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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

ellens | @ellens | Oct 16, 2020
In reply to @lioness "@faithwalker007 Yes your right I certainly don't fit in the addict catagory but they are the..." + (show)
@lioness

@faithwalker007 Yes your right I certainly don't fit in the addict catagory but they are the ones that destroy it for the people like us who are in real pain

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I admit that I resent the addicts who have made it difficult for people with pain to get drugs that could help with pain.

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2 replies
sunnyflower | @sunnyflower | Oct 16, 2020
In reply to @ellens "I admit that I resent the addicts who have made it difficult for people with pain..." + (show)
@ellens

I admit that I resent the addicts who have made it difficult for people with pain to get drugs that could help with pain.

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Hello ellens, @lioness, @faithwalker007, yes, the non-legit substance abusers and their tragic overdoses have caused a great deal of opiophobia in the medical community and also tragically, because of this there is some substandard care going on. If only people understood that patients with legitimate pain do not get high from opiates nor does it really take away our pain rather helps us not to jump or pull the trigger. I have been the victim of stigma on more than one occasion and it has made me feel so awful and has changed my entire life because of it. The judgments and opinions are everywhere. It will take a lot of Education to help people understand but I don't see that happening in the media anytime soon rather only, the opposite is what I see all the time. Never do I see opiates indoors for legitimate pain in the media or talk shows Etc.

Warmest regards to all of you and prayers for relief! Sunny flower 🙏🌹😊

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3 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 17, 2020
In reply to @sunnyflower "Hello ellens, @lioness, @faithwalker007, yes, the non-legit substance abusers and their tragic overdoses have caused a..." + (show)
@sunnyflower

Hello ellens, @lioness, @faithwalker007, yes, the non-legit substance abusers and their tragic overdoses have caused a great deal of opiophobia in the medical community and also tragically, because of this there is some substandard care going on. If only people understood that patients with legitimate pain do not get high from opiates nor does it really take away our pain rather helps us not to jump or pull the trigger. I have been the victim of stigma on more than one occasion and it has made me feel so awful and has changed my entire life because of it. The judgments and opinions are everywhere. It will take a lot of Education to help people understand but I don't see that happening in the media anytime soon rather only, the opposite is what I see all the time. Never do I see opiates indoors for legitimate pain in the media or talk shows Etc.

Warmest regards to all of you and prayers for relief! Sunny flower 🙏🌹😊

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I agree. We do have a small glimmer of hope of the horizon however in the New Hampshire Bill passed called HB-1639-FN. This Bill protects chronic pain care patients and their doctors from the CDC guidelines as well as much more.

I’m in contact and negotiating similar legislation for the state of Wyoming as we speak to protect those with chronic pain here with the backing of the Wyoming Independent Living WYDPAC Committee, WY Council of the Blind, and many more. I’ve already got almost 50 signatures in the petition and it’s only been circulating on Facebook for 4 - 5 days?

I don’t have the money to promote the thing so I’m doing so the sharing and promotion on my own which as you can imagine is not much with my pain level.

Why would Wyoming make a difference? Because most of our state go to out of state providers who are licensed by the State in order to get paid by Medicaid.

Which states am I talking about? South Dakota, North Dakota, Nebraska, Colorado, Utah, Idaho, and Montana.

Wyoming knows how and when to make an impression. We’re sincere, honest and know how things are nil C

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4 replies
Hank | @jesfactsmon | Oct 17, 2020
In reply to @faithwalker007 "I agree. We do have a small glimmer of hope of the horizon however in the..." + (show)
@faithwalker007

I agree. We do have a small glimmer of hope of the horizon however in the New Hampshire Bill passed called HB-1639-FN. This Bill protects chronic pain care patients and their doctors from the CDC guidelines as well as much more.

I’m in contact and negotiating similar legislation for the state of Wyoming as we speak to protect those with chronic pain here with the backing of the Wyoming Independent Living WYDPAC Committee, WY Council of the Blind, and many more. I’ve already got almost 50 signatures in the petition and it’s only been circulating on Facebook for 4 - 5 days?

I don’t have the money to promote the thing so I’m doing so the sharing and promotion on my own which as you can imagine is not much with my pain level.

Why would Wyoming make a difference? Because most of our state go to out of state providers who are licensed by the State in order to get paid by Medicaid.

