Stage 3 Kidney Disease and Diet: What can I eat?

Posted by carnes @carnes, Jun 11, 2018

It seems there is very little you can eat that is healthy for the Kidneys. The web site Davida has plenty of food on it but contradicts what other sources say. Anyone know anything for breakfast, lunch and dinner that does not have any sugar or flour bodies the obvious boring or bland foods good for Kidneys and I’m allergic to sugar of any kind of sweetener and flour. Thank you.

@rosemarya

Have you thought about contacting social worker who is associated with the transplant department. They should be able to give you some helpful information. I don’t imagine that your inactive status would matter. I think that this is the kind of thing they are equipped to help you with.

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@rosemarya, that is kind of what I meant about going around for the past 2 months between insurance/pharmacy and departments at Mayo. In September when the Dr. sent the prescription he also gave me a print out of his office visit summary and a request for preapproval / prior authorization for the med. In early October the pharmacy contacted me and wanted to know if I wanted to fill the prescription and pay it out of pocket or ask the Dr. for a prescription for one of the alternatives. I inquired about my Dr.’s request for preapproval / prior authorization and was told that they had already processed it and denied it. I was told I needed to have the Dr. send an “appeal”. I set out to work on that and started with the transplant center since I was seen by the Dr. in the transplant department (he also works in endocrinology) and I had his card with contact info from the transplant department. I haven’t tried contacting the social worker, but I did contact my pretransplant nurse coordinator. “It isn’t really a transplant issue” and I was told to contact the Dr. directly. I tried that too through the transplant center because that was the contact info on the card he gave me in September. I explained my issue to the receptionist that took my call. I got a call back later that the Dr. would be taking care of it in the week. I also got a very nice email/letter from Mayo patient online services dated October 17th. It was a letter from the Dr. reiterating the prescription, why it was necessary and requesting a preapproval/prior authorization. It also had an invitation for insurance to contact him. He used the endocrinology department contact info. That was mid October. At the end of October and early November when I tried to follow up on this with the insurance/pharmacy I was transferred all over both and told they could not find anything like an appeal from the Dr. dated October 17th. We even had two three way conference calls. One between me, insurance and a secretary at Mayo Endocrinology and one between me, insurance and someone in the transplant center. The Mayo folk didn’t know anything about the Dr.’s October letter! I’m sorry this post went on & on. I’m just aggravated. The last I heard was that perhaps insurance just hadn’t received the letter yet and someone there was going to check something and get back to me! I think I’ll take the issue to my local endocrinologist, maybe sooner than later.

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@2011panc

@carnes I also am borderline Stage 3/4 Kidney Disease. Currently I follow five limiting diets: low fiber, low carbohydrates, low fat, low dairy and low oxilate. I eat popcorn, rice cakes, rice, Grape Nuts, Shredded Wheat, bananas, strawberries, peaches, nectarines, pears (few), cantaloupe, watermelon, honeydew, oranges (few), green beans, peas, corn, cabbage, cucumbers (raw), onions, tomatoes, avocadoes, summer squash, carrots (few and most often cooked), asparagus, chicken, lean beef, tuna, fresh/frozen fish, a little pork, and a small amount of dairy from cheese, yogurt, ice cream and milk. The way to enjoy the foods you can eat is with your seasoning. I had very little available to me during a long hospital stay and watched cooking shows. Now I often check recipe sites for ideas: FoodNetwork, Cooking.com, Allrecipies.com, to name a few. I do put canned dry beans in my chili, but we only eat that a few times a month. I encourage you to check some things out and would love to hear how you are doing. Good luck.

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11/18/18. Hi 2011 panc, I Appreciate your help. After my nephrologist visit yesterday I’m a bit depressed. He told me NO tomatoes, potatoes, oranges or orange juice, and No bananas. My potassium was high. What are the oxidation foods? That’s what I have to stay away from but I forget exactly which foods they are. I also have TBI mild traumatic brain injury, so I forget my point in the middle of a sentence , can’t remember the correct word to express what I mean at times etc, from an accident couple years ago. I have Hypertention (high blood pressure) so I have to watch my sodium salt intake. Which is what gives food nice flavor. Heart Disease also etc. I went to a Nutricianist a while back but she didn’t seem to know about kidney disease only diabetes. I went to another and the same thing. Thank you sooo much for your help. Are we allowed beans? and meat? I read we don’t need much protein and that’s what is hard on Kidneys.
Please keep in touch. 😊📖🌸

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@kamama94

@acarnes, IDK if this would work for you but have found it pretty satisfying. It's very low in potassium and phosphorus and calories so you can increase amount if you need to and it contains no flour.

