Abnormal bloodwork for years

Posted by aliviaghormley @aliviaghormley, Oct 14 2:11am

I’m actually waiting to see if Mayo Clinic will accept my case, but I wonder if anyone else out there is dealing with or has dealt with the same?

I’m 35 female and have had abnormal bloodwork for going on 5 years that none of my doctors can figure out.

My bloodwork abnormalities (recurrent or notable lab abnormalities)
• White Blood Cells (WBC): Elevated (leukocytosis)
• Neutrophils: Elevated (neutrophilia)
• Platelets: Elevated (thrombocytosis)
• C-Reactive Protein (CRP): Severely Elevated
• Erythrocyte Sedimentation Rate (ESR): Severely Elevated
• Ferritin: Elevated
• Iron: Low
• Iron Saturation: Low
• Mean Platelet Volume (MPV): Low
• Alkaline Phosphatase: Elevated
• Immunoglobulin E (IgE): Low

(tests that have been run and ruled out)
• ANA (Antinuclear Antibody): Negative
• JAK2 V617F mutation: Negative
• CALR exon 9 mutation: Negative
• MPL mutation: Negative
• BCR-ABL1 fusion (Philadelphia chromosome): Negative
• Leukemia/Lymphoma Flow Cytometry (Phenotyping): Normal
• Bone Marrow Biopsy: No malignancy detected (advanced cellular aging noted)
• Endoscopy & Colonoscopy: Normal, biopsy confirmed mild inflammation
• Pill Capsule Study: Normal

Diagnoses
Hypermobilility
Undifferentiated Connective Tissue Disorder
Small Fiber Neuropathy
Degenerative Disc Disease
Spinal Stenosis (moderate-severe L5-S1) Bulging Discs (L5-S1)
Fibromyalgia
Chronic Fatigue
Difficulty Standing and Walking
Lumbago with Sciatica
Major Depressive Disorder
Generalized Anxiety Disorder
PTSD
Polycystic Ovarian Syndrome (PCOS)
IBS-Mixed Type
GERD
Insomnia
Nausea & Vomiting
Obesity
Diverticulitis
Psoriasis
Restless Leg Syndrome
TMJ Dysfunction
Chronic Rhinitis
Joint Pain
Scoliosis

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Profile picture for janetlen @janetlen

Alivia - I just checked Mayo for a Covid support group. Many of the symptoms you note are listed there: https://connect.mayoclinic.org/group/post-covid-recovery-covid-19/

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@janetlen thank you so much for taking the time to reply with such good info for me. I will ask about Anschutz and also about an infectious disease doctor, I am seeing an immunologist who works with many other specialists at Veros Health, maybe they can help me with that.
I’ll also look at the group you shared, and see if I can find more info on City of Hope.
Thanks again for all of your help, and I really appreciate the well wishes.
Sending wishes of peace and comfort to you! Thank you

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