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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

ursweetpam | @ursweetpam | Jul 12, 2018

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

REPLY
8 replies
nmo2016Aliana | @nmo2016 | Jul 12, 2018
In reply to @ursweetpam "Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated..." + (show)
@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

Jump to this post

Hi @ursweetpam I don't have an answer for you as I have bad nerve pain also and looking for advice on what to use or get for it. I just wanted you to know I hope you find something to help you and I am praying for you. Don't get discouraged about your pain. Just keep a positive outlook on it. I know that's easier said than done, but stay positive.

REPLY
lioness | @lioness | Jul 12, 2018
In reply to @ursweetpam "Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated..." + (show)
@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

Jump to this post

@ursweetpam So sorry for all you,ve been through .My nerves to my legs are damaged from L2fracture and other back problems I know what pain your going through from all the research I've done what helps me is B complex for it helps nerves a cream called My pain away it is a Fibro cream but rub it On my lower back and legs I get relief from nerve pain I also use Arnica cream and Arnica ☕ it relieved the pain as I have fibromyalgia also Being a retired nurse I've had to do alternatives as I'm not one for pills but a pain Dr.inject my back relieved also he does a nerve block once our bodies hurt it's a try and see On things.but this helps me.

REPLY
ursweetpam | @ursweetpam | Jul 13, 2018
In reply to @ursweetpam "Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated..." + (show)
@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

Jump to this post

@lioness, I am currently trying magnesium to control the jumping, cramping spasms in my leg. I hate that I can't keep my leg still once I stop standing. I have drop foot in that leg and it is getting better too but it sure took a long time. I stopped wearing my leg brace a year ago because it made my leg hurts so bad after a minute on. I can't have injections to my spine because of the spinal cord stimulator (risk of infection is the reason) Besides, injections are probably the cause of the arachnoiditis anyway. I have my bed strategically placed a certain way on my bed to soften and help with the pressure to certain nerves. I found an amazing chiropractor who realized my hip wasn't sitting tight in my pelvis and the whole left side was off center very bad. He said it was probably surgery trauma. I couldn't walk for almost 2 years but my surgeon didnt know what the problem was. I also take Gabapentin for the bee stinging, feeling. It also helps with the feeling I dropped a can on it. I've tried weaning myself off of it because I immediately gained over 50 lbs on it. That is not a good idea. I never realized how much it helped until I didn't take it anymore.
I hope you can find some relief for your pain. I understand totally how you feel.

REPLY
lioness | @lioness | Jul 13, 2018
In reply to @ursweetpam "Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated..." + (show)
@ursweetpam

Hi, I'm Pam. I am 3 years 3 months past my failed Laminectomy/ microdiscectomy. I herniated my L5-S1 but was labeled as a pill seeker until my Dr decided she was sick of seeing me and sent me for the MRI. I suffered for so many years, barely able to get out of bed some days and I had a job that required heavy lifting. Anyway, while I was in surgery, the surgeon said he found I had many arachnoid scars and a large arachnoid cyst that needed drained and that the damage was dar qorse than showed up on the MRI. He said my bones were grey and brittle and that my nerve roots were smashed, glued together and frayed.
I have been suffering from horrible pain in my left leg, all the way to my toes from nerve damage and I have back pain still. I had a spinal cord stimulator put in October of 2015. That required another laminectomy to my thoratic spine and it didn't give me the relief I had been hoping for. Hoping i can chat with others who have been through similar situations as I have and maybe get some answers to some annoying and sometimes painful problems. Thanks.

Jump to this post

@ursweetpam the medicine I use to take for R.L.S. doesn't work anymore Last night I finally used Wintergreen alcohol on my legs ,finally they settled down .Most rubbing alcohol is white ,it's hard to find green alcohol ,Wintergreen alcohol some places don't carry it why I don't know for me it works Yes I too like my chiropractor. With are pain one thing is proven if we don't keep moving ,we lose it.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jul 13, 2018

@lioness

Thanks for the suggestion! I always prefer a non-prescription idea to try first. This sounds good.

Does the Wintergreen have a strong fragrance?

Teresa

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1 reply
suelle50 | @suelle50 | Jul 13, 2018
In reply to @sdemaria "Hello, I have myelitis in my arms where it came from, well?????? I think maybe bextra..." + (show)
@sdemaria

Hello, I have myelitis in my arms where it came from, well?????? I think maybe bextra and, or viox doc. prescribe for me back in early 2000's. Plus I have severe stenosis in my neck and lumbar issues as well. My pain is managed by doing hardly anything and muscle relaxer and pain meds. when I can get!!!! I've had 4 operations to try in get better, some have helped and some made it worse!!! Tks

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I can relate having 2 back surgeries left me worse. I'm so sorry you are suffering.

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suelle50 | @suelle50 | Jul 13, 2018
In reply to @suelle50 "Hi, I'm glad to find this group. I suffer from chronic pain in my back and..." + (show)
@suelle50

Hi, I'm glad to find this group. I suffer from chronic pain in my back and neck. I have stenosis, degenerative disc disease and severe arthritis all down my spine. I had 2 back surgeries one fusion which left me worse off so I don't want to get a neck fusion. I take pain meds on a daily basis.

Jump to this post

Thank you John

REPLY
suelle50 | @suelle50 | Jul 13, 2018
In reply to @suelle50 "Hi, I'm glad to find this group. I suffer from chronic pain in my back and..." + (show)
@suelle50

Hi, I'm glad to find this group. I suffer from chronic pain in my back and neck. I have stenosis, degenerative disc disease and severe arthritis all down my spine. I had 2 back surgeries one fusion which left me worse off so I don't want to get a neck fusion. I take pain meds on a daily basis.

Jump to this post

Thank you

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hosta, Eve | @hosta | Jul 13, 2018

Hosta here, Has anyone tried the Drug Delivery Therapy? I went to a seminar on this type of pain management! I want to look into this. Input would be appreciated.

REPLY
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