Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

I am also going to try the cbd. I am a double amputee I have had 98 surgeries and wore out. Ready to live life with less pain so I can enjoy my family more. If anyone has any advice on pain please give me any advice

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Chronic pain - most everyone has it including me. Fibromyalgia is the word I live with because of all of the MVAs I have had in the past. My brain remembers all of the contusions and comas and broken bones and can't make sense of it all - so it doesn't know how to release the pain sensation that I feel everyday. I have learned that even though I have taken every kind of pain med out there and tried every kind of biofeedback, they are only short term treatments. Finally, none of them worked for me. The medicines made me loopy, hallucinated, or groggy, or I just got no relief anymore. The biofeedback helps but needs to be used with other therapies. Gels, foams, water, sun, injections, and the host of other possible advertised and promoted are good when specifically targeted for short term treatment, pre-op treatment or post-op treatment. But then again, this is not for long term care. Tolerance to pain can be found in both the mind and how you want it to rule your life and in your body. I have pain all of the time but I don't let it rule my life. I rule it by doing things that say I am in command. I seek a bit of the sun, warmth, enough sleep for my body to rejuvenate, eat nourishing foods, laugh and smile daily, and when I need it - I have my massages. For the last 10+ years I have had massages every two weeks so that I can have relief of the decompression and helps with my circulatory system. Your blood is your life. With adequate fluid intake, which most Americans don't drink enough water.... should be water with lemons in it....we all are very dehydrated. Our bodies are made of fluid and we suffer because of we don't have enough of it.
Our pain - headaches are because we are dehydrated....first thing you need to do is drink a cup of water and see if that will take away your pain and then take your medicine. I have to remind myself to drink enough - just enough so my heart can take it...since I have to watch how much I drink. My lemon water is filled with pulp and is sour but it works for me. I have gotten use to it. Try it on a slow basis. Celery juice in the morning - results will be noticed by lab work and weight loss.
Pain will not go away entirely, but if you keep busy with moving around.,....dusting, washing the dishes, pulling weeds, walking to the mailbox and back, talking to your neighbor for 5 minutes, rearranging a drawer, or even going through your closet and donating something to the thrift shop down the road....there is much to do and so little time to do it all. Hop to it. If you haven't had a massage - there are plenty of places around to try. https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/massage/art-20045743
https://www.amtamassage.org/professional_development/starting.html
Here are some interesting facts about the profession. I have been working with lots of them and know what they do for and with me. They even provide the CBD oils for your massages - which work very well. My last one was terrific and it was wonderful.
Any doubters - massages are for men and women....the price to pay is worth the time because it lasts. Put you mind to it. That's what counts.

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Profile picture for nurseheadakes @nurseheadakes

Chronic pain - most everyone has it including me. Fibromyalgia is the word I live with because of all of the MVAs I have had in the past. My brain remembers all of the contusions and comas and broken bones and can't make sense of it all - so it doesn't know how to release the pain sensation that I feel everyday. I have learned that even though I have taken every kind of pain med out there and tried every kind of biofeedback, they are only short term treatments. Finally, none of them worked for me. The medicines made me loopy, hallucinated, or groggy, or I just got no relief anymore. The biofeedback helps but needs to be used with other therapies. Gels, foams, water, sun, injections, and the host of other possible advertised and promoted are good when specifically targeted for short term treatment, pre-op treatment or post-op treatment. But then again, this is not for long term care. Tolerance to pain can be found in both the mind and how you want it to rule your life and in your body. I have pain all of the time but I don't let it rule my life. I rule it by doing things that say I am in command. I seek a bit of the sun, warmth, enough sleep for my body to rejuvenate, eat nourishing foods, laugh and smile daily, and when I need it - I have my massages. For the last 10+ years I have had massages every two weeks so that I can have relief of the decompression and helps with my circulatory system. Your blood is your life. With adequate fluid intake, which most Americans don't drink enough water.... should be water with lemons in it....we all are very dehydrated. Our bodies are made of fluid and we suffer because of we don't have enough of it.
Our pain - headaches are because we are dehydrated....first thing you need to do is drink a cup of water and see if that will take away your pain and then take your medicine. I have to remind myself to drink enough - just enough so my heart can take it...since I have to watch how much I drink. My lemon water is filled with pulp and is sour but it works for me. I have gotten use to it. Try it on a slow basis. Celery juice in the morning - results will be noticed by lab work and weight loss.
Pain will not go away entirely, but if you keep busy with moving around.,....dusting, washing the dishes, pulling weeds, walking to the mailbox and back, talking to your neighbor for 5 minutes, rearranging a drawer, or even going through your closet and donating something to the thrift shop down the road....there is much to do and so little time to do it all. Hop to it. If you haven't had a massage - there are plenty of places around to try. https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/massage/art-20045743
https://www.amtamassage.org/professional_development/starting.html
Here are some interesting facts about the profession. I have been working with lots of them and know what they do for and with me. They even provide the CBD oils for your massages - which work very well. My last one was terrific and it was wonderful.
Any doubters - massages are for men and women....the price to pay is worth the time because it lasts. Put you mind to it. That's what counts.

