Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Liked by Kari Ulrich, Alumna Mentor, lauren123, John, Volunteer Mentor, @parkerm ... see all
Hello members of the Bones, Joints & Muscles group. I think it's safe to say that everyone sharing in this group has been greeted by @lioness. She seems to always be online to offer information, give support, connect you with others, and to share a laugh of two. Ever wonder what makes lioness tick and whats she does when she's not on Connect? Now you can.
Check out the Member Spotlights and read the latest story about lioness.
– Living every day like it is her last: Meet @lioness https://connect.mayoclinic.org/page/about-connect/newsfeed-post/living-every-day-like-its-her-last-meet-lioness/
Be sure to subscribe (+Follow) the About Connect page https://connect.mayoclinic.org/page/about-connect/ and see new member spotlights published every 2 weeks.
Each state has a program to help almost or soon to be homeless. The state. Federal goverment ,salvation army. Call 211 for many energy numbers u will not find elsewhere.
I know all building supply stores like home depot and liwes are hiring up to 78 years old. For your brother good luck
Liked by Ginger, Volunteer Mentor
Does anybody have bad left leg pain that travels down to they're foot ? I have had upper leg pain for alot of years. I have 2 spinal cord stimulators now. One in my head and one in my back. But the numbness and pain in left foot is new. Just wondering if I'm the only one with pain that travels down that far ? Thanks, Scott Williams
Does anyone have experience with coccydynia? I've had it for four years but I've had other troubles that required my attention first. Now that those other problems are quiet, I need to get help to sit. I've used a coccyx seat for years and it just seems to press on the areas that are sore. I don't know if it's better with or without the cushion. The Mayo web page listed a specialist in the Pelvic Floor Dysfunction clinic, which is no longer available?? So my PCP referred me to gynecology. It sounds like they'll check me for reproductive issues and then send me to the pain management clinic for a group session. My doctor wants me to get a steroid injection. So I'm having to go out of my network for a caudal block. And then she's sending me to the Midwest Tailbone Treatment Center. Am I wasting my time going to gynecology?
Hi, @harleymama – You'll notice I moved your post here to an existing discussion in the Chronic Pain group where many members are talking about pain. If you click on VIEW & REPLY in your email notification, you will see the whole discussion and can join in, meet, and participate with other members talking about their or their loved ones' experiences.
Hoping that @psearby17 @ursweetpam @sandytoes14 @jfsherley @wsh66 will have some thoughts for you on how to solve the problem with sitting with coccydynia, as well as any input on getting steroid injections. They may also have some thoughts on the suggested visit to Gynecology.
Have you found anything that led to relief at any point in your last four years with this condition, @harleymama?
Liked by Jen, Alumna Mentor
Hi Scott, I have the pain going down my right leg and have had it for years. It does go ask the way to my foot and neuralgia and numbness are both included. Sciatica has been diagnosed as responsible for most of this but I've also broken my SI joint 3x, and have had my L4& L5 replaced. I have chronic lumbar, piriformis and bursitis pain. I've recently been diagnosed with Ehlers-Danlos Syndromes and highly suspect that I also have a form of Neuro-Muscular Disease. My muscles are melting away while I continue to use them. I have a ranch and feed cattle daily and clean out stalls. It's very frustrating to go from a person very active go where I am now in 5-7 years.
Liked by tazscott
My dogs are also wonderful medicine! I have Cream Golden Retrievers. I train one to be my support dog that goes with me everywhere. This is such a special bond and shine dogs are better at it than others. I start them immediately if I will them or when I get pick them up from the breeder. They go through multiple levels of manners training, get their Canine Good Citizen Certification, learn how to stay on a mat when in public, do not greet unless given permission, etc.; there's quite a bit of training that goes into this. My current boy, Ryder, is at my feet right now. I get anxiety attacks and he can help so them. He wasn't with me 2 days ago when I was out of town and did not take him because I was bringing my daughter and her many animals home from college. I ended up having a bad one. As he ages, he'll help me more, but he's only 15 months. My prior boy, Tucker, helped me physically too. I'm getting a puppy, Ducati, in June that's related to him and am very excited as he was a heart dog which come rarely. He died at 2 from Osteosarcoma and that was so painful. The genetics from this line are awesome as they're large, loyal and very calm.
Liked by Jen, Alumna Mentor, lioness, grandmaR
Hi @harleymama! I've gotten steroid/cortisone injections too and the caudel block but haven't had any luck with them. I am sending you positive thoughts that this works for you. My body likes to be odd so don't pay any attention that it did not work for me. Here many positive thoughts for you! Susan
Liked by Teresa, Volunteer Mentor, Lisa Lucier, tazscott
@harleymama I do not have any pain in my tailbone, rather I have pain in my pubic bone.
Pain began after having a hysterectomy. My doctors generally are not concerned with it. I hope you Find something that works
Liked by Lisa Lucier, lioness
@tazscott
I am so sorry for the pain you are experiencing.
Will you insurance allow you to see another doc?
I suffered with chronic pain for over a decade!
When I lived in New Jersey, I saw 4 pain docs and non of them were able to help me.
The last one I saw there, wanted me to try a spinal stimulator.
That, was a disaster and another story.
Then I moved to Florida.
I started with one pain doc.
I got his name from the stimulator company.
I was about to get it implanted, so I wanted to stick with the same company and this was the doc they suggested.
He didn't feel I needed it yet.
He tried his things and none worked.
At this point, I tried to find one on my one.
I did extensive research and I FOUND THE ONE!
I found the pain doc who was able to help me on his first try!!!!!
I continued with him for about 4 years until he couldn't help me anymore and I developed new symptoms.
It was at that point I opted for surgery.
The point being, if you can try other docs, DON'T GIVE UP!!!
Best to you!
Ronnie (GRANDMAr)
Liked by lioness
@gldnrtrvrlvr
What a wonderful story about your pups!
I don't have any of my own, but I do have several grandpups.
About 10 years ago, I was going through a very rough spot with my anxiety.
My daughter would come over with her 2 (then) puppies who in some way just knew what I was going through.
They would both come over to me and give me kisses and snuggle.
It calmed me down.
It was amazing.
No training on their part, just their 'puppy powers'.
Ronnie (GRANDMAr)
@sundance6
I have found that my two dogs are the Best Medicine in the world! They don't judge you when you feel bad or hurt! You just get more Kisses!!
Sundance
Liked by lioness