Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for sunnyflower @sunnyflower

Hi Renee, my understanding about Tramadol was that it is an opiate product with an epinephrine product added to it thinking that would prevent the opiate euphoria. I remember always clenching my teeth and having insomnia when I took it and it really wasn't strong enough for my type of pain. I don't know if my understanding is correct but I never liked the drug anyway. Take care and again thanks for your good information! Many blessings, and warmest wishes, Sunny flower

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I was given Tramadol once years ago when I tripped over the dog, went airborne, and cracked a rib. So I took the Tramadol and was underwhelmed. Later I read that it could cause seizures so I tossed it out (opened the bottle and scattered the pills among the garbage).

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Profile picture for wheelerma @wheelerma

How do I read all the notices I get? They seem to be the same. Thank you.

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Hi @wheelerma, the email notifications can be overwhelming. You can choose instead to receive a daily digest, which is just one email a day with a summary of the activity in the group you follow.

Here's how:
1. Go to your profile by clicking on your username.
2. Select a group from the groups you follow.
3. Click + FOLLOWING (bottom right corner of the group description)
4. Select "Include messages in my email digest only" from the drop-down menu.
5. Click Update and then Close this popup.
6. Repeat for each group.

See more tips of setting your notification preferences here: https://connect.mayoclinic.org/get-started-on-connect/

If you have further questions about how to use the site, send me a message using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

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Profile picture for lioness @lioness

@faithwalker007 You are right For those that don't have an addictive personality that can change anytime with increased pain .That's what I'm having today and my Tramadol isn't even taking the edge of .

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I’m so sorry. Usually if you are taking meds for a purpose, dependence is the last thing your body and mind develop. Your body—pain receptors—are fulfilling the purpose for which they were designed—survival.
If you take opioids and you are not in pain or at doses which are not required to control the pain, your pain receptors are not being used to fight the pain at hand. They are being flooded with unused drug.
What happens when this occurs? Euphoria. Relaxation. Peace.
These side effects don’t appear “bad” to those seeking pain relief. But when coupled with tremors, fatigue, constipation, gum inflammation, and dependence.
However, when treating severe pain with opioids, euphoria should not occur. That is your dosage gauge. If it occurs, lower the dose. Increase the dosage if the pain is greater than an 7 or 8/10 all day, watch for euphoria though and do not increase too much.
Euphoria will send you down the road toward dependence faster than any other side effect of the class.

They should be used only as a last resort and then only with caution, at the lowest possible dosage, and absolutely as directed under strict guidance and control of a pain specialist.

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Profile picture for ellens @ellens

I was given Tramadol once years ago when I tripped over the dog, went airborne, and cracked a rib. So I took the Tramadol and was underwhelmed. Later I read that it could cause seizures so I tossed it out (opened the bottle and scattered the pills among the garbage).

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Tramadol is not a high potent pain reliever so I can see that happening.

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Profile picture for Faithwalker007 (Renee) @faithwalker007

I’m so sorry. Usually if you are taking meds for a purpose, dependence is the last thing your body and mind develop. Your body—pain receptors—are fulfilling the purpose for which they were designed—survival.
If you take opioids and you are not in pain or at doses which are not required to control the pain, your pain receptors are not being used to fight the pain at hand. They are being flooded with unused drug.
What happens when this occurs? Euphoria. Relaxation. Peace.
These side effects don’t appear “bad” to those seeking pain relief. But when coupled with tremors, fatigue, constipation, gum inflammation, and dependence.
However, when treating severe pain with opioids, euphoria should not occur. That is your dosage gauge. If it occurs, lower the dose. Increase the dosage if the pain is greater than an 7 or 8/10 all day, watch for euphoria though and do not increase too much.
Euphoria will send you down the road toward dependence faster than any other side effect of the class.

They should be used only as a last resort and then only with caution, at the lowest possible dosage, and absolutely as directed under strict guidance and control of a pain specialist.

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My thoughts when it out of the box treatment that cost $68 after my insurance, I think these large medical groups are getting a peace. He never told me it came from pharmacy that is not mine which bring a red flag. My pain doctor said he has never hear of this kind of treatment cream and not to wast my money.
He then gave me a great injection and has calmed my back down.
Thanks for your thoughts.

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Profile picture for Faithwalker007 (Renee) @faithwalker007

I’m so sorry. Usually if you are taking meds for a purpose, dependence is the last thing your body and mind develop. Your body—pain receptors—are fulfilling the purpose for which they were designed—survival.
If you take opioids and you are not in pain or at doses which are not required to control the pain, your pain receptors are not being used to fight the pain at hand. They are being flooded with unused drug.
What happens when this occurs? Euphoria. Relaxation. Peace.
These side effects don’t appear “bad” to those seeking pain relief. But when coupled with tremors, fatigue, constipation, gum inflammation, and dependence.
However, when treating severe pain with opioids, euphoria should not occur. That is your dosage gauge. If it occurs, lower the dose. Increase the dosage if the pain is greater than an 7 or 8/10 all day, watch for euphoria though and do not increase too much.
Euphoria will send you down the road toward dependence faster than any other side effect of the class.

