Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@lioness

@sunnyflower I have to agree with lorirenee My son is the same he has his family working from home and strict on covid precautions I haven't seen my grandson for 7 months only on zoom. I haven't been able to give him a hug since then Covid has caused a lot of change maybe they don't want to bring covid to you also .It's just a terrible time on our lives ..

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Oh Linda your story breaks my heart!! I miss my kids and grandkids so bad that I do go visit the family that takes good precautions in their lives once in a while but it's torture not to hug and kiss them, especially the littles. 2 are babies, no fair! I have even asked my younger daughter to wipe down the micropreemie who is now 5 months (born at 24 weeks so really 9 months out of the womb now) and dhe bathes him and puts new clothes on him so I can hold him. It's been about 2 months now.

They know that I am immunosuppresed so do take precautions.

Hoping and praying for you. All the best, Sunny 🤗❤️🌹

Liked by lioness, Hank

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@sunnyflower Thanks sunny but I know this to will pass and I can see him on zoom not as good . I enjoyed him as a baby I watched him since they both worked .It is what it is .

Liked by Hank, sunnyflower

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@artscaping

Hi @lioness, thank you for the feedback. What are New Age products?

May you be content and at peace/

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@artscaping . New Age Naturels is another CBD products there farms are naturel free of pesticides and herbacides like P@B I have been taking them for awhile and like them they do help me a lot . Just another name ,same product . They are free of THC . For me it was the THC that gave me a headache

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@lioness

@sunnyflower Thanks sunny but I know this to will pass and I can see him on zoom not as good . I enjoyed him as a baby I watched him since they both worked .It is what it is .

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You're right, this life is but a blink of an eye in light of all eternity and we have to keep our eyes on the promises of God among which are our new bodies!! These verses say it all about our pain and suffering: II Corinthians 5:1-5 " For we know that when this earthly tent we live in is taken down (that is, when we die and leave this earthly body), we will have a house in heaven, an eternal body made for us by God himself and not by human hands. 2 We grow weary in our present bodies, and we long to put on our heavenly bodies like new clothing. 3 For we will put on heavenly bodies; we will not be spirits without bodies.[a] 4 While we live in these earthly bodies, we groan and sigh, but it’s not that we want to die and get rid of these bodies that clothe us. Rather, we want to put on our new bodies so that these dying bodies will be swallowed up by life. 5 God himself has prepared us for this, and as a guarantee he has given us his Holy Spirit.". 🙏🌹

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@sunnyflower

Well I had told him I do not want to be a burden so it is more me that asks very little of them. I'm talking about maybe one or two things a year at most and sometimes not even that much. No I have not addressed that because it is more one daughter alluding to the fact that the other daughter said it when they had talked about taking turns helping me approximately 2 years ago this fall I believe.

When I print it out my health conditions problem list and showed it to them individually, I told them that I felt I was put into this position to have to validate myself because of that comment. Neither one owned it and both of them barely reacted when seeing my very long list of diseases and conditions on paper. I cannot explain it, I do not get it. They have issues and were very much in the beginning of the victim mentality and entitlement mentality.

They have very good hearts and they have servant Hearts but it's more for friends and church family than for me. It hurts.

Like I said, they are both extremely busy and overcommitted but at the drop of a hat they can run to someone else's side.

I was married to their dad for 17 years and he was abusive. Children will always take out there pain/anger on the parent whose love they are most secure in and they will always try to please the parent whose love they are trying to win. A professional told me that their thinking is something like, oh well mom, she loves me, she'll forgive me.

I have told them that it is not the divorce that is responsible for their pain but more so the 17-year toxic marriage. I did not say anything bad about their dad nor do I except for when they became adults and have their own children and would make a comment here and there but I could count on one hand the times I had to say anything and that is different times to different kids so it wasn't much. I don't believe in doing that. Only when a conversation or something they said called for it.

I'm pretty sure that I have asked them to go to counseling together over the years and in fact it go to counseling just once right before the divorce but it did not go well.

Oh well it is what it is. It is an inconvenience to them that I am ill and I'm sure they have resentment that I have been unable to help in physical ways over the years although they have acknowledged I give a lot to my grandkids and they know that we have a very close relationship.

