Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@cb772

@lioness & @sunnyflower , I feel the same as both of you. The only reason I haven't decided to end my life is I desperately want to go to heaven & I'm not sure I would if I did that.

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I told my doctor exactly what you said. She asked me if I ever thought of ending my life. I said yes, all the time only I want to go to Heaven and I believe in the Ten Commandments. I think about it daily. We had our dog who was in horrible agony put down this week. She suffered for such a long time I am sorry we made her go so long. We are grieving but I think--all the pain is over in less than a minute. Then I think of some movies I have seen about people who have died for a few minutes and then came back. I have seen more than one where people tried suicide and ended up in Hell. They came back but changed their lives and would never try it again. If I said too much, I am sorry. This is a great group.

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@faithwalker007

Read this and give it to your providers if they ever try to cut your doses. Get your senators involved. I had to get Senator Barrasso involved in my case.
https://www.cdc.gov/media/releases/2019/s0424-advises-misapplication-guideline-prescribing-opioids.html

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@faithwalker007 This is very helpful. Thanks you for sharing

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@cb772

@lioness & @sunnyflower , I feel the same as both of you. The only reason I haven't decided to end my life is I desperately want to go to heaven & I'm not sure I would if I did that.

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@sunnyflower @cb772 @lioness if I could find a Pain-free guaranteed way to
End my life I would because of all pain and diseases. The risk is becoming a vegetable or other horrid things. I believe a merciful God would be sympathetic. A friend of mine who really delves into the Bible said as long as you say a sincere Act of Contrition before hand a God will accept you. I am not in imminent risk of suicide it is just too much to bear. My 3rd day in bed.

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@jesfactsmon

I think the problem is not the addicts/abusers, the problem is the faulty reasoning which makes certain busybody people think it's their job to force everyone else in the world conform to their personal opinions about life. They try to control what is not appropriate for them to control. People should just butt out of other people's lives and let them make their own decisions about things that affect them alone, and let them deal with their own consequences, i.e. "Live and let live". It might sound simplistic but I do think the world could be a much better place generally if people could just understand this. Hank

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@jesfactsmon eloquent words as always, Hank

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@bustrbrwn22

@sunnyflower @cb772 @lioness if I could find a Pain-free guaranteed way to
End my life I would because of all pain and diseases. The risk is becoming a vegetable or other horrid things. I believe a merciful God would be sympathetic. A friend of mine who really delves into the Bible said as long as you say a sincere Act of Contrition before hand a God will accept you. I am not in imminent risk of suicide it is just too much to bear. My 3rd day in bed.

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Again, that’s why I’m fighting So hard. I believe legislation here will have not have a ripple effect but a tidal wave.

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@woogie

I told my doctor exactly what you said. She asked me if I ever thought of ending my life. I said yes, all the time only I want to go to Heaven and I believe in the Ten Commandments. I think about it daily. We had our dog who was in horrible agony put down this week. She suffered for such a long time I am sorry we made her go so long. We are grieving but I think--all the pain is over in less than a minute. Then I think of some movies I have seen about people who have died for a few minutes and then came back. I have seen more than one where people tried suicide and ended up in Hell. They came back but changed their lives and would never try it again. If I said too much, I am sorry. This is a great group.

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I understand and your feelings drive me harder.

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@faithwalker007

I agree. We do have a small glimmer of hope of the horizon however in the New Hampshire Bill passed called HB-1639-FN. This Bill protects chronic pain care patients and their doctors from the CDC guidelines as well as much more.

I’m in contact and negotiating similar legislation for the state of Wyoming as we speak to protect those with chronic pain here with the backing of the Wyoming Independent Living WYDPAC Committee, WY Council of the Blind, and many more. I’ve already got almost 50 signatures in the petition and it’s only been circulating on Facebook for 4 - 5 days?

I don’t have the money to promote the thing so I’m doing so the sharing and promotion on my own which as you can imagine is not much with my pain level.

Why would Wyoming make a difference? Because most of our state go to out of state providers who are licensed by the State in order to get paid by Medicaid.

Which states am I talking about? South Dakota, North Dakota, Nebraska, Colorado, Utah, Idaho, and Montana.

