Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@grandmar

@gldnrtrvrlvr
What a wonderful story about your pups!
I don't have any of my own, but I do have several grandpups.
About 10 years ago, I was going through a very rough spot with my anxiety.
My daughter would come over with her 2 (then) puppies who in some way just knew what I was going through.
They would both come over to me and give me kisses and snuggle.
It calmed me down.
It was amazing.
No training on their part, just their 'puppy powers'.

Ronnie (GRANDMAr)

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Hello @grandmar and @gldnrtrvrlvr

I was reading your conversations about the healing power of pets and thought you might enjoy reading the posts on a Connect discussion group, "What Pets Can Do." Here is the link, https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/?utm_campaign=search

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@hopeful33250

Hello @grandmar and @gldnrtrvrlvr

I was reading your conversations about the healing power of pets and thought you might enjoy reading the posts on a Connect discussion group, "What Pets Can Do." Here is the link, https://connect.mayoclinic.org/discussion/what-pets-can-do-health-and-healing/?utm_campaign=search

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Thank you!

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@grandmar

@tazscott
I am so sorry for the pain you are experiencing.
Will you insurance allow you to see another doc?
I suffered with chronic pain for over a decade!
When I lived in New Jersey, I saw 4 pain docs and non of them were able to help me.
The last one I saw there, wanted me to try a spinal stimulator.
That, was a disaster and another story.

Then I moved to Florida.
I started with one pain doc.
I got his name from the stimulator company.
I was about to get it implanted, so I wanted to stick with the same company and this was the doc they suggested.
He didn't feel I needed it yet.
He tried his things and none worked.

At this point, I tried to find one on my one.
I did extensive research and I FOUND THE ONE!
I found the pain doc who was able to help me on his first try!!!!!
I continued with him for about 4 years until he couldn't help me anymore and I developed new symptoms.
It was at that point I opted for surgery.
The point being, if you can try other docs, DON'T GIVE UP!!!

Best to you!
Ronnie (GRANDMAr)

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I have mayo employees insurance. I have seen several different pain doctors in the last couple years. I did radiofrequency and steroid injections for 20 years. They say they won't do anymore because they just aren't lasting very long no more. The narcotics and my 2 stimulators are what I have to live with they say.

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@sandytoes14

@harleymama I do not have any pain in my tailbone, rather I have pain in my pubic bone.
Pain began after having a hysterectomy. My doctors generally are not concerned with it. I hope you Find something that works

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@sandytoes Oh Jen that has to hurt isn't there a nerve block or something they can do for this ?

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@grandmar

@tazscott
I am so sorry for the pain you are experiencing.
Will you insurance allow you to see another doc?
I suffered with chronic pain for over a decade!
When I lived in New Jersey, I saw 4 pain docs and non of them were able to help me.
The last one I saw there, wanted me to try a spinal stimulator.
That, was a disaster and another story.

Then I moved to Florida.
I started with one pain doc.
I got his name from the stimulator company.
I was about to get it implanted, so I wanted to stick with the same company and this was the doc they suggested.
He didn't feel I needed it yet.
He tried his things and none worked.

At this point, I tried to find one on my one.
I did extensive research and I FOUND THE ONE!
I found the pain doc who was able to help me on his first try!!!!!
I continued with him for about 4 years until he couldn't help me anymore and I developed new symptoms.
It was at that point I opted for surgery.
The point being, if you can try other docs, DON'T GIVE UP!!!

Best to you!
Ronnie (GRANDMAr)

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@grandmar Good morning to you The Dr wants to put a stimulator in for my pain but I'm Leary about it .What was your experience?

Liked by grandmaR

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@lioness

@grandmar Good morning to you The Dr wants to put a stimulator in for my pain but I'm Leary about it .What was your experience?

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I have had very good lucky with both of mine. I have went through 7 of them so far. I would not ever want to live without them. I would have proably killed myself years ago without them. Now for me I still have to use heavy narcotics. But without the stimulators I used double the dosage. If you have any questions I'm more than willing to help you.

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@lioness

@grandmar Good morning to you The Dr wants to put a stimulator in for my pain but I'm Leary about it .What was your experience?

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@lioness
Hi
When the pain doc suggested I get one, I went through the pre-requesite of seeing a psychiatrist for an evaluation.
Next, I went for the trial. That is where things fell apart.
I don't know exactly what happened.
I had the wire leads installed and then the test controls.
I was taught how to use the controls and whst to expect and/or feel.
Nothing seemed to work the way it was supposed to. I went back the next day for an adjustment.
Let me just say I that was NOT the last visit for this thing.
Eventually the doc called the rep from the stimulator company to come back to adjust the device.
More visits back.
The trial that should have taken a few days, took forever.
In the meantime, we were moving out of state (would not have been an issue if the trial went as scheduled).
I asked the stimulator sales rep to find me a new pain doc in my new town we ho used this company.
The new pain doc said he didn't think I needed one yet.
Since my experience had been so bad, I didn't fight the pain doc's suggestion.
Mine is only one bad incident.
I know many have great success with them.
Ronnie

