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3 yrs 8 months still unable to work

Posted by bellableu125 @bellableu125, 1 day ago

RN here still on medical leave, almost 4 years later. Losing hope. Anyone out there experience improvements this far into Long Haul? I have one doc who thinks I should “call it” and another who thinks I can still improve. I love being a nurse and want nothing more than to get back to work. My ongoing symptoms are severe headaches, brain fog, PEM, POTS, memory/confusion/processing issues, anxiety/ depression, constipation, tremors, numbness feet/hands

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bigj | @bigj | 4 hours ago

Hi
I have had some of the same symptoms that you do, Plus a lot more they are going away
HOW ?
What has HELP me drinking lots of water
MOVING from barely walking to working out over the years I keep moving as much as I can every day

REPLY
Athena Atkins | @athenaatkins | 3 hours ago
In reply to @bellableu125 "Thank you for sharing your experience. I take Nurtec for Headaches, Plaquenil for arthritis, Trazadone occasionally..." + (show)
@bellableu125

Thank you for sharing your experience. I take Nurtec for Headaches, Plaquenil for arthritis, Trazadone occasionally for sleep disturbance (I do not like taking), Vit D3 K2, B Complex, EPA/DHA for help with cognitive issues. Recently began SSRI to help with neuro improvement. There have been quite a lot of studies relative to Serotonin helping. Not a fan of taking it as it comes with side effects that I am not enjoying, to say the least. I have heard/read about positive results with NAC. I need to look into that again. May I ask how long you've been out of work? I'm coming up on 4 years. Doing my absolute best to remain positive. Thank you again for sharing your experience. Blessings to you.

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I got Covid for the very first time in January 2024, and immediately after the acute phase I started to develop symptoms consistent with Long Covid (PEM and dysautonomia/chest pain). I attempted to go back to work, but I couldn’t tolerate more than a handful of hours a week even after deciding to work exclusively work from home. I stopped working completely by mid-April. I tried to go back to work in mid-July after my short term disability ran out, but I immediately crashed really bad, got diagnosed with early systemic Lyme disease, and basically went from a moderate ME/CFS level of impairment to much more severe levels of impairment. I have been mostly housebound since then, though I do feel like I have had about a 15-20% increase in function over the past two months which I think is related to addressing some longstanding GI issues that I have had for 8 years.

So overall I have been either totally out of work or unable to work full time for 17 months.

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