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Going to try it. I laugh a lot and have adopted my 4 year old God daughter I have had her for over 3 years it's hard work but I love her I never knew how she helps my pain by keeping me busy but being a double amputee plates in my neck and arm plus lupus takes a toll on me. But willing to try anything

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Profile picture for nurseheadakes @nurseheadakes

Chronic pain - most everyone has it including me. Fibromyalgia is the word I live with because of all of the MVAs I have had in the past. My brain remembers all of the contusions and comas and broken bones and can't make sense of it all - so it doesn't know how to release the pain sensation that I feel everyday. I have learned that even though I have taken every kind of pain med out there and tried every kind of biofeedback, they are only short term treatments. Finally, none of them worked for me. The medicines made me loopy, hallucinated, or groggy, or I just got no relief anymore. The biofeedback helps but needs to be used with other therapies. Gels, foams, water, sun, injections, and the host of other possible advertised and promoted are good when specifically targeted for short term treatment, pre-op treatment or post-op treatment. But then again, this is not for long term care. Tolerance to pain can be found in both the mind and how you want it to rule your life and in your body. I have pain all of the time but I don't let it rule my life. I rule it by doing things that say I am in command. I seek a bit of the sun, warmth, enough sleep for my body to rejuvenate, eat nourishing foods, laugh and smile daily, and when I need it - I have my massages. For the last 10+ years I have had massages every two weeks so that I can have relief of the decompression and helps with my circulatory system. Your blood is your life. With adequate fluid intake, which most Americans don't drink enough water.... should be water with lemons in it....we all are very dehydrated. Our bodies are made of fluid and we suffer because of we don't have enough of it.
Our pain - headaches are because we are dehydrated....first thing you need to do is drink a cup of water and see if that will take away your pain and then take your medicine. I have to remind myself to drink enough - just enough so my heart can take it...since I have to watch how much I drink. My lemon water is filled with pulp and is sour but it works for me. I have gotten use to it. Try it on a slow basis. Celery juice in the morning - results will be noticed by lab work and weight loss.
Pain will not go away entirely, but if you keep busy with moving around.,....dusting, washing the dishes, pulling weeds, walking to the mailbox and back, talking to your neighbor for 5 minutes, rearranging a drawer, or even going through your closet and donating something to the thrift shop down the road....there is much to do and so little time to do it all. Hop to it. If you haven't had a massage - there are plenty of places around to try. https://www.mayoclinic.org/healthy-lifestyle/stress-management/in-depth/massage/art-20045743
https://www.amtamassage.org/professional_development/starting.html
Here are some interesting facts about the profession. I have been working with lots of them and know what they do for and with me. They even provide the CBD oils for your massages - which work very well. My last one was terrific and it was wonderful.
Any doubters - massages are for men and women....the price to pay is worth the time because it lasts. Put you mind to it. That's what counts.

Jump to this post

@nurseheadakes I am in a lot of pain with back also had a L2fracture doing private duty now nerve pain in legs have to deal with my new pain Dr suggested an implant Spinal chord stimulated its so new I never heard of it before ,have you ?

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I’m Peggy and my chronic pain is from my lumbar area of my spine, all discs are bulging, 2 are herniated, I have fragments floating, modic changes and my vertebrae are no longer in alignment.

