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kimass1
@kimass1

Posts: 4
Joined: Dec 20, 2018

55 y/o female with Grover's Disease

Posted by @kimass1, Dec 21, 2018

I was recently diagnosed with Grover's disease although I am not convinced it's proper diagnosis. The rash coincides with the purchase of a new polyurethane mattress. However, I have since moved to another room and it persists… so it could be coincidence. It started on my temples as little bumps that had an INTENSE ITCH and then they slowly progressed over a couple months down the back of my head, then neck, upper, back, then low back and around to my stomach with a few small outbreaks on my elbows. I was superscribed prednisone which was a god send. It stopped the itching completely and the bumps almost completely disappeared. Until I ran the course, and it all came back with a vengeance! The itching is awful! I can't sleep. No antihistamines work, no over the counter creams work. It's only been about three months since this all started and I can't imagine living like this for years! I have had custody of my 16 month old grand daughter since her birth so I can't afford to lose any more sleep! I need HELP!

REPLY

I began with Allergic Contact Dermatis, ACD in mid 50's and developed Grover's at age 65. Those of us with eczema often have multiple forms. Now I have developed 3. Has your doctor considered you may have multiple forms? Have you had the 5 Day Extended Patch Test, this exact 5 day test for ACD. Google it

I am not allergic to polyurethane, but still must protect myself from my mattress with polyurethane with a plastic or vinyl barrier, cover that that with a thick 100% cotton pad and then the 100% cotton sheets. No blended material sheets as they contain elements from rubber. That is because often mattress have blended materials in them which include an element from rubber, MBT. Also I am allergic to chemical used to a make a product fire retardant and some mattresses are. These chemicals off gas into the air and through your skin so a barrier is necessary. My Grover's began 6 months after we bought a memory foam mattress- memory foam may or may not contain MBT from rubber or another rubber element, clearly this element overloaded my system and raised my histamine levels.

I have not heard of Grover's breaking out at temples or elbows, very rare if that is the case so this makes me more suspicious that you have multiple forms of eczema. Even if you test positive for ACD, at least you eliminated that form for now and then can begin searching for other types you may have.

Check out New Zealand Dermatology, dermnetnz.org for self education as I believe this is better than any US site. Great info on Grover's. I have 4 out of 5 criteria, the 5th being that the majority are male. Very good photos while searching eczema/dernatisis forms. Rashes often have a specific look and location for each type.

Today order from Amazon Grandma's Bar Soap for face and body. Only 2 ingredients, lye and lard. The lye is converted in to glycerin so all you contact are lard and glycerin, both moisturizing and I have never heard of a reaction to this soap. This is an age old soap making process, just like our ancestors made it and doesn't include all the preservatives, fragrance and other allergy causing ingredients. I also use as a shampoo, but you must have soft water for it to clean hair well, for the body it works fine with hard water. Until you get patch test results (True Test is a common test kit given by specially licensed derms and allergists), you will never guess your way into figuring out what is causing an ACD allergy. Grandma's is now a Mayo Skinsafe approved product.

It was challenging diagnosing my Grover's because the derms kept assuming it was ACD, which has different triggers and treatments. Good for you asking this forum questions. A better blogging site is on Inspire, go to their eczema forum. We eczema suffers like to share, as eczema is not a precise disease and we all seem to find a program that works best for us and want to help others. Presently I am clear of all 3 types, yet my Grover's may be slowing starting as I am beginning to feel an occasional low itch. I started suing Calcipotrene Cream after showers, this is just a vitamin base topical yet is seems to slow the development of an outbreak. My first outbreak lasted 1 year, sequential outbreaks about 6 months on and 6 months off. I am now 6 months clear. I have been given a Kenalog 40, corticosteroid shot annually for my ACD internal skin issues, but it never helped with Grover's. Surprisingly this year, am going on 13 months without the shot. No internal all over the body inside skin issues

I also gave up all sugar, even natural in fruit and all carbs, not just gluten 2 1/2 months ago. Sugar and carbs can raise inflammation in the body from the residual yeast in our intestines. We have to starve off the yeast for it to die. After 5 weeks started noticing improvement with female symptoms, facial flushing and no ACD issues (of course I will need to control contacts for live and do so religiously) and also sugar craving diminished. Now 2 1/2 later don't think about sugar, which is because my starved out yeast is not sending messages to my brain demanded the foods that feed it Your experience with steroids is classic, many get a whip lash so I avoid unless desperate. You seem to have gotten a reaction sooner than most and probably always will, so actively search now for other options.

Be a warrior, I was and now lead a productive and joyful life.

Thank you so much for the information. I will be sure to look in to all of those options. I am willing to try anything to get rid of this! Wishing yo well!

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