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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

lioness | @lioness | Apr 29, 2018
In reply to @wsh66 "You might try going gluten free for a month. It helps with many skin conditions. I..." + (show)
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

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I've had fibro for over 30yrs as a nurse being on my feet the exercise helped me ,when I retired I wasn't as active and hurt more so I do chair exercises and this makes the fibro bearable, helps ,you can buy tapes the one I have is armchair fitness aerobics

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lioness | @lioness | Apr 29, 2018
In reply to @wsh66 "You might try going gluten free for a month. It helps with many skin conditions. I..." + (show)
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

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Your welcome there is a tube of Epsom salts rub on vacation I used it it helps

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Stephen | @wsh66 | Apr 29, 2018
In reply to @tracylockhart "My chronic pain is clinical depression/dysthymia. Which had also causes physical pain. Life in general is..." + (show)
@tracylockhart

My chronic pain is clinical depression/dysthymia. Which had also causes physical pain. Life in general is painful. Maybe this isn't the group for me? @ I also suffer from. Major anxiety.

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anxiety and depression will definitely increase your experience of pain. Unfortunately Medicare won't pay for couch time with a psychologist. They will however pay for a new test it's a it's called genesight testing and you send into swabs and they can predict with great accuracy which antidepressant and anti-anxiety drugs will work best for you. the downside is the doctor has to register and be willing to take part in this activity. The upside is if you are on any kind of government insurance Medicare and or Medicaid this will be a hundred percent paid for. don't be afraid of psychotropic meds Lexapro Prozac Zoloft all of these drugs are extremely helpful. Amitriptyline is used as an antidepressant it also helps with pain from neuropathy the odd pains left in your feet from chemotherapy. It can make you tired it may take awhile to get used to it but too many people feel that they shouldn't be using psychotropic meds that they shouldn't have to depend on that but getting rid of your depression in your anxiety can do as much to relieve your pain and easier experience of pain but getting rid of your depression in your anxiety can do as much to relieve your pain and easier experience of pain as any opioid you can get your hands on.

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susan1955 | @susan1955 | Apr 29, 2018

I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but the chronic, wide-spread pain is sometimes debilitating. I take "Lyrica" but most mornings, wake up with pain (all over, widespread) and I'm wondering what others have done for chronic pain? I know that "exercise" helps; but I have to "get past the pain" in order to just "go for a walk".

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3 replies
Jamie Olson | @jamienolson | Apr 29, 2018
In reply to @susan1955 "I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but..." + (show)
@susan1955

I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but the chronic, wide-spread pain is sometimes debilitating. I take "Lyrica" but most mornings, wake up with pain (all over, widespread) and I'm wondering what others have done for chronic pain? I know that "exercise" helps; but I have to "get past the pain" in order to just "go for a walk".

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Welcome @susan1955. You will notice that I moved your post to the thread for Chronic Pain Members.

I'd like to introduce you to members- @wsh66, @lioness and @kristacat who all have Fibromyalgia and are here discussing/brainstorming ways to get past the pain. Days that you find the pain debilitating are the worst. What do you find most helpful when faced with those days? Does meditation ever help?

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lioness | @lioness | Apr 29, 2018
In reply to @kristacat "Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and..." + (show)
@kristacat

Hello :). First time I’m using a chat for medical reasons. I feel quite desperate and thought I would see if I could tap into this community for help. I was recently diagnosed with hip bursitis. I’m only 42 and sometimes the pain is debilitating. It started on my outer thighs but months later is now more painful on the top of my pelvis bone (highest point) and the groin area which sometimes swells up. I have angioadema (my lower lip swells and I get a rash). I was also diagnosed with fibromyalgia a few years ago. I am fortunate that this condition flares up now and again and is not something that I suffer everyday. I do get very tired - I am finding it hard to stay awake during the day. To add to all this I have 7 uterine fibroids. And also restricted blood flow in both lower legs which can make standing still and flying very painful. Such a variety of conditions but I cannot figure out whether any of these could be related or am I just incredibly unlucky ???!!!! If anyone has any insights I would be very grateful. I am aware that I do have some IgG intolerances to certain foods and recently stopped eating dairy. tips on handling chronic pain and tiredness would be greatly appreciated. Thank you so much