Vegetarian Omelet with cheese and veggies 189 mg K (9 %) 70.4 mg P (7 %)
Egg Beater ¼ C 127.8 mg K, 43.2 mg P
Daiya non-dairy mozzarella-flavored shreds 20 mg K, 20 mg P
1 T chopped onion 24.9 mg K 5.3 mg P 1
T chopped bell pepper 16.3 mg K, 1.9 mg P
Sm amt EVOO
Saute onion and bell pepper in sm amt EVOO in small skillet or in nonstick skillet without EVOO, remove and drain, turn heat to low
Pour 1 svg Egg Beater into pan and cook slowly, lifting up edges to allow uncooked egg to run underneath
Sprinkle pepper and onion over cooked egg, top with mozzarella shreds
Fold over and remove omelet to plate
For those who don’t tolerate bell pepper, celery can be substituted 27 mg K 2.3 mg P

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How kind of you to write out a receipt. I have tried and do eat omelette eggs, red bell peppers, and onions, not bad, now with your idea of a little cheese will make it tastier. I do have to watch my fat intake though. Appreciate your suggestions. We need to do all we can to slow down the progression because I for one am scared Of the thought of dialysis!

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@carnes

How kind of you to write out a receipt. I have tried and do eat omelette eggs, red bell peppers, and onions, not bad, now with your idea of a little cheese will make it tastier. I do have to watch my fat intake though. Appreciate your suggestions. We need to do all we can to slow down the progression because I for one am scared Of the thought of dialysis!

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@carnes You can look up nutritional content on these websites:
https://nutritiondata.self.com/
https://www.myfooddata.com/
https://ndb.nal.usda.gov/ndb/
I was told to limit or avoid dairy as well as tomatoes, oranges, dried beans, red meat. . . So I use Daiya or Go Veggie non-dairy "cheese" substitute and Morning Star Farms and Gardein "meat" substitutes. I was advised to read labels and check with a renal specialist before using any product.
Here's a site listing gluten-free foods. https://celiac.org/gluten-free-living/gluten-free-foods/
Not all are necessarily kidney friendly, though some are.

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Vegetarian (not vegan) “chikn” salad:
1 serving cooked “chikn” strips, diced 45 mg K (1%) 0 mg P
1T pecans 28 mg K (1 %) 19 mg P (2 %)
¼ C dried, no sugar added cranberries 19.6 mg K 3.2 mg P
2 T mayonnaise or salad dressing 0, 0 (check label or nutrition data sites to make sure)
Stir all ingredients together, chill
Total 204.4 mg K (10 %) 98.2 mg P (10 %)

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@carnes

11/18/18. Hi 2011 panc, I Appreciate your help. After my nephrologist visit yesterday I’m a bit depressed. He told me NO tomatoes, potatoes, oranges or orange juice, and No bananas. My potassium was high. What are the oxidation foods? That’s what I have to stay away from but I forget exactly which foods they are. I also have TBI mild traumatic brain injury, so I forget my point in the middle of a sentence , can’t remember the correct word to express what I mean at times etc, from an accident couple years ago. I have Hypertention (high blood pressure) so I have to watch my sodium salt intake. Which is what gives food nice flavor. Heart Disease also etc. I went to a Nutricianist a while back but she didn’t seem to know about kidney disease only diabetes. I went to another and the same thing. Thank you sooo much for your help. Are we allowed beans? and meat? I read we don’t need much protein and that’s what is hard on Kidneys.
Please keep in touch. 😊📖🌸

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@carnes Thank you for responding to my post. I have a 15 page list of oxalates in foods. I will list a few types of foods and what the "best" choices are.