Thank you for your input, Sunny flower

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It sounds like your marriage was difficult on you and the relationships within the family but it's wondering that you are close to your grandchildren. I'm sure they love you very much.

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@erikas

It sounds like your marriage was difficult on you and the relationships within the family but it's wondering that you are close to your grandchildren. I'm sure they love you very much.

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Thanks Erika, we all really do love each other. Take care, Sunny

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@sunnyflower

Oh yes, I have already said they are legitimately extremely busy and overcommitted. But, all of us can usually make time to do what we want. Just saying. A little of this and a little of that in this equation. I 'm exhausted taking about it. 🤗🌹🙏 PS: When the ladies in the bible study group I taught complained they didn't have time to do their lesson, I would say that "God is the creator of time and He can certainly multiply ours when we put Him first". And that's the truth! 😊

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@sunnyflower
Sunny, I hear you about being exhausted talking about this. Life is all about relationships with other people. And as much as we try to give love and accept love it's really all a crapshoot as to how it all turns out. The hurts we sometimes feel do one thing and that is make us think. But we all come in to the world alone and in the end we will all leave alone. So, as you have mentioned before, it ends up that the relationship with God is all we have ultimately. The hurts that come in life we just suck up and try to learn from. They make us question life, and questioning is good. And I know I'm not telling you anything Sunny that you don't know already. Best, Hank

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Hi all, I see this discussion has turned to family dynamics and specifically missing grandchildren during the time of COVID. I'd like to direct you to this related discussion that may interest you:
– Grandmas and grandpas…opportunity knocks! Ideas during COVID https://connect.mayoclinic.org/discussion/hey-there-grandmas-and-grandpas-opportunity-knocks/

I also think a new discussion about family dynamics and navigating them as we age would be a great new discussion in the Aging Well group: https://connect.mayoclinic.org/group/aging-well/

Let's return this conversation back to the topic of managing chronic pain.

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@jesfactsmon

@sunnyflower
Sunny, I hear you about being exhausted talking about this. Life is all about relationships with other people. And as much as we try to give love and accept love it's really all a crapshoot as to how it all turns out. The hurts we sometimes feel do one thing and that is make us think. But we all come in to the world alone and in the end we will all leave alone. So, as you have mentioned before, it ends up that the relationship with God is all we have ultimately. The hurts that come in life we just suck up and try to learn from. They make us question life, and questioning is good. And I know I'm not telling you anything Sunny that you don't know already. Best, Hank

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@sunnyflower @jesfactsmon I do think that we make time for what is really precious to us. We find a way, as this preciousness is so important. Yes, we all are so busy, but we find a way with what is precious. We all have our priorities and as I age, I tend to judge actions more than words. Yes, we are born and die alone. But while we are here, we have those very precious people, trying to do their very best. Perfect? No, but we don't need that. But we do need to see trying mighty hard!!!! And we have to try mighty hard with the folks we love…. Lori Renee

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I’m 65 and have had chronic chronic pain since getting injured in the Navy when I was 19. To give you an idea of how much it involves, my service connected disability total is 180% because it has evolved into Sever Systemic Disease. I mistakenly didn’t question being on 480 tp 500 mg of morphine a day for many years. I was careful not to take it to get high but I wasn’t able to just grin and bear it because my heart is part of that disability, 100% for that and 80% for skeletal issues. I went through a 10 day detox in the hospital in February of last year after a colonoscopy and endoscopy didn’t show a cause for the pain so I was diagnosed with Narcotic Bowel Syndrome and a detox was supposed to be the only treatment. The constant abdominal began after emergency surgery to remove my gallbladder and the endless complications afterwards. Now that pain controls my life. There were times when the ortho pain was so bad that I could only walk a few steps using a walker because if I pushed it my defibrillator would knock me on my butt because of the SVT that it caused. But even with all of that going on I was able to volunteer at the VA for years and could take care of myself. The chronic GI pain doesn’t allow me to think clear enough to do much of anything. There’s a reason for the term “Its Like. Getting Hit In The Gut”, having pain there doesn’t allow you to concentrate on anything else but how to make it stop. It fills you with anger and limits your ability to cope with anything that is going on around you, including the other chronic pain. My GI Dr at UTSW here in Dallas is referring me to the Mayo Clinic after not finding anything that would explain the pain after an EUS and ERCP two weeks ago. I’m sure that it’s only the GI patients that truly understands the difference in having really bad GI pain and what it does to their lives. I’d sell my soul to make it stop so I’m hoping that the Mayo Clinic’s Dr’s won’t make me have to.

