5 yrs post covid. Is there any help out there?

@katevanb
Yes Low dose Naltrexone, LDN, is a valuable drug for any autoimmune disease or condition.

For anyone unfamilar with LDN, LDN is basically a "hard boot" of the immune system. It resets the immune system and encourages it to normalize.

I have taken it myself and would have continued LDN, but it caused some anxiety side effects.
I will say that it can be quite dramatic the first few times that you take it. The first time I took it about 3 am it seemed like all the halogen lights in the world went off in my head. That toned down with time. I had to start very low in dose, as most people do and build up to the amount that would hopefully help me.
So this drug may take months to get to the correct dose. Plus, it is a compounded drug so you will work with a doctor's prescription and a compounding pharmacist.

from a google search, asking how it works for long Covid and other autoimmune diseases:
"It is frequently prescribed for Multiple Sclerosis (MS), Crohn’s disease, Hashimoto’s thyroiditis, Rheumatoid Arthritis, and Lupus.
Long COVID Symptoms: Patients often report significant improvements in fatigue, brain fog, chronic pain, and sleep disturbances."

There is lots of research and standard use of LDN now for Long Covid and other autoimmune diseases, here are just a few:
https://mindstreamintegrative.com/blog/low-dose-naltrexone-ldn-for-long-covid-and-other-chronic-conditions-hope-for-lingering-symptoms/
https://www.covidcaregroup.org/blog/low-dose-naltrexone-for-post-covid-inflammation.
https://pmc.ncbi.nlm.nih.gov/articles/PMC12127304/

@katevanb
Thank you. I will look into that. I finally got bad results. Every time I get a blood test MRI, CT scan, EKG everything is perfect. I finally got in to see a Cardiologist and been doing lots of test. I never thought I would be excited to get a Bad result back. I know weird. But after 5 yrs it was nice to finally have proof. I had a 7 day heart monitor and got results back last night. The person doing the test and replying to my Dr. Basically said I had 3 different issues. Once I hear back from my Dr maybe I will get some information and maybe start some type of trying to get me some help. Will see soon.

@katevanb
Yes Low dose Naltrexone, LDN, is a valuable drug for any autoimmune disease or condition.

For anyone unfamilar with LDN, LDN is basically a "hard boot" of the immune system. It resets the immune system and encourages it to normalize.

I have taken it myself and would have continued LDN, but it caused some anxiety side effects.
I will say that it can be quite dramatic the first few times that you take it. The first time I took it about 3 am it seemed like all the halogen lights in the world went off in my head. That toned down with time. I had to start very low in dose, as most people do and build up to the amount that would hopefully help me.
So this drug may take months to get to the correct dose. Plus, it is a compounded drug so you will work with a doctor's prescription and a compounding pharmacist.

from a google search, asking how it works for long Covid and other autoimmune diseases:
"It is frequently prescribed for Multiple Sclerosis (MS), Crohn’s disease, Hashimoto’s thyroiditis, Rheumatoid Arthritis, and Lupus.
Long COVID Symptoms: Patients often report significant improvements in fatigue, brain fog, chronic pain, and sleep disturbances."

There is lots of research and standard use of LDN now for Long Covid and other autoimmune diseases, here are just a few:
https://mindstreamintegrative.com/blog/low-dose-naltrexone-ldn-for-long-covid-and-other-chronic-conditions-hope-for-lingering-symptoms/
https://www.covidcaregroup.org/blog/low-dose-naltrexone-for-post-covid-inflammation.
https://pmc.ncbi.nlm.nih.gov/articles/PMC12127304/

@katevanb
Thank you. I will look into that. I finally got bad results. Every time I get a blood test MRI, CT scan, EKG everything is perfect. I finally got in to see a Cardiologist and been doing lots of test. I never thought I would be excited to get a Bad result back. I know weird. But after 5 yrs it was nice to finally have proof. I had a 7 day heart monitor and got results back last night. The person doing the test and replying to my Dr. Basically said I had 3 different issues. Once I hear back from my Dr maybe I will get some information and maybe start some type of trying to get me some help. Will see soon.