Grains/Pasta/Baked Goods: (*oxalate mg per 100g) All these are under 13. Hominy, cooked Wild Rice, cooked white, long-grain rice, plain French toast, plain pancakes, rolls/hamburger/hot dog bun, plain corn tortilla, cornbread, plain white English muffin, frozen waffle, homemade waffle, fresh rice noodles, cooked brown rice, enriched cooked pasta/spaghetti.

Beverages: (*) Only these are over 19. Latte, cappuccino, soy milk, mocha, hot chocolate.

Breakfast Cereals: (*) These are all under 10. Cornflakes, Frosted Flakes, Total, Special K, cooked Oatmeal.

Dairy and Eggs: (*) These are all over 10. Soy vanilla ice cream, chocolate ice cream, Soy milk, Soy ice cream, Vanilla Ensure..

Entrees and Side dishes: (*) These are all less than 11. roasted chicken thigh with skin, enchilada or taco sauce, commercial pre-breaded fish fillet, fried cod fish fillet, curried lamb, lean ground bee meatloaf, tuna salad with mayo, beef taco with cheese, homemade meatless chili, frozen lasagna, homemade lasagna with meat sauce, vegetarian Pad Thai, homemade chili with beef and beans, casserole with chicken and crème sauce, chicken Chow Mein, bean and cheese tostada, boxed macaroni and cheese, beef casserole with gravy, homemade macaroni and cheese, vegetable lasagna, tofu and broccoli stir fry,

Fast Foods: (*) These are less than 6. Bacon/Egg/Cheese Biscuit and plain regular double patty hamburger.

Fats and Oils: (*) Canola Oil is 13.1, soybean and cottonseed oil are 9.9. The rest are all under 4.

Fish and Seafood: (*) Tuna casserole is 11.6; the rest are all under 8.

Fruits and Juices: (*) All these are over 10. Fresh raspberries, fresh blueberries, lemon peel, orange peel, frozen blueberries, dried prunes, fresh mangos, mandarin oranges, fruit cocktail, fresh blackberries, canned or stewed figs, kiwi fruit, dried apricots, raw or dried figs, all rhubarb (fresh, uncooked, frozen, cooked).

Legumes: (*) All these are under 12. Refried pinto beans, plain canned Black-eyed peas, raw Black-eyed peas, boiled split peas with no salt, boiled lima beans without salt, boiled lentils (not dried) without salt, canned Chickpeas, canned Garbanzo beans.

Soy Products (*) All these are under 12. Imitation bacon bits, Soy sauce, Teriyaki sauce, Soy bacon, .

Meat and Poultry, (*) The highest on my list are chicken, beef or pork liver at 7.1 and other organ meats at 7.3.

Miscellaneous: (*) Over 10. Brown Sugar -11, Cream of Targer, active dry baker's Yeast, Balsamic Vinegar, Chocolage Syrup, Molasses-11.

Nuts and Seeds: (*) Raw Coconut meat is 2.1, dried/sweetened/flaked Coconut meat is 2.5Flax seed is 10.3. Al the others are over 11 to 3800.

Snacks: (*) Only Cereal bars and corn based Cheese puffs and twists are under 10.

Soups, Sauces and Gravies: (*) All these are over 15. ready to serve Tabasco sauce, Salsa, Worcestershire sauce, Split Pea soup, all flavors dry Ramen noodles.

Spices and Herbs: (*) These are under 15. Distilled Vinegar, Vanilla extract, raw Garlic, canned Cappers, raw cilantro or coriander.

Desserts and Candy: (*) These are under 15. oatmeal cookie, butter cookie, almond M&Ms, angel food cake, cherry pie filling, plain homemade white cake, chocolate shake made with hard ice cream, chocolate pudding, double crust homemade apple pie, cherry pie, molasses.