Which states am I talking about? South Dakota, North Dakota, Nebraska, Colorado, Utah, Idaho, and Montana.

Wyoming knows how and when to make an impression. We’re sincere, honest and know how things are nil C

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@faithwalker007
Renee, how do I find the facebook petition? We will sign. Well, only one of us is on FB. So one will sign. Hank

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1 reply
Hank | @jesfactsmon | Oct 17, 2020
In reply to @ellens "I admit that I resent the addicts who have made it difficult for people with pain..." + (show)
@ellens

I admit that I resent the addicts who have made it difficult for people with pain to get drugs that could help with pain.

Jump to this post

I think the problem is not the addicts/abusers, the problem is the faulty reasoning which makes certain busybody people think it's their job to force everyone else in the world conform to their personal opinions about life. They try to control what is not appropriate for them to control. People should just butt out of other people's lives and let them make their own decisions about things that affect them alone, and let them deal with their own consequences, i.e. "Live and let live". It might sound simplistic but I do think the world could be a much better place generally if people could just understand this. Hank

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2 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 17, 2020
In reply to @faithwalker007 "I agree. We do have a small glimmer of hope of the horizon however in the..." + (show)
@faithwalker007

I agree. We do have a small glimmer of hope of the horizon however in the New Hampshire Bill passed called HB-1639-FN. This Bill protects chronic pain care patients and their doctors from the CDC guidelines as well as much more.

I’m in contact and negotiating similar legislation for the state of Wyoming as we speak to protect those with chronic pain here with the backing of the Wyoming Independent Living WYDPAC Committee, WY Council of the Blind, and many more. I’ve already got almost 50 signatures in the petition and it’s only been circulating on Facebook for 4 - 5 days?

I don’t have the money to promote the thing so I’m doing so the sharing and promotion on my own which as you can imagine is not much with my pain level.

Why would Wyoming make a difference? Because most of our state go to out of state providers who are licensed by the State in order to get paid by Medicaid.

Which states am I talking about? South Dakota, North Dakota, Nebraska, Colorado, Utah, Idaho, and Montana.

Wyoming knows how and when to make an impression. We’re sincere, honest and know how things are nil C

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Sorry for the errors- last night was a rough night. I’m going on 2 hours of Sleep and Siri right now do this might not be much better! Lol

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Faithwalker007 (Renee) | @faithwalker007 | Oct 17, 2020
In reply to @jesfactsmon "@faithwalker007 Renee, how do I find the facebook petition? We will sign. Well, only one of..." + (show)
@jesfactsmon

@faithwalker007
Renee, how do I find the facebook petition? We will sign. Well, only one of us is on FB. So one will sign. Hank

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It’s actually on change.org.
https://www.change.org/NewOpioidLeg2020

I appreciate any and all support we can get!

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1 reply
cb772 | @cb772 | Oct 17, 2020
In reply to @sunnyflower "@lioness, and I feel the same way about you!! We are promised new bodies when we..." + (show)
@sunnyflower

@lioness, and I feel the same way about you!! We are promised new bodies when we get to heaven and I for one am looking forward to that! Many many blessings, Sunny flower

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@lioness & @sunnyflower , I feel the same as both of you. The only reason I haven't decided to end my life is I desperately want to go to heaven & I'm not sure I would if I did that.

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3 replies
Faithwalker007 (Renee) | @faithwalker007 | Oct 17, 2020
In reply to @cb772 "@lioness & @sunnyflower , I feel the same as both of you. The only reason I..." + (show)
@cb772

@lioness & @sunnyflower , I feel the same as both of you. The only reason I haven't decided to end my life is I desperately want to go to heaven & I'm not sure I would if I did that.

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You and people like you (and us) are why I’m fighting so hard.

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1 reply
Faithwalker007 (Renee) | @faithwalker007 | Oct 17, 2020
In reply to @faithwalker007 "You and people like you (and us) are why I’m fighting so hard." + (show)
@faithwalker007

You and people like you (and us) are why I’m fighting so hard.

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Read this and give it to your providers if they ever try to cut your doses. Get your senators involved. I had to get Senator Barrasso involved in my case.
https://www.cdc.gov/media/releases/2019/s0424-advises-misapplication-guideline-prescribing-opioids.html

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