Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending since that time. Have been treated at Mayo Clinic in Family Medicine, Neurology, Infectious Diseases, Physical Therapy, Urology, Cardiology, Audiology, Internal Medicine, Employee and Community Health, Integrated Community Specialties, Opthamology (sic), Radiology, and perhaps a few other departments I can't recall. I have received acupuncture from the Mayo Clinic and from a private practitioner. I have received chiropractic care and ultrasound. I have tried a cephaly device through the Clinic Store.. I have had a lumbar puncture to test my spinal fluid. I have had cortisone injections to block my occipital (sic) nerves. I have had two dental exams and an exam from a dentist specializing in TMJ/head and neck pain. I have had my furnace checked for carbon monoxide. OTC medications have included tylenol, aleve, ibuprofin, allegra, aspirin, salonpas patches, pseuphedrine, dietary supplements, cremes/lotions. Prescription medications have included tylenol with codeine, neurontin, doxycycline, several different antibiotics, nortryptiline, cymbalta. Have tried hot showers, cold showers, ice packs, heating pads. I practice mindfulness, muscle relaxation, biofeedback. I practice principles of cognitive behavior therapy, dialectical behavior therapy, rational emotive therapy, social rhythms therapy, acceptance and commitment therapy. I practice the principles of Emotions Anonymous. I pray and turn my life over to God every morning. I have missed church, community education programs, symphony concerts, funerals, parties. I have not traveled outside my home state of Minnesota for over a year. My quality of life has suffered greatly. My wife's quality of life has suffered greatly. The only time I do not feel a headache (all over, tingling, pulsing, reverberating, pounding, dull, aching pain including teeth and ears and eyes accompanied by sound and sight sensitivities) is when I am asleep, so I sleep — a lot. I am aware I may just be starting out on this journey. Any suggestions/recommendations would be most gratefully received. Thank you. Oh, have been approved for medical cannabis, too. No results.

REPLY

@jmgndph You didn't mention a CT scan of the head or enceplogram ,have you had any of these? A brain scan would be called for just a suggestion.

REPLY

@jmgndph Oh, my heart simply aches for both you and your wife. As @lioness suggested, has there been a CT scan done? Any blood work for heavy metal exposure, like lead or mercury? Has the water source been checked? What about everyday things like mold in your house/environment or car? Really hoping there is an answer out there for you, soon. Please keep us informed. We care.
Ginger

REPLY
@jmgndph

New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending since that time. Have been treated at Mayo Clinic in Family Medicine, Neurology, Infectious Diseases, Physical Therapy, Urology, Cardiology, Audiology, Internal Medicine, Employee and Community Health, Integrated Community Specialties, Opthamology (sic), Radiology, and perhaps a few other departments I can't recall. I have received acupuncture from the Mayo Clinic and from a private practitioner. I have received chiropractic care and ultrasound. I have tried a cephaly device through the Clinic Store.. I have had a lumbar puncture to test my spinal fluid. I have had cortisone injections to block my occipital (sic) nerves. I have had two dental exams and an exam from a dentist specializing in TMJ/head and neck pain. I have had my furnace checked for carbon monoxide. OTC medications have included tylenol, aleve, ibuprofin, allegra, aspirin, salonpas patches, pseuphedrine, dietary supplements, cremes/lotions. Prescription medications have included tylenol with codeine, neurontin, doxycycline, several different antibiotics, nortryptiline, cymbalta. Have tried hot showers, cold showers, ice packs, heating pads. I practice mindfulness, muscle relaxation, biofeedback. I practice principles of cognitive behavior therapy, dialectical behavior therapy, rational emotive therapy, social rhythms therapy, acceptance and commitment therapy. I practice the principles of Emotions Anonymous. I pray and turn my life over to God every morning. I have missed church, community education programs, symphony concerts, funerals, parties. I have not traveled outside my home state of Minnesota for over a year. My quality of life has suffered greatly. My wife's quality of life has suffered greatly. The only time I do not feel a headache (all over, tingling, pulsing, reverberating, pounding, dull, aching pain including teeth and ears and eyes accompanied by sound and sight sensitivities) is when I am asleep, so I sleep — a lot. I am aware I may just be starting out on this journey. Any suggestions/recommendations would be most gratefully received. Thank you. Oh, have been approved for medical cannabis, too. No results.

Jump to this post

@jmgndph
I am at a loss for words! It sounds like you have been very proactive. I don't see a diagnosis. What is going on with your wife? She certainly has been tested up one side and down the other. I can only imagine how the quality of life has suffered.

I wish I had words of wisdom to offer.

Bless you both…..
Ronnie (GRANDMAr)

REPLY
@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

Jump to this post

@cognac
Lyrica did not work for me either.
Good luck in your search!
Ronnie (GRANDMAr)

REPLY
@lioness

@jmgndph You didn't mention a CT scan of the head or enceplogram ,have you had any of these? A brain scan would be called for just a suggestion.

Jump to this post

I have had a CT scan and an MRI of my head. Everything's normal.

REPLY
@gingerw

@jmgndph Oh, my heart simply aches for both you and your wife. As @lioness suggested, has there been a CT scan done? Any blood work for heavy metal exposure, like lead or mercury? Has the water source been checked? What about everyday things like mold in your house/environment or car? Really hoping there is an answer out there for you, soon. Please keep us informed. We care.
Ginger

Jump to this post

I have had a CT scan and and MRI of my head. Everything's normal.