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@grandmar

@lioness
Hi
When the pain doc suggested I get one, I went through the pre-requesite of seeing a psychiatrist for an evaluation.
Next, I went for the trial. That is where things fell apart.
I don't know exactly what happened.
I had the wire leads installed and then the test controls.
I was taught how to use the controls and whst to expect and/or feel.
Nothing seemed to work the way it was supposed to. I went back the next day for an adjustment.
Let me just say I that was NOT the last visit for this thing.
Eventually the doc called the rep from the stimulator company to come back to adjust the device.
More visits back.
The trial that should have taken a few days, took forever.
In the meantime, we were moving out of state (would not have been an issue if the trial went as scheduled).
I asked the stimulator sales rep to find me a new pain doc in my new town we ho used this company.
The new pain doc said he didn't think I needed one yet.
Since my experience had been so bad, I didn't fight the pain doc's suggestion.
Mine is only one bad incident.
I know many have great success with them.
Ronnie

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@grandmar Thanks for information I have talked to several other people they said it lasted awhile then quit working. My son said not to get one as pain is a signal nothing's right Im going to ask my Dr if she knows anything Right now I took a Tramadol, Flexiril and Aleve still hurt I was hoping this would be the answer but not sure

Liked by grandmaR

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@tazscott

I have had very good lucky with both of mine. I have went through 7 of them so far. I would not ever want to live without them. I would have proably killed myself years ago without them. Now for me I still have to use heavy narcotics. But without the stimulators I used double the dosage. If you have any questions I'm more than willing to help you.

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@tazmazz How come you had to go through 7of them is this usual?Is it surgery each time?

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I had a permanent stimulator implanted in January 2019. The rep and I have met approximately every two to three weeks. It is hard to believe that none of the programs seem to be working on the areas which I need. My pain is specifically at L3,4,5. In addition, I have pain on my left hip due to a torn gluteal tendon. So far that is the only program which seems to work. All of the other programs are working on my legs, not on the specific lumbar area. Due to profound and remarkable spinal stenosis, I have been in severe pain for the past 27 years, I have had five surgeries on my spine. My pain doctor has done countless numbers of blocks, epidurals and nerve ablations. She said at this point I have so much hardware on my spine that there is nothing she can do to help relieve my pain. My neurologist refuses to give me any more hydrocodone 10/325. Currently, I take 3 to 4 hydrocodones per day. At this point, my neurologist feels that I should be titrating down on my hydrocodone, however, I still take them to help with my severe pain. I have strong confidence in the rep and all of my doctors. All of my doctors are tops in their field. I am at my wit's end and I am so very tired of dealing with this pain. I am now seeing a psychiatrist to help me deal with the depression. We have yet to find the right combination of drugs which work. I wonder frequently if I have made a mistake having the stimulator implanted.

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@lioness

@grandmar Thanks for information I have talked to several other people they said it lasted awhile then quit working. My son said not to get one as pain is a signal nothing's right Im going to ask my Dr if she knows anything Right now I took a Tramadol, Flexiril and Aleve still hurt I was hoping this would be the answer but not sure

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@lioness
I hope your doctor will be able to come up with a plan for you!!!!
Ronnie

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Recently I have had several people suggest that I might try CBD oil made from hemp. My pain doctor, my liver doctor and my neurologist have all said that they did not think enough testing had been done using CBD oil. They all three suggested that I not use it. That being said, has anyone tried it? Does it provide any pain relief? Or, does it not give any relief at all? Thanks for any of your comments.

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@grandmar

@lioness
I hope your doctor will be able to come up with a plan for you!!!!
Ronnie

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@grandmar I hope so too I just received referral for psychiatrist I would have to see first but not sure I want to go this route going to call my Dr

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@ericmayo

Recently I have had several people suggest that I might try CBD oil made from hemp. My pain doctor, my liver doctor and my neurologist have all said that they did not think enough testing had been done using CBD oil. They all three suggested that I not use it. That being said, has anyone tried it? Does it provide any pain relief? Or, does it not give any relief at all? Thanks for any of your comments.

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Hi, I think it is marvelous stuff. I think the CBD salve that you rub on painful area is even better. It beats a 300 dollar compounding cream my doctor prescribed. I think the trick is to get the right ones, and everyone is different regarding which work. I would not go without CBD products. I have severe neuropathy in my feet. Lori Renee

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@lorirenee1

Hi, I think it is marvelous stuff. I think the CBD salve that you rub on painful area is even better. It beats a 300 dollar compounding cream my doctor prescribed. I think the trick is to get the right ones, and everyone is different regarding which work. I would not go without CBD products. I have severe neuropathy in my feet. Lori Renee

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@lorirenee1 I just ordered some cbd from cbdpure Hope it works as well .May I ask where you get your from? I have used the cream and it does work

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