Ablations and medications not keeping away afib episodes

Posted by bryalmom @bryalmom, Dec 19, 2021

I've had two ablations in the past year and am currently taking sotalol and eliquis. I am having afib episodes at least monthly and this month have had one each of the past two weeks. During the episodes I feel weak and lightheaded. The episodes used to last 4-6 hours and since I have been on sotalol they are lasting 12 to 25 hours. Fortunately, each time my heart rhythm has converted to sinus rhythm on its own. I am currently feeling like I can't travel or plan anything because I am concerned I will have an afib episode. My hospital has temporary EPs coming in since my regular EP quit. Is there some kind of a research program at Mayo in Rochester that I could apply to be a part of? This continuing fear of episodes is affecting myself and my family.

Interested in more discussions like this? Go to the Heart Rhythm Conditions group.

Hello Bryalmom and welcome to Connect.

My dad was heart patient and during the times he was in the hospital, I could see the Afib rhythms on the monitor. He did have an episode one time at home where he had collapsed on the floor, and then recovered because his pacemaker with a defibrillator fired and reset his heart rhythm. After that, he did have an ablation and that may have been due to a misfire in the ventricles. He had been admitted to the hospital under observation and nothing happened until he was going into the restroom before he was to be discharged, and his heart misfired and the defribillator paddles were used to reset it. I'm not sure if that is relevant to your situation. He had also been on medications for this. He had a heart monitor next to the bed that reported data from his pacemaker and automatically sent it to the doctor's office.

I searched for clinical trials at Mayo for Afib and I found this page with a lot of results. There are specific criteria for qualification for any clinical trial, and if you click on the links for any of these studies, you can find more information.
https://www.mayo.edu/research/clinical-trials/diseases-conditions/atrial-fibrillation/
You can find the Mayo Electrophysiology department at this link. https://www.mayoclinic.org/departments-centers/electrophysiology-laboratory/overview/ovc-20442531

If you wish to seek care at any of the Mayo Clinic campuses, you may use this link. http://mayocl.in/1mtmR63

You may also be interested in joining other members who are talking about atrial fibrillation an heart rhythm disorders.

Ask your questions, share your story, connect and find support here:
https://connect.mayoclinic.org/group/heart-rhythm-conditions/
Here is a Mayo Clinic Q & A about Afib
https://connect.mayoclinic.org/event/video-qa-about-atrial-fibrillation/
If there isn't a clinical trial available to you, would you consider looking for a new specialist at Mayo Rochester?

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I had recurrent a fib episodes several years ago. A few times they converted on their own and one time I had to be cardio converted. My EP suggested that I have a pacemaker inserted. It was the best thing I ever did. The heart does still have episodes of AFib but you never feel it and the pacemaker keeps a normal rhythm because it runs the entire heart. I failed to mention that along with the pacemaker they did an AV node ablation which makes the heart completely dependent on the pacemaker. Of course I also take Xarelto to thin the blood and prevent a stroke. I have had the pacemaker since 2004 and I am soon to have my third new one in 1 1/2 years has the batteries do have a life limit.

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