Grover's Disease: What works to help find relief?

I’m reporting on my progress in hopes of being helpful to others. I started drinking daily cilantro smoothies a little less than 3 weeks ago. I blend about 1-2 cups cilantro in 1/2 cup water. In the last week I’ve added a scoop of Althetic Greens-1. It’s a vitamin powder I was already taking, so adding it to the Cilantro smoothies was easy. I drink that every day, and am also taking 6 tablets of NOW brand 500mg Chlorella (this is the recommended dose). I am thrilled to report that my rash and itching is about 60% improved. I’m waking up less at night and my big patches of rash have the appearance of drying up. I have had a few intensely itchy small spots break out in the last week, but am hopeful that I will continue to improve and am excited to continue the Cilantro and Chlorella. The other changes I made, which I learned about on this site, is to apply Zinc cream (Burt’s Bees Diaper cream). I find the protective barrier very soothing. I also had an extremely itchy head for which my Dr. recently prescribed Ketonozole shampoo. I’ve felt tremendous relief from my itchy scalp after using the shampoo, so I assume there are fungal components to my itch? I’ve tried the shampoo on my body rash as well, without the same relief. No topical creams prescribed by my Dr. have helped my body rash in the slightest. Not steroid cream or several others that I’ve tried. But I’ve found the zinc to be soothing and also like Eucerin Itch Relief lotion as a moisturizer. If I’m at home, pressing an ice pack to my itchiest spots provides somewhat quick relief. I also bought “cold sleeves” which I keep in the freezer because my most maddening rash is on my arms. Side note on cilantro prep. I bought many fresh bunches, then washed and separated them into amounts equal to 1-2 cups, put them in sandwich bags and froze them. It makes it so easy to just get a bag out each day and blend in water. Also, for those who like reading medical studies—in my search for answers about why cilantro might be helping, I did find a couple of studies looking at the benefits of ingesting Coriandrum (Cilantro) as a therapy for itchy or reactive skin) . https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9004245/. https://pubmed.ncbi.nlm.nih.gov/24963872/. Thanks so much to all who post here. In the last couple of years my mysterious rash with intense itching has gotten worse and worse and was becoming debilitating. A recent diagnosis of Grovers led me to this site and I am so grateful. My Dr. is impatient with all my questions, but here I’ve been able to learn so much! I’m experiencing some physical relief of symptoms and and the sense of community is also comforting. Wishing everyone a itch free (or less itchy) holiday season!

Did blue light therapy help at all? I’m sooo tired of nothing helping

I’m reporting on my progress in hopes of being helpful to others. I started drinking daily cilantro smoothies a little less than 3 weeks ago. I blend about 1-2 cups cilantro in 1/2 cup water. In the last week I’ve added a scoop of Althetic Greens-1. It’s a vitamin powder I was already taking, so adding it to the Cilantro smoothies was easy. I drink that every day, and am also taking 6 tablets of NOW brand 500mg Chlorella (this is the recommended dose). I am thrilled to report that my rash and itching is about 60% improved. I’m waking up less at night and my big patches of rash have the appearance of drying up. I have had a few intensely itchy small spots break out in the last week, but am hopeful that I will continue to improve and am excited to continue the Cilantro and Chlorella. The other changes I made, which I learned about on this site, is to apply Zinc cream (Burt’s Bees Diaper cream). I find the protective barrier very soothing. I also had an extremely itchy head for which my Dr. recently prescribed Ketonozole shampoo. I’ve felt tremendous relief from my itchy scalp after using the shampoo, so I assume there are fungal components to my itch? I’ve tried the shampoo on my body rash as well, without the same relief. No topical creams prescribed by my Dr. have helped my body rash in the slightest. Not steroid cream or several others that I’ve tried. But I’ve found the zinc to be soothing and also like Eucerin Itch Relief lotion as a moisturizer. If I’m at home, pressing an ice pack to my itchiest spots provides somewhat quick relief. I also bought “cold sleeves” which I keep in the freezer because my most maddening rash is on my arms. Side note on cilantro prep. I bought many fresh bunches, then washed and separated them into amounts equal to 1-2 cups, put them in sandwich bags and froze them. It makes it so easy to just get a bag out each day and blend in water. Also, for those who like reading medical studies—in my search for answers about why cilantro might be helping, I did find a couple of studies looking at the benefits of ingesting Coriandrum (Cilantro) as a therapy for itchy or reactive skin) . https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9004245/. https://pubmed.ncbi.nlm.nih.gov/24963872/. Thanks so much to all who post here. In the last couple of years my mysterious rash with intense itching has gotten worse and worse and was becoming debilitating. A recent diagnosis of Grovers led me to this site and I am so grateful. My Dr. is impatient with all my questions, but here I’ve been able to learn so much! I’m experiencing some physical relief of symptoms and and the sense of community is also comforting. Wishing everyone a itch free (or less itchy) holiday season!

The best temporary relief I have had in my 18 month 2007/2008 and current 26 month outbreaks was from Eucerin Itch Relief. Tried cilantro and chlorella capsules for 5 months with no success. I attributed 13 years itch relief to 300 mg of Gabapentin every night but it just quit working 26 months ago, but it could have just been the "transient" part of this curse.