Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@karen00

@hopeful33250 Hey Teresa, yes that’s part of it. I don’t have children and she’s like a daughter to me! Also, I couldn’t put her in a shelter, statistics have shown there are 3 main reasons people won’t adopt a particular dog- if it’s black, big, and older and she’s all 3. I will die before I see her in a shelter! Plus, where would I go? I’m on oxygen at night and have meds to keep cool during the day! I feel I’m on the edge of a cliff getting ready to fall over.

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I have found that my two dogs are the Best Medicine in the world! They don't judge you when you feel bad or hurt! You just get more Kisses!!
Sundance

Liked by lioness

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Hello members of the Bones, Joints & Muscles group. I think it's safe to say that everyone sharing in this group has been greeted by @lioness. She seems to always be online to offer information, give support, connect you with others, and to share a laugh of two. Ever wonder what makes lioness tick and whats she does when she's not on Connect? Now you can.

Check out the Member Spotlights and read the latest story about lioness.
– Living every day like it is her last: Meet @lioness https://connect.mayoclinic.org/page/about-connect/newsfeed-post/living-every-day-like-its-her-last-meet-lioness/

Be sure to subscribe (+Follow) the About Connect page https://connect.mayoclinic.org/page/about-connect/ and see new member spotlights published every 2 weeks.

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@karen00

Well, this is it-what I’ve been fearing. My brother and I will be homeless in 2 weeks. I can’t believe it. It’s come down to this-me on disability and him with only a part time job. He’s tried and tried for something full time but his age works against him. And we have a 10 year old dog who we love!!! I can’t believe this!

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Each state has a program to help almost or soon to be homeless. The state. Federal goverment ,salvation army. Call 211 for many energy numbers u will not find elsewhere.
I know all building supply stores like home depot and liwes are hiring up to 78 years old. For your brother good luck

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Does anybody have bad left leg pain that travels down to they're foot ? I have had upper leg pain for alot of years. I have 2 spinal cord stimulators now. One in my head and one in my back. But the numbness and pain in left foot is new. Just wondering if I'm the only one with pain that travels down that far ? Thanks, Scott Williams

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Does anyone have experience with coccydynia? I've had it for four years but I've had other troubles that required my attention first. Now that those other problems are quiet, I need to get help to sit. I've used a coccyx seat for years and it just seems to press on the areas that are sore. I don't know if it's better with or without the cushion. The Mayo web page listed a specialist in the Pelvic Floor Dysfunction clinic, which is no longer available?? So my PCP referred me to gynecology. It sounds like they'll check me for reproductive issues and then send me to the pain management clinic for a group session. My doctor wants me to get a steroid injection. So I'm having to go out of my network for a caudal block. And then she's sending me to the Midwest Tailbone Treatment Center. Am I wasting my time going to gynecology?

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@harleymama

Does anyone have experience with coccydynia? I've had it for four years but I've had other troubles that required my attention first. Now that those other problems are quiet, I need to get help to sit. I've used a coccyx seat for years and it just seems to press on the areas that are sore. I don't know if it's better with or without the cushion. The Mayo web page listed a specialist in the Pelvic Floor Dysfunction clinic, which is no longer available?? So my PCP referred me to gynecology. It sounds like they'll check me for reproductive issues and then send me to the pain management clinic for a group session. My doctor wants me to get a steroid injection. So I'm having to go out of my network for a caudal block. And then she's sending me to the Midwest Tailbone Treatment Center. Am I wasting my time going to gynecology?

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Hi, @harleymama – You'll notice I moved your post here to an existing discussion in the Chronic Pain group where many members are talking about pain. If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.

Hoping that @psearby17 @ursweetpam @sandytoes14 @jfsherley @wsh66 will have some thoughts for you on how to solve the problem with sitting with coccydynia, as well as any input on getting steroid injections. They may also have some thoughts on the suggested visit to Gynecology.

Have you found anything that led to relief at any point in your last four years with this condition, @harleymama?

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@tazscott

Does anybody have bad left leg pain that travels down to they're foot ? I have had upper leg pain for alot of years. I have 2 spinal cord stimulators now. One in my head and one in my back. But the numbness and pain in left foot is new. Just wondering if I'm the only one with pain that travels down that far ? Thanks, Scott Williams

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@tazscott Yes I'm just having this now it is from your sciatica if it traveled from back and gos to foot Mine did but has settled behind my left knee I use ice then heat on it it's getting better but I'm now 7 weeks with it good luck

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@lioness

@tazscott Yes I'm just having this now it is from your sciatica if it traveled from back and gos to foot Mine did but has settled behind my left knee I use ice then heat on it it's getting better but I'm now 7 weeks with it good luck

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Thank you. I was just at pain clinic. They claim they can't do anything more for me. Just wish there was a cure for everyones pain. I have been in 2 helicopter crashes in the navy. Really paying price now.

Liked by lioness, grandmaR

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@tazscott

Does anybody have bad left leg pain that travels down to they're foot ? I have had upper leg pain for alot of years. I have 2 spinal cord stimulators now. One in my head and one in my back. But the numbness and pain in left foot is new. Just wondering if I'm the only one with pain that travels down that far ? Thanks, Scott Williams

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Hi Scott, I have the pain going down my right leg and have had it for years. It does go ask the way to my foot and neuralgia and numbness are both included. Sciatica has been diagnosed as responsible for most of this but I've also broken my SI joint 3x, and have had my L4& L5 replaced. I have chronic lumbar, piriformis and bursitis pain. I've recently been diagnosed with Ehlers-Danlos Syndromes and highly suspect that I also have a form of Neuro-Muscular Disease. My muscles are melting away while I continue to use them. I have a ranch and feed cattle daily and clean out stalls. It's very frustrating to go from a person very active go where I am now in 5-7 years.