Vegetables: (*) These are all over 15. raw jalapenio peppers, fresh cooked green beans, fast food French fried, raw celery, raw carrots, homemade French fries, boiled peeled potato, canned regular or fat free refried beans, baked beans, cooked kidney beans, mashed dehydrated potatoes, cooked pinto beans, hashbrowns, cooked collard greeds, cooked greens kale/mustard/collards, canned sweet potatoes, fried potatoes, mustard greens, canned tomato paste with salt added, baked sweet potatoes, cooked okra, red and greed raw swiss chard, cooked/pickled/raw beets, raw spinach, red and green boiled swiss chard, cooked spinach, cooked greens spinach/chard/beet.

Compiled by Helen O'Connor, Appendix 1: Oxalate content of foods from 23 sources.

This does not address other foods not recommended for people with kidney disease, such as potassium and phosphates. I hope to find a dietitian or nutritionist that can help me combine my (now 7) limiting diet regimens. Hopefully Mayo Rochester, MN has someone.

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@2011panc

@carnes Thank you for responding to my post. I have a 15 page list of oxalates in foods. I will list a few types of foods and what the "best" choices are.

Grains/Pasta/Baked Goods: (*oxalate mg per 100g) All these are under 13. Hominy, cooked Wild Rice, cooked white, long-grain rice, plain French toast, plain pancakes, rolls/hamburger/hot dog bun, plain corn tortilla, cornbread, plain white English muffin, frozen waffle, homemade waffle, fresh rice noodles, cooked brown rice, enriched cooked pasta/spaghetti.

Beverages: (*) Only these are over 19. Latte, cappuccino, soy milk, mocha, hot chocolate.

Breakfast Cereals: (*) These are all under 10. Cornflakes, Frosted Flakes, Total, Special K, cooked Oatmeal.

Dairy and Eggs: (*) These are all over 10. Soy vanilla ice cream, chocolate ice cream, Soy milk, Soy ice cream, Vanilla Ensure..

Entrees and Side dishes: (*) These are all less than 11. roasted chicken thigh with skin, enchilada or taco sauce, commercial pre-breaded fish fillet, fried cod fish fillet, curried lamb, lean ground bee meatloaf, tuna salad with mayo, beef taco with cheese, homemade meatless chili, frozen lasagna, homemade lasagna with meat sauce, vegetarian Pad Thai, homemade chili with beef and beans, casserole with chicken and crème sauce, chicken Chow Mein, bean and cheese tostada, boxed macaroni and cheese, beef casserole with gravy, homemade macaroni and cheese, vegetable lasagna, tofu and broccoli stir fry,

Fast Foods: (*) These are less than 6. Bacon/Egg/Cheese Biscuit and plain regular double patty hamburger.

Fats and Oils: (*) Canola Oil is 13.1, soybean and cottonseed oil are 9.9. The rest are all under 4.

Fish and Seafood: (*) Tuna casserole is 11.6; the rest are all under 8.

Fruits and Juices: (*) All these are over 10. Fresh raspberries, fresh blueberries, lemon peel, orange peel, frozen blueberries, dried prunes, fresh mangos, mandarin oranges, fruit cocktail, fresh blackberries, canned or stewed figs, kiwi fruit, dried apricots, raw or dried figs, all rhubarb (fresh, uncooked, frozen, cooked).

Legumes: (*) All these are under 12. Refried pinto beans, plain canned Black-eyed peas, raw Black-eyed peas, boiled split peas with no salt, boiled lima beans without salt, boiled lentils (not dried) without salt, canned Chickpeas, canned Garbanzo beans.

Soy Products (*) All these are under 12. Imitation bacon bits, Soy sauce, Teriyaki sauce, Soy bacon, .

Meat and Poultry, (*) The highest on my list are chicken, beef or pork liver at 7.1 and other organ meats at 7.3.

Miscellaneous: (*) Over 10. Brown Sugar -11, Cream of Targer, active dry baker's Yeast, Balsamic Vinegar, Chocolage Syrup, Molasses-11.

Nuts and Seeds: (*) Raw Coconut meat is 2.1, dried/sweetened/flaked Coconut meat is 2.5Flax seed is 10.3. Al the others are over 11 to 3800.

Snacks: (*) Only Cereal bars and corn based Cheese puffs and twists are under 10.

Soups, Sauces and Gravies: (*) All these are over 15. ready to serve Tabasco sauce, Salsa, Worcestershire sauce, Split Pea soup, all flavors dry Ramen noodles.

