Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

tazscott | @tazscott | May 28, 2019

I have 2 spinal cord stimulators. one in my neck and one in my back. I would not live without them. World of difference

nurseheadakes | @nurseheadakes | May 28, 2019

Hi
My Name is Eloise and I am kind of all of the place. I apologize for putting my answers in everyone questions but my life has been filled with many speed bumps along the way.
I am a retired Nurse/Case Manger. I have experienced death three times with MVAs, coma X1, viral meningitis, C-diff, GERD, Hearing loss since birth with tinnitus, hypercusis, vertigo non-stop, chronic pain, broken bones, influenza X3, and a whole host of other diseases and allergies including central auditory brain disorder, but I am still standing and working to help others take care of our bodies.
I am religious, and work to serve others because it helps me in the long run. I am the first of seven kids; my mom is 90, I am her POA, and there are lots of grandkids and great-grandkids in our extended family. I am married 45 years - we met in High school so long ago....I love learning and worked to get my last degree - an MBA in Health Care Management in 2006. I am a writer and have been published. I just recently wrote my Memoir but need to publish it. You can goggle me if you want. [Nurses are Patient People] I was also featured in the HLAA news magazine a few years back when I attended one of the national conventions. That's enough about me...too much really.

lillee | @lillee | May 28, 2019

Thanks for all the advice

lillee | @lillee | May 28, 2019

Plus I live in Alabama don't have much and choices

vwindsor62 | @vwindsor62 | May 28, 2019

My name is Valerie Windsor and I have lumbar arachnoiditis and cervical neuropathy as well as hyperrflexia my pain is horrible. My nerve conduction study showed how much pain I'm living in, but still denied enough opioids to allow me a quality of life. I have been told that my condition was caused by a medical procedure gone wrong, and I know which procedures caused this. It was the spinal nerve block injections, yet I was forced to have them or my insurance would not authorize my prescription for oxymorphone; as well as the doctor would not write the prescription. I told my insurance and the doctors the injections were making me worse, yet I had to submit to them. My last nerve block injection was in January, right after I felt tingling on the top of my left foot and shortly after extreme pain in my left leg and now it's going on 6 months of horrible pain. Before that spinal injection in January my left leg had no pain. Before the spinal injections and after my spinal surgeries I only had pain in my right hip, after the injections my knees, right calf, bottom of my right foot, left hip, left knee, left thigh...I know there's something in that medication because there's no way every doctor is incompetent. I also was told of any possible adverse reaction to these spinal injections, I was only told I had to submit to them.
I have actually tried everything to combat the pain from, massage/physical therapy, tens-unit, acupuncture, surgery, spinal cord stimulation, ultrasound treatment, the horrible spinal injections, and all forms of non-opioid medication. The only relief I get is from opioids. The attack on opioids is bs, and never have I heard anyone defend them, for opioids are the only form of relief for most chronic pain patients
I can't keep living in this pain.
Since these opioid laws have now denied chronic pain patients Human Rights, Civil Rights, and taken away our HIPPA protection.

Chronic Pain Patients are the new Lepors (Leporsy) That is who we now identify with.
Valerie Windsor

vwindsor62 | @vwindsor62 | May 28, 2019

In reply to @tazscott "I have 2 spinal cord stimulators. one in my neck and one in my back. I..." + (show)

I tried the spinal cord stimulator, it didn't help me at all.

lioness | @lioness | May 28, 2019

In reply to @tazscott "I have 2 spinal cord stimulators. one in my neck and one in my back. I..." + (show)

@tazscott Glad it's helping you my concern is how does it affect your thoughts ? So far I've replied for @against

seanivor | @seanivor | May 28, 2019

In reply to @nurseheadakes "Chronic pain - most everyone has it including me. Fibromyalgia is the word I live with..." + (show)

@nurseheadakes

Chronic pain - most everyone has it including me. Fibromyalgia is the word I live with because of all of the MVAs I have had in the past. My brain remembers all of the contusions and comas and broken bones and can't make sense of it all - so it doesn't know how to release the pain sensation that I feel everyday. I have learned that even though I have taken every kind of pain med out there and tried every kind of biofeedback, they are only short term treatments. Finally, none of them worked for me. The medicines made me loopy, hallucinated, or groggy, or I just got no relief anymore. The biofeedback helps but needs to be used with other therapies. Gels, foams, water, sun, injections, and the host of other possible advertised and promoted are good when specifically targeted for short term treatment, pre-op treatment or post-op treatment. But then again, this is not for long term care. Tolerance to pain can be found in both the mind and how you want it to rule your life and in your body. I have pain all of the time but I don't let it rule my life. I rule it by doing things that say I am in command. I seek a bit of the sun, warmth, enough sleep for my body to rejuvenate, eat nourishing foods, laugh and smile daily, and when I need it - I have my massages. For the last 10+ years I have had massages every two weeks so that I can have relief of the decompression and helps with my circulatory system. Your blood is your life. With adequate fluid intake, which most Americans don't drink enough water.... should be water with lemons in it....we all are very dehydrated. Our bodies are made of fluid and we suffer because of we don't have enough of it.
Our pain - headaches are because we are dehydrated....first thing you need to do is drink a cup of water and see if that will take away your pain and then take your medicine. I have to remind myself to drink enough - just enough so my heart can take it...since I have to watch how much I drink. My lemon water is filled with pulp and is sour but it works for me. I have gotten use to it. Try it on a slow basis. Celery juice in the morning - results will be noticed by lab work and weight loss.
Pain will not go away entirely, but if you keep busy with moving around.,....dusting, washing the dishes, pulling weeds, walking to the mailbox and back, talking to your neighbor for 5 minutes, rearranging a drawer, or even going through your closet and donating something to the thrift shop down the road....there is much to do and so little time to do it all. Hop to it. If you haven't had a massage - there are plenty of places around to try. https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/massage/art-20045743
https://www.amtamassage.org/professional_development/starting.html
Here are some interesting facts about the profession. I have been working with lots of them and know what they do for and with me. They even provide the CBD oils for your massages - which work very well. My last one was terrific and it was wonderful.
Any doubters - massages are for men and women....the price to pay is worth the time because it lasts. Put you mind to it. That's what counts.

Jump to this post

Hi Nurseheadakes, you are 100% correct, I enjoyed reading your post, yep its about making the most of a bad situation and keeping busy if possible and you just might improve unknown to yourself, keep up the positive posting, thanks Sean

tazscott | @tazscott | May 28, 2019

In reply to @vwindsor62 "I tried the spinal cord stimulator, it didn't help me at all." + (show)

It really depends on where and what type of pain you have. They only work on nerve pain in limbs only. They will not work on back pain.

tazscott | @tazscott | May 28, 2019

In reply to @lioness "@tazscott Glad it's helping you my concern is how does it affect your thoughts ? So..." + (show)

As far as thoughts. I think if it helps with your pain it is going to help improve your mood. Any help with discomfort is going to make your life better.