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Oh my gosh Gail when I had my L2fracture I aS put in the turtle shell brace for 3months then 6months aerobic exercises with P.T.yes at this time I was on 6Tramadol but since 2005 the Dr started tapering me of now I take 1Tramadol @Meloxicam I now use a brace when I walk alot but L5@S1fused together ,and a bulging disc it's not fun is it Im 75 with the fibro I just use Epsom salts and Magnesium pills tried all meds weren't good,so I do usual plus rest.

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lioness | @lioness | Apr 29, 2018
In reply to @susan1955 "I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but..." + (show)
@susan1955

I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but the chronic, wide-spread pain is sometimes debilitating. I take "Lyrica" but most mornings, wake up with pain (all over, widespread) and I'm wondering what others have done for chronic pain? I know that "exercise" helps; but I have to "get past the pain" in order to just "go for a walk".

Jump to this post

Welcome Susan I was like you in morning I took Lyrica also along time but woke up hurting every day I'm on a fibro support group and the research they have found is magnesium larger doses then the RDA recommendations.I tapered of Lyrica and started Fibro Malic that has magnesium in it finally going off Lyrica .It,s been over a year now and I wake up not hurting This is only what I do but if course consult your Dr.first I do alot of other tools that help also,Epsom salts,hot showers and more .You will get alot of ideas here

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kristacat | @kristacat | Apr 29, 2018
In reply to @susan1955 "I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but..." + (show)
@susan1955

I have an autoimmune disease (Crohn's Disease) and also Fibromyalgia. The Crohn's has been well-controlled; but the chronic, wide-spread pain is sometimes debilitating. I take "Lyrica" but most mornings, wake up with pain (all over, widespread) and I'm wondering what others have done for chronic pain? I know that "exercise" helps; but I have to "get past the pain" in order to just "go for a walk".

Jump to this post

Dear @susan1955 - sorry to hear about your pain. I sympathize. It’s hard - I know that a gentle walk can help me but I agree it’s hard to even want to stand up straight on a bad day. I found that gentle stretching helps. Stretch out your body before you take a gentle walk. A hot bath helps when you get back from a walk or after work. Strange but I was anaemic and since I started taking iron it really helped my fibro symptoms although it takes 6months to build up your iron stores so you have to be patient. Hope this helps

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raina | @raina | Apr 29, 2018

Hello, my name is raina, a new member to the chronic pain group. I have fibromyalgia, chronic pain and fatigue. I hope to get and give tips on how to live with these diseases.

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4 replies
Texas Freedom | @oregongirl | Apr 29, 2018
In reply to @wsh66 "You might try going gluten free for a month. It helps with many skin conditions. I..." + (show)
@wsh66

You might try going gluten free for a month. It helps with many skin conditions. I saw a new Post Cancer/Lymphedema doctor yesterday who prescribed heavy exercise, aerobic and weight training as a solution to the somnolence, (tiredness), that Chemo and Cancer leave you with. I also use Adderall. Once you get used to adderall you really don't notice your taking it and the crash goes away. She didn't think much of the Adderall. Celebrex is great for reducing swelling and a gluten free diet will also reduce swelling. Lyrica is good for Fibromyalgia and other forms of pain from over active nerves. Chronic pain is still best dealt with with Opiods if it's too serious for Tylenol. If your going to hurt for the rest of your life you might look into a pain pump. I have one and it's the best thing that ever happened to me. I used to eat 252 mg. of various narcotics per day. Now I get 2.75 mg. to 3.75 mg of dilaudid delivered directly to my spine. That is 300 times more effective than eating the same amount. Message me if you need more help.

Jump to this post

I love lying on the hard wood floor and it does hurt but also feels good. I only do it when my son is here visiting. He has a bad back ad does the same thing. He showed me his trip for getting up. I must be cautious. My 11 Vertabra was replaced by concrete. Don't want to go through that again.

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