Liked by tazscott

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@sundance6

I have found that my two dogs are the Best Medicine in the world! They don't judge you when you feel bad or hurt! You just get more Kisses!!
Sundance

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My dogs are also wonderful medicine! I have Cream Golden Retrievers. I train one to be my support dog that goes with me everywhere. This is such a special bond and shine dogs are better at it than others. I start them immediately if I will them or when I get pick them up from the breeder. They go through multiple levels of manners training, get their Canine Good Citizen Certification, learn how to stay on a mat when in public, do not greet unless given permission, etc.; there's quite a bit of training that goes into this. My current boy, Ryder, is at my feet right now. I get anxiety attacks and he can help so them. He wasn't with me 2 days ago when I was out of town and did not take him because I was bringing my daughter and her many animals home from college. I ended up having a bad one. As he ages, he'll help me more, but he's only 15 months. My prior boy, Tucker, helped me physically too. I'm getting a puppy, Ducati, in June that's related to him and am very excited as he was a heart dog which come rarely. He died at 2 from Osteosarcoma and that was so painful. The genetics from this line are awesome as they're large, loyal and very calm.

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@tazscott

Thank you. I was just at pain clinic. They claim they can't do anything more for me. Just wish there was a cure for everyones pain. I have been in 2 helicopter crashes in the navy. Really paying price now.

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I agree, it would be terrific to have a remedy for this chronic pain. Thank you for your service. Two helicopter crashes is two too many. Blessings to you.

Liked by lioness, tazscott

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@harleymama

Does anyone have experience with coccydynia? I've had it for four years but I've had other troubles that required my attention first. Now that those other problems are quiet, I need to get help to sit. I've used a coccyx seat for years and it just seems to press on the areas that are sore. I don't know if it's better with or without the cushion. The Mayo web page listed a specialist in the Pelvic Floor Dysfunction clinic, which is no longer available?? So my PCP referred me to gynecology. It sounds like they'll check me for reproductive issues and then send me to the pain management clinic for a group session. My doctor wants me to get a steroid injection. So I'm having to go out of my network for a caudal block. And then she's sending me to the Midwest Tailbone Treatment Center. Am I wasting my time going to gynecology?

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Hi @harleymama! I've gotten steroid/cortisone injections too and the caudel block but haven't had any luck with them. I am sending you positive thoughts that this works for you. My body likes to be odd so don't pay any attention that it did not work for me. Here many positive thoughts for you! Susan

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@gldnrtrvrlvr

Hi @harleymama! I've gotten steroid/cortisone injections too and the caudel block but haven't had any luck with them. I am sending you positive thoughts that this works for you. My body likes to be odd so don't pay any attention that it did not work for me. Here many positive thoughts for you! Susan

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@harleymama I do not have any pain in my tailbone, rather I have pain in my pubic bone.
Pain began after having a hysterectomy. My doctors generally are not concerned with it. I hope you Find something that works

Liked by Lisa Lucier, lioness

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@tazscott

Thank you. I was just at pain clinic. They claim they can't do anything more for me. Just wish there was a cure for everyones pain. I have been in 2 helicopter crashes in the navy. Really paying price now.

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@tazscott
I am so sorry for the pain you are experiencing.
Will you insurance allow you to see another doc?
I suffered with chronic pain for over a decade!
When I lived in New Jersey, I saw 4 pain docs and non of them were able to help me.
The last one I saw there, wanted me to try a spinal stimulator.
That, was a disaster and another story.

Then I moved to Florida.
I started with one pain doc.
I got his name from the stimulator company.
I was about to get it implanted, so I wanted to stick with the same company and this was the doc they suggested.
He didn't feel I needed it yet.
He tried his things and none worked.

At this point, I tried to find one on my one.
I did extensive research and I FOUND THE ONE!
I found the pain doc who was able to help me on his first try!!!!!
I continued with him for about 4 years until he couldn't help me anymore and I developed new symptoms.
It was at that point I opted for surgery.
The point being, if you can try other docs, DON'T GIVE UP!!!

Best to you!
Ronnie (GRANDMAr)

Liked by lioness

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@gldnrtrvrlvr

My dogs are also wonderful medicine! I have Cream Golden Retrievers. I train one to be my support dog that goes with me everywhere. This is such a special bond and shine dogs are better at it than others. I start them immediately if I will them or when I get pick them up from the breeder. They go through multiple levels of manners training, get their Canine Good Citizen Certification, learn how to stay on a mat when in public, do not greet unless given permission, etc.; there's quite a bit of training that goes into this. My current boy, Ryder, is at my feet right now. I get anxiety attacks and he can help so them. He wasn't with me 2 days ago when I was out of town and did not take him because I was bringing my daughter and her many animals home from college. I ended up having a bad one. As he ages, he'll help me more, but he's only 15 months. My prior boy, Tucker, helped me physically too. I'm getting a puppy, Ducati, in June that's related to him and am very excited as he was a heart dog which come rarely. He died at 2 from Osteosarcoma and that was so painful. The genetics from this line are awesome as they're large, loyal and very calm.

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@gldnrtrvrlvr
What a wonderful story about your pups!
I don't have any of my own, but I do have several grandpups.
About 10 years ago, I was going through a very rough spot with my anxiety.
My daughter would come over with her 2 (then) puppies who in some way just knew what I was going through.
They would both come over to me and give me kisses and snuggle.
It calmed me down.
It was amazing.
No training on their part, just their 'puppy powers'.

Ronnie (GRANDMAr)

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