Spices and Herbs: (*) These are under 15. Distilled Vinegar, Vanilla extract, raw Garlic, canned Cappers, raw cilantro or coriander.

Desserts and Candy: (*) These are under 15. oatmeal cookie, butter cookie, almond M&Ms, angel food cake, cherry pie filling, plain homemade white cake, chocolate shake made with hard ice cream, chocolate pudding, double crust homemade apple pie, cherry pie, molasses.

Vegetables: (*) These are all over 15. raw jalapenio peppers, fresh cooked green beans, fast food French fried, raw celery, raw carrots, homemade French fries, boiled peeled potato, canned regular or fat free refried beans, baked beans, cooked kidney beans, mashed dehydrated potatoes, cooked pinto beans, hashbrowns, cooked collard greeds, cooked greens kale/mustard/collards, canned sweet potatoes, fried potatoes, mustard greens, canned tomato paste with salt added, baked sweet potatoes, cooked okra, red and greed raw swiss chard, cooked/pickled/raw beets, raw spinach, red and green boiled swiss chard, cooked spinach, cooked greens spinach/chard/beet.

Compiled by Helen O'Connor, Appendix 1: Oxalate content of foods from 23 sources.

This does not address other foods not recommended for people with kidney disease, such as potassium and phosphates. I hope to find a dietitian or nutritionist that can help me combine my (now 7) limiting diet regimens. Hopefully Mayo Rochester, MN has someone.

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@2011panc Thank you so much for posting about oxalates. My care team and I are certain that kidney stones contributed to my blocked left kidney and CKD, along with other factors (such as strept, for instance.) Despite doing a lot of research on my own, this is the first comprehensive list on oxalates I've seen. Kudos to you for sharing.

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Feedback, please: I use no dairy whatsoever and have been cooking with almond milk, low in potassium and phosphorus. However, some sources say it isn't that high in oxalates and other sources say it is. Who do I believe?

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Reviewing my nephrologist's comments, I found he had stated that oxalates were not a concern for me since I have no history of kidney stones. BUT, several years ago, I had to have a laser treatment to rid my kidney of a lodged kidney stone. Doesn't that count? Also had stones removed from my submandibular, although not sure they're the same kind of stone. Now for sure I've got questions!!!!

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@kamama94

Feedback, please: I use no dairy whatsoever and have been cooking with almond milk, low in potassium and phosphorus. However, some sources say it isn't that high in oxalates and other sources say it is. Who do I believe?

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@kamama94 I would use the latest published reference from the most reliable source. For example, if one source is a drug company and another is a research facility — I would choose the research facility. I am hesitant to rely on sites like WebMD or AsktheDoc because they are funded by (usually) by drug companies.

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@2011panc Thank you, very good suggestion. My docs know I use almond milk and didn't seem concerned about kidney stones since latest CT scan didn't show any. But I don't want just not to have them right now, I want not to have them ever. Sometimes all my medical issues make me feel like a time bomb and it's nice to connect with someone like you for support and feedback.

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@rosemarya

@carnes
I found a "Diabetes meal plan recipes" in Mayo's Patient Care and Health Information Section. You can find a list of some Healthy Recipes that might give you some ideas. I hope you will find something that will satisfy your tastes as well as your dietary needs.
https://www.mayoclinic.org/healthy-lifestyle/recipes/diabetes-meal-plan-recipes/rcs-20077150
I am not on a diabetic diet. However, I am always interested in something to perk up my meals. So, I want to ask you to share a new recipe that you discover. OK?

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Basmati rice with chicken—- lots of real garlic sliced thin, maybe 5 cloves, lots of onion 2 C. Chopped. 1/2 C water put in oven 350 until done. Depending on what part of the chicken your cooking. I used the hind parts. No sodium maybe I tiny bit of pepper. By the way no skin, forme any way. And 1 C. Asparagus tips and 1 C salad with Newman’s own oil and vinegar. This is my dinner. I can’t have sugar, flour, or anything with potassium or sodium. So I make do. Thank you for answering my reply. Sharon

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