Hello to anyone reading this. Well here goes looking for some help. I suffered depression for over 30 yrs. Got better much happier and had many years of good health and traveling. Then 2020 hit and Covid. This is when my life and millions more changed. I have slipped so far worse then ever before since getting Covid in Nov 2020 and then now Long Covid for over 5 yrs. Everything I have been through with doctors has been the Worst. So many failed attempts to get medical help from so many doctors. Nothing yet. I can Not believe that our doctors and the United States has let the millions of Americans suffer with this Horrible illness. Not only do I suffer from Awful depression again I have at least 20 other medical issues to go along with my depression. I watched a movie last night, actually a comedy about life, travel and good times and happy people having fun. What was worse for me was watching this and bringing back memories that life used to be good, life used to be fun, and now all I have is pain. Mental pain, and Long Covid issues with no help from anyone, let alone any doctors. It is so hard to explain this awful feeling I have had for over 5 yrs. I would not wish this on anyone. Watching a happy comedy movie made me cry so many tears. Watching it made me realize that what I had for some 20 years is gone forever and I will never get that back. I am now crying as I type this because all I want to do is die in my sleep. When I was young with depression I explained it to doctors, therapist that all I did every night before bed was ask God to please let me die in my sleep. Well now I am at a point worse then before. I truly believe that none of us will ever get our normal happy lives back. Doctors and the medical community just don't care about us. I am not suicidal or anything so keep the white straight jackets away. I am not and never will do that. I dont not want to spend eternity in Hell. But as of yesterday and last night I am back to asking God to just let me go peacefully in my sleep. I guess this is all I get. At least I had 20 years to travel and really be happy. When I said goodbye to my talk therapist over 25 yrs ago I told her Valerie, that all I wanted is to be normal, be happy 1 yr before I die. Well I got 20 times that much so I feel blessed for that. I am just tired and can't take getting No help from the medical community. Maybe you all are saying Kevin you can't ask God to take you in your sleep he is not that way. I kinda understand that but only he knows how sick, how Sad I am. I am in so much pain both physically and mentally. So again, I wish all of us help from this long covid. If the medical community could get help from a volunteer that is still alive to experiment on I would give myself to help others. In 2021 I said this is awful. I said Kevin how long will this fo on? Then a doctor told me "You People" are just going to have to wait 3 or 4 years. Well it has been. I think that woman doctor was wrong, maybe she meant to say, you people will never get better from this, ever.

Thank you much for your reply. I will look into that. I printed out your post to see if I ever had that test. I just got off the phone with my younger sister and she suffers depression bad too. Thanks to our Father we both got that Jean. When my Dad was in his 50s he attempted suicide. He suffered depression for his whole life. My depression has just came back from getting Covid in 2020. I was so happy before covid, now with all these medical conditions I have slipped back to worse depression. When talking to my sister she is on 4 depression meds now. She suggested I might go get on another. Just like her I will tell you throwing more anti depressants at me won't help. I have at least 20 different covid related issues now and for over 5 yrs. Besides all those issues I have 2 bone on bone knees and that isn't covod related. Also after working the same job for 47.5 yrs they fired be at 64 and that has also hurt me inside. I still have nightmares over that place. I gave them 110% and then they just fire me. I need help with covid issues. But I will look into that blood test. God bless you and all.of us suffering long covid.
Kevin

Thank you much for your reply. I will look into that. I printed out your post to see if I ever had that test. I just got off the phone with my younger sister and she suffers depression bad too. Thanks to our Father we both got that Jean. When my Dad was in his 50s he attempted suicide. He suffered depression for his whole life. My depression has just came back from getting Covid in 2020. I was so happy before covid, now with all these medical conditions I have slipped back to worse depression. When talking to my sister she is on 4 depression meds now. She suggested I might go get on another. Just like her I will tell you throwing more anti depressants at me won't help. I have at least 20 different covid related issues now and for over 5 yrs. Besides all those issues I have 2 bone on bone knees and that isn't covod related. Also after working the same job for 47.5 yrs they fired be at 64 and that has also hurt me inside. I still have nightmares over that place. I gave them 110% and then they just fire me. I need help with covid issues. But I will look into that blood test. God bless you and all.of us suffering long covid.
Kevin

@kevtan
Yes, I inherited the tendency from my father who was lucky enough to have a doctor that used T3 for depression and knew of the problem.
Interestingly, my father never alerted me, but I was lucky enought to also have a doctor that tested me.

My general practioner called that doctor, "the Quack", but the "Quack" found my t3 deficit and also found my gluten intolerance which made such an impact that 15 years of white cells irregularity was normalized in 6 months after stopping gluten. My GP stopped with the quack talk and started checking his other patients with similar symptoms for gluten intolerance and low T3 counts. 🙂 That"quack" changed my life, my GP doctor's practice and the life of many of those GP patients. Pretty good for a "quack"'.
He was very interesting though; I had to take my husband with me to my appointments because he preferred to talk to him; he was brillant but on the autism continuum probably in the Asperger’s syndrome area. He was a blessing to me!