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Hello @dvdhoover. I have to commend you on your continued search for answers despite the amount of pain you are in on a daily basis. When is your appointment and what Mayo Clinic location are you visiting?

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@colleenyoung

Hi all, I see this discussion has turned to family dynamics and specifically missing grandchildren during the time of COVID. I'd like to direct you to this related discussion that may interest you:
– Grandmas and grandpas…opportunity knocks! Ideas during COVID https://connect.mayoclinic.org/discussion/hey-there-grandmas-and-grandpas-opportunity-knocks/

I also think a new discussion about family dynamics and navigating them as we age would be a great new discussion in the Aging Well group: https://connect.mayoclinic.org/group/aging-well/

Let's return this conversation back to the topic of managing chronic pain.

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Thx Colleen. Didn't even realize it! So sorry!

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@dvdhoover

I’m 65 and have had chronic chronic pain since getting injured in the Navy when I was 19. To give you an idea of how much it involves, my service connected disability total is 180% because it has evolved into Sever Systemic Disease. I mistakenly didn’t question being on 480 tp 500 mg of morphine a day for many years. I was careful not to take it to get high but I wasn’t able to just grin and bear it because my heart is part of that disability, 100% for that and 80% for skeletal issues. I went through a 10 day detox in the hospital in February of last year after a colonoscopy and endoscopy didn’t show a cause for the pain so I was diagnosed with Narcotic Bowel Syndrome and a detox was supposed to be the only treatment. The constant abdominal began after emergency surgery to remove my gallbladder and the endless complications afterwards. Now that pain controls my life. There were times when the ortho pain was so bad that I could only walk a few steps using a walker because if I pushed it my defibrillator would knock me on my butt because of the SVT that it caused. But even with all of that going on I was able to volunteer at the VA for years and could take care of myself. The chronic GI pain doesn’t allow me to think clear enough to do much of anything. There’s a reason for the term “Its Like. Getting Hit In The Gut”, having pain there doesn’t allow you to concentrate on anything else but how to make it stop. It fills you with anger and limits your ability to cope with anything that is going on around you, including the other chronic pain. My GI Dr at UTSW here in Dallas is referring me to the Mayo Clinic after not finding anything that would explain the pain after an EUS and ERCP two weeks ago. I’m sure that it’s only the GI patients that truly understands the difference in having really bad GI pain and what it does to their lives. I’d sell my soul to make it stop so I’m hoping that the Mayo Clinic’s Dr’s won’t make me have to.

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@dvdhoover

Off 500mg of morphine in 10 days!!!! That had to have been 10 days in hell! And my doctor is refusing to let me go from 45mg a day to 60.

I'm certainly hoping that the doctors at Mayo will be able to help you. There has to be a source of the pain you live with, and if they can find the source, they will be more likely to get you the treatment you need. I wish you well.

Jim

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I live in the UK. I had a Laparoscopic Sigmoid Colectomy three months ago. I think that I might have Acute Cutaneous Nerve Entrapment. I had been taking Gabapentin for over two weeks and Paracetamol. It is affecting the quality of my life, has anyone else had experience of this?

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@horthog

I live in the UK. I had a Laparoscopic Sigmoid Colectomy three months ago. I think that I might have Acute Cutaneous Nerve Entrapment. I had been taking Gabapentin for over two weeks and Paracetamol. It is affecting the quality of my life, has anyone else had experience of this?

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Hi @horthog, welcome to Mayo Clinic Connect. I'd like to point you to a couple of discussions where you can meet others talking about sigmoid colectomy and nerve entrapment. See these discussions:

– ACNES, Abdominal Cutaneous Nerve Entrapment Syndrome https://connect.mayoclinic.org/discussion/acnes-abdominal-cutaneous-nerve-entrapment-syndrome/
– Removal of sigmoid colon, due to diverticulitus https://connect.mayoclinic.org/discussion/removal-of-sigmoid-colon-due-to-diverticulitus/
– Problems 3 months after colon resection surgery: Help https://connect.mayoclinic.org/discussion/three-months-after-colon-surgery/

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