this. Just a giant thanks for being there. Do not even know what to say……..God Bless. Lori Renee

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