Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@colleenyoung Hi Colleen, thanks for writing! I do use Connect to keep from feeling so isolated. I journal. I’m dealing with a bad knee that became injured when I fell. I appreciate yout listening
@karen00 CBD oil has vitamin K in it. That would thickens your blood. If you have a PE already, you should not be taking it without talking to your anticoagulation clinic. I'm assuming you are on a blood thinner due to the clot.
@karen00
Hi Karen,
So sorry you are having such a bad day! I know how you feel. I've had many days where all I did was cry, cry and cry some more! I also had very little relief from the pain. One thing I learned was that it is important for you to stay ahead of the pain by taking the pain meds before the pain gets uncontrollable. I hated taking the pain meds, I was afraid of getting addicted, so I didn't take them as often as I should have. As a result, the pain would become HORRIBLE!!! When I started to take it more often, it worked better. I cannot take NSAIDs, either. I had weight loss surgery and NSAIDs are not allowed. Now, other than pain meds, all I can take is Tylenol type meds.
As far as CBD oil, I really cannot give you any guidance. I have never used it nor do I think I will, not anytime in the future. There is no real reason, it's just not on my list. There are several people in the group who use it and would be able to help you. As far as I read, there is nothing to be afraid of. Still, I suggest you do your own research so that some of your questions can be answered. Put out your questions and I am sure you will get many responses.
In the meantime, there are a few things you should try, when you can:
*Take your meds as prescribed.
*Take a soak in a nice warm tub. Add oils or salts with a nice relaxing aroma.
*When you are having a good day, take advantage of it. Go out and do something nice for yourself like a mani/pedi or shop. If that is not your thing, do something you miss doing when you don't feel well.
*Don't overdo when you are having a good day.
*When I began with my last pain doc, he hooked me up with a therapist that specializes in patients with chronic pain. If you have that ability with your insurance, it is worth the try!!!!!
*The more you move, the better you will feel! Go to a store where the weather won't impact you. Go to one that has shopping carts for you to hold on to. You'll be surprised how much better you will feel in a few days. I know, I know, how do you walk when you have pain?? Gingerly and slowly. You may only take a couple of steps to start, but that is OK.
*If your insurance allows it and you can get a script, try aquatic PT. The warm water is great. If not that, look for an aquatic program giving by the American Arthritis Foundation.
I hope this helps. I am glad you wrote!
Feel good!
Ronnie (GRANDMAr)
@grandmar this is good information I too belong to a medical group Healthcare partners the groups have investigated there Dr,s only getting the best I hope this does help others. @tregleaser I wish you the best in your search.
I have a problem with some of the posts I've seen lately, including my own. It was my understanding that we were not to give advice of things that a person should do in this setting. Rather we should relate what has worked for us and let others decide if they want to pursue those routes or not. I recently very emphatically told someone they should look into getting a pain pump and what I should have done was said this is the pain pump it works for me and left it at that.
@karen00, what she said! LOL !!! Yes, by all means, watch Netflix, play your favorite music all day long, read your favorite mystery novel, put on Ben Gay or Aspercreme or Icy Hot, use a frozen pack of peas on your trigger points, order off off Amazon .com, call your first cousin and talk to her for at least twenty minutes, look at your old high school year book and thank the spirits of Heaven that you dress so much better today, go get your hair done by that quirky lady who talks a mile a minute and keeps you entertained, join a fitness club and take the old lady aquatics class, the warm water will do you good. Do whatever self care makes you just a little bit happier. You and I are both in this for the long haul. We must have a medicine pouch like my ancestors had. The Native Americans would have these little necklaces that held a small pouch. Inside the pouch they would put whatever was most meaningful to them. It could be anything really, that inspired them. Something they reassured, loved, drew inspiration from. I offer to you this concept of a Medicine Pouch in all sincerity and love for you, my friend. Self care truly is the best care. You are worth it! You deserve anything and everything that will help you get better. I hope you have a better day today. Smoke signals and prayers for you,
Mamacita
@wsh66 , all is forgiven. If you notice my post earlier, I sort of told a certain lady what to do to try to get to feeling better. I try hard not to do that. I do try to say this worked for me, or that worked for my sister. Sometimes I slip up and say things in not exactly the correct way. I meant well. All we can do is try our best. We can acknowledge our slip up and move on, in the grace that has been given me so many, many times. Bless you for your efforts as you travel this road together with us. We are better together.
Mamacita
@karenOO Im so sorry to hear your so hurting Pain can be difficult If I may ask are you depressed by something? or someone now or a in your past? I was for awhile then worked my way through it with Tapping .This is accupressure same form as accupunctur e There are several people on here that use this to help them.just a thought feel better
@mamacita Thats when I was also with fibromyalgia its been a tough road hasn't it We are all warriors
@colleenyoung Colleen, I am so embarrassed that I don’t even remember how to find my original post. I can’t remember everything I told you. There is so much more going on with me and I have kept it inside all this time. Now I feel ready to share as everyone else has shared. Mamacita also wrote me a wonderful note that I wanted to respond to. It’s the caring that I feel from you guys that makes me feel comfortable. Thanks....more to come!!!...Karen