Aneurysm grew 4.1 to 4.7 in one year - which questions should I ask?
I am 75 female 5'6" and 157 lbs. Very active and try to stay busy every day. My aneurysm grew from 4.1 to 4.7 in one year. My cardiologist just referred me to a surgeon. I know very little about growth rate and questions I should ask. My mother had two aneurysms and 3 brothers died suddenly at 42, 50, 65 and two of dads brothers died of ruptured aneurysms. Since I live 52 miles from the nearest the hospital how big of a rush should I be in.
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Thank you.
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1 Reaction@chebo1954 had a cta chest w/contrast 2weeks ago since i had a ct scan for something else in july '25 it showed my dilated aortic aneurysm root measuring 5.3 cm. so i went to cardio surgeon and got the above mentioned procedure and it showed my aortic root to be only 4.9cm, ascending aorta 4.5, and descending being only 3cm. should i be concerned.? doc told me to have similar tests next year at this time again.
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2 Reactions@flaxxy703 I would always be concerned especially when you are getting different numbers/readings I’d want to get it nailed down close as I could. My cardiologist seems so indifferent that I spend a lot of time doing my own research & asking people here cause they’re pretty knowledgeable
@chebo1954
Here's what I would ask:
Could this growth be from differences in how the scans were done, or is it definitely real?
Should we repeat the scan soon to double-check the size and growth rate?
Can we look at the images together so I understand exactly where and how it’s being measured?
At what size or growth rate would you usually recommend surgery in my situation?
Does my overall health or anatomy change that decision point at all?
If surgery becomes necessary, what kind would be best for me — open or endovascular?
How risky is that kind of surgery, and what kind of recovery time should I expect?
In the meantime, what’s my ideal blood pressure target, and do we need to tweak my meds?
Are there limits on exercise, lifting, or other activities I should stick to?
How often do you want me to get follow-up scans from here on out?
Is there any chance this could be hereditary — should my family get screened?
If I ever get sudden chest or back pain, what exactly should I do or say when I go to the ER so they take it seriously?
Peace
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2 ReactionsThe fact that you live 52 miles from the hospital is concerning. I had an aortic dissection in the middle of San Diego and was lucky enough to have an ambulance to my hotel within about three minutes. Because I was in a major metropolitan area they got me into surgery immediately. I would be really cautious about any back pain or chest pain that you experience. You do not want to risk being out 52 miles from help. I know that nobody wants to hear that they live too far from the hospital, but it has more or less guided my thinking about where I live since I had my dissection in 2015. As much as my wife and I would like to move out of the city and be up on a lake somewhere in the middle of nowhere, we've resisted that move because we feel like I'd be too far from help if I needed it. So I don't know what the right answer is for you, but I know for me we are going to stick close to a major Medical Center until we don't need one anymore. Peace.
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2 ReactionsI recently heard of a blood test, through Cleveland Clinic called TMAO (Trimethylamine-Oxide), results of which that can predict aneurysm growth in order to monitor and manage aneurysms. I am currently trying to find where I will have this done as my current cardiologist knows nothing about it. I will ask my secondary cardiologist with Mass General/Brigham Women’s to help me if he can. Check out the article I will attach and see how that goes. Good luck!
https://consultqd.clevelandclinic.org/tmao-can-predict-growth-of-abdominal-aortic-aneurysm
@staceyc25 Thankyou. Will do
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1 Reaction@rlhix I am possibly looking for a second opinion. I live in SC and my husband goes to Mayo in Jacksonville, but are also from Ohio near the Cleveland Clinic. I am debating on getting a second opinion from the Mayo and interested in your experience.
Thank you!
@sandyk730
I had an incredible amount of work done at Mayo Jacksonville last fall including the Bentall Procedure. That was probably the only facility in Florida or a 400 mile radius of me that could have done that and all 4 major things I had done that day or I wouldn't be here. They work as a team and the after care is top shelf. I still have a 4.6 cm aneurysm on the remaining native part of the ascending aorta that is being monitored by Mayo.