Wyoming knows how and when to make an impression. We’re sincere, honest and know how things are nil C

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@faithwalker007 Please push for Wisconsin too?

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Tw/cw (trigger warning/content warning): Suicide
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tw/cw are abbreviations that I learned from mentor @ayeshasharma. They stand for trigger warning and content warning to alert people that the following message includes content that could be triggering for some people. I thought that I would introduce this here as some of the recent posts are talking about pain and how it can lead one to consider the act of taking their own life.

I like that Connect is a safe place where members can talk openly about the value of living and what they live for as well as the very difficult and real challenges of disease, pain and deteriorating quality of life. This frank discussion thread, started by JimHD, is a great example of the honesty and vulnerability that members are willing to share for themselves and for others:
- I survived suicide attempts https://connect.mayoclinic.org/discussion/i-survived-suicide-attempts/

In addition to talking here, I would also like to remind people about the 988 Suicide & Crisis Lifeline.
The Lifeline provides 24/7, free and confidential support for people in distress, prevention and crisis resources for you or your loved ones, in the United States.

- Call or text 988
- Chat with a counsellor at https://988lifeline.org/chat/
Chat is available 24/7 across the U.S. You don't need your phone. You can chat on your computer.

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It's been a long time since posting to this group. I just started following a few of the emails on Opioids restrictions and reading the members thoughts on suicide living with this horrid, okay extremely tough, condition, no matter the individual particular condition. Pain is pain, and we shouldn't have to live with it, if there are alternatives. A few years ago I'd be hard pressed to respond as I was mostly bed bound with the tiniest of exertion causing extreme burning pain throughout my entire body. What the maximum dosages of Lyrica, Cymbalta and high dosages of Amitriptyline and Topiramate, and the $8000 in Supplements I purchase from my Functional Diagnostic Nutrition doctor has done is give me breadth in the amount of exertion it takes to set off that cascading pain from hell, though from no fault of my own, some weeks it just comes. I have a blanket behind my chair, here, with a pillow, which is where I spend many of my entire days, in pain and in and out of sleep.

I am on Buprenorphine now, after the pain management folks got a win notched in their belt taking me off of the Fentanyl Patch. I mentioned thoughts of suicide, big mistake, and that's all it took. Who wouldn't have those thoughts when in that amount of pain? I was asking for more, a higher dose, which I know from going there at times, not to get high, and nothing dangerous, but I could live, have a life, with far fewer negative symptoms compared to being in a fetal position because every nerve cell in my body is exploding in burning pain.

So, now I'm at the same place with the Buprenorphine. I know a slightly higher dose has a very positive effect on my situation, with little effects on my mental state. I hate feeling high, and not feeling in control. When I tell the doctor, or Nurse really, the drug is going to the pain, I mean it. But, I'm told, no, you're at the highest dosage that according to the medical literature has the most benefit against side effects. But, I just explained to you that it does and I didn't have side effects - on the contrary? Instead, lets see if your Disability Medicare will pay for a drug pump to be surgically implanted, with a cocktail that the local doctor comes up with, so we can have full control of your pain, and later scratch your heads and say then, well there's nothing more we can do for

However, I will say to those who find themselves in excruciating pain right now, that it will no doubt get better over time. I know that's little consequence when you're in the middle of that pain, but even that pain will subside some. The fact you reached out to this group is already a huge step. I know it's hard relying on others to fight for us, but you have to have faith your situation will get better, because most likely it will. If you're able I do recommend a good FDN Doctor, usually outside of insurance, though mine started taking insurance, just not mine. I put much of my recovery with her.

For those fighting for us, thanks! I see some URLs here, but if there are better ones, I have control of a Fibromyalgia WEB site, that it's time it's taking up the cause.

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@faithwalker007

It’s actually on change.org.
https://www.change.org/NewOpioidLeg2020
I appreciate any and all support we can get!

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@faithwalker and to all my Pain Warriors!!!!! I have just posted the petition from change.org to my facebook page. I will try to make people aware!!!! Renee, you are a soldier!!!!!! Your spirit amazes me!!!! Lori Renee

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