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Profile picture for lorirenee1 @lorirenee1

Hi! I use two different CBD products, from two different companies. The salve is from AnandaHemp.com They make only one salve, so you can't order the wrong one. I get very stiff, unmovable toes, and the salve loosens them up, and takes away pain in them. I don't know what I would do without that salve. The other product is from CBDistillery.com It is their drops that I take under my tongue. I use their 1000 mg. and 2500 mg. drops, with the bit of marijuana in the drops. (under 3%, by Illinois law.) The drops help me to relax and not think about the pain. The pain also diminishes from the drops, but it takes easily an hour before I feel less pain. The relaxation is the good part. Both companies ship quickly, and are very reputable. Good luck! I think the CBD stuff is better than the meds, although I take meds, too. Lori Renee

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I did a month of cbd gelcaps and saw no difference at all, the price tag is so steep, are all these products so expensive, I’d try another product but can’t really waste another $100

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Profile picture for pa58 @pa58

I’m Peggy and my chronic pain is from my lumbar area of my spine, all discs are bulging, 2 are herniated, I have fragments floating, modic changes and my vertebrae are no longer in alignment.

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@pa58 I'm so sorry for your pain but can relate when I went to my pain Dr he suggested for my back it's new to me ,a spinal cord stimulater ask your pain Dr about this

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Profile picture for lioness @lioness

@pa58 I'm so sorry for your pain but can relate when I went to my pain Dr he suggested for my back it's new to me ,a spinal cord stimulater ask your pain Dr about this

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Thanks

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Being the medical/health care field for some 40 years, I have worked with implants and patients all my nursing life. What I have found is that some devices work and some don't - depending on what the purpose is and how well planned out the manufacturer put into the device. Of course the patient and physician have the other part of the burden as far as the outcomes of using the device as required. Paring up a device with the right/correct patient to a device and following all of the directions as outlined by the manufacturer will or should make sure the device performs as it should with the anticipated outcomes or hoped for. That's alot to say about a piece of machinery and a human being.
Technology is wonderful as long as it works according to the rules for which it was made. However, there are glitches or mistakes at times when the devices were made well but the thought behind the device did not anticipate what the body would do with the device inside the body and things to wrong. The device is then discontinued to do no further wrong. Much of this takes place behind the scene because these are the trials for manufacturers on products they want to bring to the public.
The Spinal Cord Simulator has gone through this trial period and has FDA approval for human use.
https://www.medtronic.com/us-en/patients/treatments-therapies/spinal-cord-stimulation-chronic-pain/what-to-expect/spinal-cord-stimulator-trial.html
You can read about it on this website and talk to your doctor about it, When you agree to it, there is still a trial period for the temporary simulator before they can put in the permanent one so they know this is what you need. This is not like a Stint for your heart or a pacemaker which needs to be put in permanently. This device gives you a time to evaluate whether it helps you with your daily life activities. You would move around with it to assure it would help you do the things you can not do now. IF it doesn't help in the 10 day period, then it would not be for you.
Do your investigation now and talk with you doctor on the various options you have.

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@lillee, @pa58, Good morning. I regret that you are still uncomfortable and tormented by chronic pain. Because I have been fighting the battle for a few years, I have had a chance to experiment with many forms and dosages of Cannabis. For me, it is without a match for controlling pain and giving you the freedom to enjoy the sunshine and watch the birds at the feeder. I know that there is a lot of hype and holler about CBD oil. What you may have chosen is hemp seed oil. Unfortunately, it doesn't have enough cannabidiol to relieve pain. The real and genuine CBD is from the flowers and leaves of the cannabis plant. Just make sure that your dispensary is stocking the correct products. I would hesitate to purchase online....without a referral from someone with product knowledge. You may also be purchasing total CBD without any THC. I have found that my best results for pain submission are 2:1 (CBD/THC) and 1:1 (CBD/THC). THC activates the CBD and gives you some mental relaxation that comes pain relief. You may want to do a little more research. Here is a link that explains some of the differences between hemp oil and CBD oil. I don't want you to waste your $$$$. https://honestmarijuana.com/hemp-oil-vs-cbd-oil/ . Be safe and free of suffering today. Chris

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