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Abnormal bloodwork for years
I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has dealt with the same?
I’m 35 female and have had abnormal bloodwork for going on 5 years that none of my doctors can figure out.
My bloodwork abnormalities (recurrent or notable lab abnormalities)
• White Blood Cells (WBC): Elevated (leukocytosis)
• Neutrophils: Elevated (neutrophilia)
• Platelets: Elevated (thrombocytosis)
• C-Reactive Protein (CRP): Severely Elevated
• Erythrocyte Sedimentation Rate (ESR): Severely Elevated
• Ferritin: Elevated
• Iron: Low
• Iron Saturation: Low
• Mean Platelet Volume (MPV): Low
• Alkaline Phosphatase: Elevated
• Immunoglobulin E (IgE): Low
(tests that have been run and ruled out)
• ANA (Antinuclear Antibody): Negative
• JAK2 V617F mutation: Negative
• CALR exon 9 mutation: Negative
• MPL mutation: Negative
• BCR-ABL1 fusion (Philadelphia chromosome): Negative
• Leukemia/Lymphoma Flow Cytometry (Phenotyping): Normal
• Bone Marrow Biopsy: No malignancy detected (advanced cellular aging noted)
• Endoscopy & Colonoscopy: Normal, biopsy confirmed mild inflammation
• Pill Capsule Study: Normal
Diagnoses
Hypermobilility
Undifferentiated Connective Tissue Disorder
Small Fiber Neuropathy
Degenerative Disc Disease
Spinal Stenosis (moderate-severe L5-S1) Bulging Discs (L5-S1)
Fibromyalgia
Chronic Fatigue
Difficulty Standing and Walking
Lumbago with Sciatica
Major Depressive Disorder
Generalized Anxiety Disorder
PTSD
Polycystic Ovarian Syndrome (PCOS)
IBS-Mixed Type
GERD
Insomnia
Nausea & Vomiting
Obesity
Diverticulitis
Psoriasis
Restless Leg Syndrome
TMJ Dysfunction
Chronic Rhinitis
Joint Pain
Scoliosis
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Do you have symptoms?
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1 ReactionWell, goodness, @aliviaghormley, you have a lot going on and I’m sure you’re desperately trying to figure out the underlying cause of all these health issues. It’s not for lack of sleuthing. It sounds like you and your doctors have put a great deal of effort into finding a cause and treatment for you.
You mentioned Mayo Clinic…if you haven’t already requested an appointment, here is a link to get you started. http://mayocl.in/1mtmR63
You don’t need a referral but it can be helpful, especially considering some of your complications. Referrals from your specialists may have an impact.
You mentioned your blood work has been wonky for about 5 years. Do you remember anything that precipitated the change? What were your first symptoms?
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2 ReactionsWhat is your hemoglobin levels
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1 Reaction@loribmt thank you for responding. I should’ve included, I do have a referral placed and my doctor just wrote a letter to the ask for charity care since I am on Colorado Medicaid. I heard from the financial department this does take some time, so I’ll plan to call in about 6 weeks if I haven’t heard anything.
As far as what set it off, I think I had an early case of Covid, in February of 2020. It seems like that was a turning point medically speaking.
Symptoms-
- Fatigue
- Weakness
- hypermobility
- chronic pain
- tinnitus
- blurred vision
- nausea
- vomiting
- diarrhea
- constipation
- GERD
- shortness of breath
- palpitations
- urinary urgency
- urinary incontinence
- paresthesias
- leg weakness
- brain fog
- migraines
Of course with all of my diagnoses it is hard to know what is causing which symptom.
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1 Reaction@montauk they are within the normal range.
@shmerdloff yes my symptoms are as follows-
- Fatigue
- Weakness
- hypermobility
- chronic pain
- tinnitus
- blurred vision
- nausea
- vomiting
- diarrhea
- constipation
- GERD
- shortness of breath
- palpitations
- urinary urgency
- urinary incontinence
- paresthesias
- leg weakness
- brain fog
- migraines
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1 Reaction@aliviaghormley I live in Colorado too. University Hospital (Anschutz) in Aurora is much closer than Mayo. Have you had a referral there? Hope the Drs figure out what is going on soon. How do the symptoms affect your employment?
@janetlen hi, thanks for responding. I wasn’t sure if they had a department for blood disorders, when looking online it looked like they had a cancer center and a center for bleeding disorders.
Unfortunately I have been unable to work for about 3 years now. I am in the appeal process for my disability application.
Yes, Anschutz has a clinic for blood disorders and Cancers. On the 3rd floor in the Cancer wing. IMO they have some of the best Drs in the nation. Maybe you could at least get a review of your records there? I believe there is also a City of Hope in Denver, but I have not looked into it. Sorry you can't work. As young as you are, that must be tough! I imagine standing or sitting is very painful with bulging discs. I hope you find a medical professional who can sort this out for you and get you on the road to recovery. It seems like with all of your tests that blood disorders or cancers might be ruled out. If this were brought on by COVID, would an infectious disease doc be more helpful? Any chance you are vaccine injured? Is there a group on this site for vaccine injuries or long COVID? Have you asked your Dr about those 2 possibilities?
Alivia - I just checked Mayo for a Covid support group. Many of the symptoms you note are listed there: https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/