REPLY
@lioness

@jmgndph You didn't mention a CT scan of the head or enceplogram ,have you had any of these? A brain scan would be called for just a suggestion.

Jump to this post

@jmgndph
Hi!
I'm glad your tests showed everything to be noticed.
I know we don't want anything serious but I know I 'sort of' wished that something showed up so that finally, a plan of action could be made.
Where do you go from here?
Have a pain-free rest of the day…
Ronnie (GRANDMA r)

REPLY

Hello my name is frank I am 56 57 in a few days.I have had lower back pain for many years was able to work until June of 2016 was out of work for about a year before surgery in 2017 when I had surgery fusion of L5 down.it didn't help so now dealing with more pain .I am in pain management.I know their is no magic pill so hoping just talking with people in the same boat will help.

REPLY
@jmgndph

New Daily Persistent Headache began November 13, 2017. The pain range has been 6-9 and never-ending since that time. Have been treated at Mayo Clinic in Family Medicine, Neurology, Infectious Diseases, Physical Therapy, Urology, Cardiology, Audiology, Internal Medicine, Employee and Community Health, Integrated Community Specialties, Opthamology (sic), Radiology, and perhaps a few other departments I can't recall. I have received acupuncture from the Mayo Clinic and from a private practitioner. I have received chiropractic care and ultrasound. I have tried a cephaly device through the Clinic Store.. I have had a lumbar puncture to test my spinal fluid. I have had cortisone injections to block my occipital (sic) nerves. I have had two dental exams and an exam from a dentist specializing in TMJ/head and neck pain. I have had my furnace checked for carbon monoxide. OTC medications have included tylenol, aleve, ibuprofin, allegra, aspirin, salonpas patches, pseuphedrine, dietary supplements, cremes/lotions. Prescription medications have included tylenol with codeine, neurontin, doxycycline, several different antibiotics, nortryptiline, cymbalta. Have tried hot showers, cold showers, ice packs, heating pads. I practice mindfulness, muscle relaxation, biofeedback. I practice principles of cognitive behavior therapy, dialectical behavior therapy, rational emotive therapy, social rhythms therapy, acceptance and commitment therapy. I practice the principles of Emotions Anonymous. I pray and turn my life over to God every morning. I have missed church, community education programs, symphony concerts, funerals, parties. I have not traveled outside my home state of Minnesota for over a year. My quality of life has suffered greatly. My wife's quality of life has suffered greatly. The only time I do not feel a headache (all over, tingling, pulsing, reverberating, pounding, dull, aching pain including teeth and ears and eyes accompanied by sound and sight sensitivities) is when I am asleep, so I sleep — a lot. I am aware I may just be starting out on this journey. Any suggestions/recommendations would be most gratefully received. Thank you. Oh, have been approved for medical cannabis, too. No results.

Jump to this post

Please don't take what I am about to say the wrong way, I am very sincere in my desire to help. You said you pray and turn your life over to God on a daily basis. If you TRULY turn your life over to God you should not have to repeat it every day. Now, having said that, the next time, try letting go and letting God handle it 100%. My granddaughter suffers from headaches, hers is caused by having a sumo tumor. Nothing works for her either except having a spinal tap to relieve the pressure. Have you been checked for this disorder? Also, have you considered your medication? It could be one or more of the medications you are taking could use a change in the dose or you could be having a reaction to one or more of your meds. Have you been tested for allergies? if not, please consider doing that. Something is obviously causing your pain, medicine is a practice of the process of elimination, it sounds like you have done a lot to find something to ease your pain but leave no stone unturned in finding the cause. It could be such a small thing that is at the root of your problem, something as small as a single food allergy can reek havoc in one's life, Or, an allergy to the dye used in foods and materials can be the culprit. And like it or not it could all boil down to being psychosomatic. Stress, depression, and anxiety are no stranger to chronic pain, making the situation worse. I see where you have tried a multitude of self-help techniques and none were successful. I personally, use help healing, prayer, and mind over matter which has helped me with my pain. Self-help is not for everyone, you need to be very dedicated and you need to be totally open about it. Believe strongly in what you are doing, pick one technique and stick with it. One that you can be completely dedicated to. Keep the faith, work your self-help program, and get tested for allergies and have your Dr. evaluate your medication. I wish you all the blessings that God brings you, and know I will remember you in my prayers.

REPLY
@colleenyoung

Dr. Jon Ebbert, an addiction specialist at Mayo Clinic, explains how medical marijuana is used to treat pain and disease symptoms, and dispels a few notions about CBD on Mayo Clinic Radio

Jump to this post

@colleenyoung

Thanks so much for posting this discussion of Medical Marijuana! The doctors clarify most of the information others and I have posted on Connect. Since I'm not a medical professional, it's so much better to hear the information from the physicians at Mayo who have been researching the effects and use of Medical Marijuana for chronic pain, nausea and withdrawal from opiods. This is great news because it confirmed my use of CBD during my withdrawal from Tramadol, and 36 years ago when I quit smoking. I smoked some marijuana at the time when I was really struggling with quitting smoking. It really did help, but I always felt guilty that I had done something illegal. LOL now. I hope others have listened to this radio show.

REPLY
@colleenyoung

Hi all,
I’m Colleen, Community Director and part of Connect’s moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

Jump to this post

How do I find the latest comments? all I see are dated in 2016

REPLY
Please sign in or register to post a reply.