They should be used only as a last resort and then only with caution, at the lowest possible dosage, and absolutely as directed under strict guidance and control of a pain specialist.

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@faithwalker007 Yes your right I certainly don't fit in the addict catagory but they are the ones that destroy it for the people like us who are in real pain

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Profile picture for lioness @lioness

@faithwalker007 Yes your right I certainly don't fit in the addict catagory but they are the ones that destroy it for the people like us who are in real pain

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And pill pushing doctors either too lazy or too arrogant to do their job. One pill doesn’t fit all.

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Profile picture for Hank @jesfactsmon

@jimhd
Jim, after reading your post and your doctor's statement that "CIDP is an umbrella label for neuropathies" I wondered whether that was true. So I did some web research about it.

From what I read I think your doctor has it backwards, i.e. neuropathy is an umbrella term that includes CIDP as one type, not the other way around.

From what I am reading, CIDP is auto immune, attacks the myelin sheath, similar to multiple sclerosis, with CIDP attacking peripheral nerves instead of the brain & spinal cord as in MS. Other types of neuropathy beside CIDP are the result of nerve damage from other causes (unrelated to immune attacks on the myelin sheath). So CIDP is just a particular type of neuropathy, and not the other way around.

I'm glad I read about it, as I now understand it little better myself. Best, Hank

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@jesfactsmon

Thank you for checking on that. Maybe I heard the doctor wrong. But he did confirm the CIDP diagnosis. He had mentioned the demyelinating a few years ago, but never really addressed it specifically. My youngest sister has MS, as well as pn. Interesting that there's a connection. Obviously I need to read up on it.

Jim

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Profile picture for Faithwalker007 (Renee) @faithwalker007

And pill pushing doctors either too lazy or too arrogant to do their job. One pill doesn’t fit all.

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@faithwalker007 Yes so true I do a lot of vit., homeopathics and herbs

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Profile picture for Faithwalker007 (Renee) @faithwalker007

I’m so sorry. Usually if you are taking meds for a purpose, dependence is the last thing your body and mind develop. Your body—pain receptors—are fulfilling the purpose for which they were designed—survival.
If you take opioids and you are not in pain or at doses which are not required to control the pain, your pain receptors are not being used to fight the pain at hand. They are being flooded with unused drug.
What happens when this occurs? Euphoria. Relaxation. Peace.
These side effects don’t appear “bad” to those seeking pain relief. But when coupled with tremors, fatigue, constipation, gum inflammation, and dependence.
However, when treating severe pain with opioids, euphoria should not occur. That is your dosage gauge. If it occurs, lower the dose. Increase the dosage if the pain is greater than an 7 or 8/10 all day, watch for euphoria though and do not increase too much.
Euphoria will send you down the road toward dependence faster than any other side effect of the class.

They should be used only as a last resort and then only with caution, at the lowest possible dosage, and absolutely as directed under strict guidance and control of a pain specialist.

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@faithwalker007

Don't I wish! A little euphoria would be welcome once in a while. I can't remember ever having that happen to me, with a possible exception of getting a big dose of dilaudid in the ER a couple of times.

We adopted our son as a newborn, and knew that his birth family had real addiction problems. As he got older, we could see that he developed habits, both good and bad, very quickly. When he was old enough to understand, we had a conversation about the addictive personality issue, and talked about how important it was that he never develop a behavior, such as drinking alcohol and smoking, that would easily become a life controlling habit. He really took it to heart. Unfortunately, he didn't apply it to drinking too much Mountain Dew.

The addictive personality has been evident in my 2 brothers, with significant drug and alcohol abuse for many years. One was able to break free of it after around 10 years, but the other one came very close to dying, with almost no liver function, homeless, separated from his family, many years behind on paying any taxes, nothing left to call his own. It took at least 5 years for him to achieve sobriety once he got started, and I think it's been 10 years or so since he reached that point. He's hypervigilant about his diet now. During the years that he was trying to get clean, our father died, and he moved in with Mom, with a strict zero tolerance policy for having any alcohol in her home. He fell now and then, but didn't give up. My sister had access to his finances because he was too far gone to deal with them, so if he didn't show up at home, she could track his debit card transactions, and knew that he was on another binge. He got clean and sober with my sister's and mother's help, before Mom died, and the trust my parents wrote up allowed him to live in the condo (which was paid for) as long as he needed it.

I'm proud of the hard work he did. 25 years ago, we went to see him at the VA hospital in Santa Rosa, and he didn't know us. Doctors told us that he would be lucky to live another year. Somehow he managed to survive long enough to reach the point when he was ready to turn his life around. So, there's hope for those who have an addictive personality.

Sorry. I never know when to stop. I think it's time now.

Jim

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