3 yrs 8 months still unable to work

Posted by bellableu125 @bellableu125, Jun 17 3:10pm

RN here still on medical leave, almost 4 years later. Losing hope. Anyone out there experience improvements this far into Long Haul? I have one doc who thinks I should “call it” and another who thinks I can still improve. I love being a nurse and want nothing more than to get back to work. My ongoing symptoms are severe headaches, brain fog, PEM, POTS, memory/confusion/processing issues, anxiety/ depression, constipation, tremors, numbness feet/hands

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

I contracted covid October 2021. I was told I didnt contract it from work with Covid patients. I worked every day scheduled during everything being shutdown, even extra shifts to man the Covid unit. Everything went downhill quickly. My last shift January 2022, I didn't renew my license in 2023, my CRNMS certification. No way to study or read. Just recently again denied SSD, going to try appealing
this time. My 401k is running out. Sorry for the dump, but no, I feel the PCS is continuing to worsen. Fatigue, brain fog, neuropathy and anxiety/depression increasingly getting worse. I have hope, my age is only 57, feel like 77. Good thoughts and prayers to you and all of us.

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Profile picture for karen8 @karen8

Bellableu… I cannot believe a doctor told you that this would be it as not getting any better! I really do have to wonder sometimes about people! we have to keep hope. Yes people with LC as well as others who are struggling with chronic illness will get better if even just the little things, these are big steps. Even when those big steps seem to fall away you just hold onto hope…. Much easier said than done I realize this . I bet you ARE a wonderful RN with a very kind heart and even if you not able to practice as you would like right now ,being there for others on a site like this means more than you would know wishing you a better day! Anytime you would like to discuss your symptoms I would be glad to discuss with you regarding my fiancé’s many symptoms of which are severe.

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Hi @ karen8. That poem is an amazing gift to all as Im laughing at myself unable to type words this morning 🙃 Many tx!🌈

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So glad if it came through - as in you were able to read it ! Yes - it’s like a “warm comforting hug with absolutely no judgement!”
Wishing you a good day 🙂

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Profile picture for sherryoct11 @sherryoct11

I contracted covid October 2021. I was told I didnt contract it from work with Covid patients. I worked every day scheduled during everything being shutdown, even extra shifts to man the Covid unit. Everything went downhill quickly. My last shift January 2022, I didn't renew my license in 2023, my CRNMS certification. No way to study or read. Just recently again denied SSD, going to try appealing
this time. My 401k is running out. Sorry for the dump, but no, I feel the PCS is continuing to worsen. Fatigue, brain fog, neuropathy and anxiety/depression increasingly getting worse. I have hope, my age is only 57, feel like 77. Good thoughts and prayers to you and all of us.

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I am so very sorry to hear of your long covid struggles. Ugh!!! Heart wrenching. This has hit so many of us and leave us near financial ruin. Have you been seeing doctors ever since exposure? I would think and hope that would be helpful being accepted by SSD. Yes, appeal that denial. A doctor I was following on TikTok (also on YouTube), Dr. Wes Ely, from Vanderbilt University, was such an incredible source of support and information relative to published Long Haul Covid (clinical trials, new case studies, and government awareness). He was part of the National Academies Committee to provide Social Security (and the rest of the world) with a proper medical definition so those suffering with LC would be eligible for SSD. National Academies is a Committee of Medical Professionals, Scientists, Engineers founded by Federal Government to provide objective (quantitative) information, facts, policy, etc. Please look it up. Despite it being 138 pages, the first 28 are such an eye opener and so validating. Easy read with simple charts showing what we are suffering from. Nurses inflicted with this disease were also part of this, now official, definition of Long Haul Covid, which happens to also be part of the American Disability Act.

Type in your browser, "National Academies Definition for Long Haul Covid". You can enter the document as a guest, rather than paying for it.

I truly wish you, and all suffering from this insidious disease, complete healing and renewed life full of comfort, joy and happiness. Many Blessings to you

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Profile picture for sherryoct11 @sherryoct11

I contracted covid October 2021. I was told I didnt contract it from work with Covid patients. I worked every day scheduled during everything being shutdown, even extra shifts to man the Covid unit. Everything went downhill quickly. My last shift January 2022, I didn't renew my license in 2023, my CRNMS certification. No way to study or read. Just recently again denied SSD, going to try appealing
this time. My 401k is running out. Sorry for the dump, but no, I feel the PCS is continuing to worsen. Fatigue, brain fog, neuropathy and anxiety/depression increasingly getting worse. I have hope, my age is only 57, feel like 77. Good thoughts and prayers to you and all of us.

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Sherry, this is so heartbreaking to hear. I hope you have a good disability lawyer who can help you fight the denial of your claim.

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Profile picture for bellableu125 @bellableu125

I am so very sorry to hear of your long covid struggles. Ugh!!! Heart wrenching. This has hit so many of us and leave us near financial ruin. Have you been seeing doctors ever since exposure? I would think and hope that would be helpful being accepted by SSD. Yes, appeal that denial. A doctor I was following on TikTok (also on YouTube), Dr. Wes Ely, from Vanderbilt University, was such an incredible source of support and information relative to published Long Haul Covid (clinical trials, new case studies, and government awareness). He was part of the National Academies Committee to provide Social Security (and the rest of the world) with a proper medical definition so those suffering with LC would be eligible for SSD. National Academies is a Committee of Medical Professionals, Scientists, Engineers founded by Federal Government to provide objective (quantitative) information, facts, policy, etc. Please look it up. Despite it being 138 pages, the first 28 are such an eye opener and so validating. Easy read with simple charts showing what we are suffering from. Nurses inflicted with this disease were also part of this, now official, definition of Long Haul Covid, which happens to also be part of the American Disability Act.

Type in your browser, "National Academies Definition for Long Haul Covid". You can enter the document as a guest, rather than paying for it.

I truly wish you, and all suffering from this insidious disease, complete healing and renewed life full of comfort, joy and happiness. Many Blessings to you

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My lawyer told me Post Covid is not enough for granting disability

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