2025 NTM and Bronchiectasis Patient Family Conference You Tube.

Thanks for letting us know this is available. This is the address for Dr. Honda's talk: https://www.youtube.com/watch
Barbara

Unless I missed it .......Dr. Honda did not talk about disinfecting by boiling water to a high temperature. Do you recall if she did.?
For myself I wash the Neb cup and mouth piece in unscented detergent and then disinfect in high temperature boiling water for five minutes. The boiling water is cold tap water boiled for ten minutes before I place the items in the glass pot. Yes, glass pot...found it at a garage sale. Love it. Mom, many years ago had a glass coffee percolator. The good old days with well made products that last more than '10 seconds," so to speak.
I also soak it in the vinegar and water combination due to hoping it will clear any salt or calcium build up in the cup etc. I dry all on paper towels above and below the pieces. That's my method with fingers crossed with that method and staying out of 'harms way' in other aspects that we try to be careful with.
Barbara

I don't remember, I should listen to that part again. Your method should kill NTM. 1/week, I boil pieces in distilled water for 10 minutes, but daily I soak in Dawn, rinse and microwave in a micro-steam bag. The biggest take away for me, was that for MAC washing and disinfecting-use anti-microbial dawn and soak for 30 minutes. Kills MAC (or at least significantly reduces it.). 5% Vinegar and 70% ethanol both were good for MAB and MAC. I also let dry on paper towels and cover with paper towels.

I think I will add a 5% white vinegar soak 1/week. That will keep everything scale free and disinfect at the same time. I like the glass pot! I just ordered silicon matts (got that idea from Sue) to put in pan before boiling. I need a better pan and colander. Also, in the future, I will be buying anti-microbial Dawn.

The only Dawn Antibacterial Dishwashing Soap that I have seen so far has a orange scent in it. I am not a fan of scenting etc. National Jewish Hospital/Clinic recommends 7th Generation dishwashing soap. There is another one that Wal Mart usually has called Unscented.
I am going to use unscented dishwashing soap and put a small amount of bleach in the soapy water for cleaning and go from there. What do you think????
Barbara

I did see online a green antimicrobial Dawn. It has an apple flower scent.
I thought I saw a blue one once? Maybe unscented? Or maybe it was another brand, I will look this weekend and message you if I find anything.

My opinion: Since I have BE and diagnosed with MABC, I know I am also prone to MAC and since the regular Dawn did not kill either, I am definitely switching to the anti-microbial Dawn and soaking for 30 minutes. at least, I know I killed the MAC or most of it. I also put nebulizer cup, cap, and mouth piece in microwave in the Medela micro-steam bags, and zap for 3.minutes. I have a high-powered microwave. It's 5 minutes for 700 W. The only problem is the Aerobika flutter section might not be able to go in the microwave. Bleach did not kill the NTMs, so I won't use bleach. If you're not using an Aerobika, you might get the micro-steam bags? I'm getting a new Aerobika this week (I zapped the last one too long in micro), so I may be back to boiling for disinfection. I'm also going to try the 70% ethanol(etOH) and 5% white vinegar per Dr Honda's instructions. The problem with using vinegar and ethanol, is the pieces will need to be rinsed in sterilized water-at least the vinegar. The 70% etOH, may just evaporate when drying, so it may not need rinsing. I will try that and get back to you. The soak time was 30 minutes on those too. So, Sorry!!! I'm still in the experimental phase and probably not helping:(. Kasthy

PS: Rinsing is now my biggest dilemma. I'm not concerned now, since I'm just using the neb cup etc without flutter section and microwaving. I'm just trying to avoid boiling daily.

I have an extra, really extra large, large glass container that I empty the boiled water into.
The other thing I do, because of all the humidity and moisture boiling water can cause I have a hot plate that I keep in the laundry room with the door open to the garage while I put the pot of water on the hot plate to boil. The door opens to the garage helps release the steam/moisture from being so bad in the laundry room. Boiling daily is pretty much required for me with boiling my tap water for drinking water and disinfecting our BE mucus clearing devices.
Barbara

I normally do not taste or smell the vinegar without rinsing it off of the nebulizing pieces.
Did you mean using them together? "I'm also going to try the 70% ethanol(etOH) and 5% white vinegar per Dr Honda's instructions."
Barbara

No, I meant I would try both the 5% white vinegar and 70% etOH separately. Oh, so you don't rinse the vinegar off. That's an idea. I do have a UF filter and I use a 1/4 cup of that in my micro-steam bags-but as I mentioned, I won't be using the micro steam bag with my Aerobika. I could rinse with the UF filtered water, but I'm not sure if I trust the filter. I did think about getting the water tested for NTM but it was too expensive. Ironically, I will learn if the filter is working by the end of the filter life (about 9 months-1 year)-when the water flow is eventually reduced to a trickle.

The end goal is to make this as easy as possible. I would like to avoid boiling. Do you have an exhaust fan in your laundry room?

Per the patient conference above, Dr. Honda's lab tested for NTM in about 5 different models of baby bottle sterilizers and they all passed the testing, meaning none was detected after the steaming/drying cycle. If you are someone looking to decrease hands on sterilizing time, a baby bottle sterilizer might help recoup some of your time.