Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@geeg013
Hi Gail!
There are many of us who are retired and have Fibromyalgia and other issues that cause us pain and days when all we want to do is stay in bed.
Welcome!
Ronnie (GRANDMAr)

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@mamacita

Hello FibroWarriors! How is your morning going? Mine has been slow and steady. I need to go to the bank, get some bottled water from the grocery, and buy a birthday present. I will probably get two out of the three accomplished. But hey! I also do many things that are not on any list that are a "given."
Self care is at the top of the list. If I don't take good care of this body, I won't be able to help anyone else. And helping others is what makes me happy. Oh! By the way, my post is not just for FibroWarriors. I want to support and encourage everyone on this site. Fibromyalgia warriors certainly do not have a monopoly on pain. I have a dear friend who has RA and never complains. She just tells it like it is. She is so involved with her family, church, and community, you wouldn't know there is a thing wrong with her.
We all need to be reminded that we are human beings, and not human doings. Our hearts are what mstters, not how much we get done each day. Gabapentin by the way. is part of my arsenal for when I have a serious flare. I cannot drive while taking the maximum dosage for me. But on those days when my Hubby can spare the time to run errands, Gabapentin is very soothing. I was definitely afraid I would gain weight on it, so I cut back my portions at each meal. I was able to lose fifty five pounds. I have more to lose. But it is a process. Well, the index finger is getting tired. Love to you all, and we'll chat some more later!
Mamacita

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@lioness, you are too kind! We help each other here. That's what I tell everyone. Hood luck with your meds. Take it easy and give it a proper chance to work. Let me know how you are getting along, ok? Love and hugs,
Mamacita

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@grandmar

@geeg013
Hi Gail!
There are many of us who are retired and have Fibromyalgia and other issues that cause us pain and days when all we want to do is stay in bed.
Welcome!
Ronnie (GRANDMAr)

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@geeg013 your in the right group welcome from me also . We give each other ideas to help with fibromyalgia and get ideas from other people This is a wonderful group

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@grandmar

@geeg013
Hi Gail!
There are many of us who are retired and have Fibromyalgia and other issues that cause us pain and days when all we want to do is stay in bed.
Welcome!
Ronnie (GRANDMAr)

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@geeg013

Welcome Geeg/Gail. I'm also Gail, but I will return to using my "handle", Gailb. That way people can tell us apart. Grandmar is right about there being many members on Mayo Connect who have Fibromyalga. They are a great group of people.

I just got tested a month or so ago, and I am fortunate that I don't have Fibromyalga. I am a Volunteer Mentor and am not a medical professional. I cannot give medical advice or diagnose problems. However, I experience chronic pain and have experience in mental health, CBD/THC and a few other areas. I offer my experience, knowledge, listening, and support where I can. This is an active and helpful group.

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@geeg013

Hi, Kelsey: My name is Gail, My screen name is Geeg because my best friend,s little boy couldn't say "Gail," It just kind of stuck. I have Fibromyalgia and of course, I have good days and bad days. I have a couple of issues to talk about if I get comfortable. Being retired, I m pretty isolated, so I hope to fall in with some simpaticos.

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@geeg013 Howdy from California! Another fibro-warrior here! There is a wealth of information and experiences that we share here, and it is definitely not one-size-fits-all. When you feel comfortable to share, we're here for you.
Ginger

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@wsh66

Sorry about that. I'll refrain from such things in the future. the legality or illegality of what I recommended depends on what state you're in

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"I just dropped in to see what condition my condition was in". We shouldn't have to parse out what is legal or illegal in which state concerning pot. The notion that pot is bad but alcohol is just fine is ridiculous. 40 million plus Americans have been smoking pot everyday since 1970. If it one tenth as dangerous to smoke and drive as the government says it is, our roads would be undrivable. If it were really the "access" drug that leads to hard drug addiction we'd have 100 times the heroin addicts we have. If it were legal and you bought it at the "pot" store or grew it in the back yard, you'd have never meet the folks that sell hard drugs. We've been living with these fantasies about marijuana since the 1920's. More recently it's been about the left versus the right culture wars. One half of all of the prisoners in our federal penitentiaries are there for 1/2 pound of pot or less. Who wants to keep things as they are? The private prison industry has the largest vested interest in keeping pot illegal. Folks who want to suppress the votes of black Americans are right up there too. One felony for selling pot, your vote is gone for a life time. I get really frustrated when I think about this assinein situation. It's gone on too long,it's time for change. So may of the people who participate in these discussion groups that we have could benefit directly or indirectly from legal marijuana. If anyone could buy medical product made from pot, the market would explode with good new products. Presently, that market is too small to attract real research dollars.

We indeed have a dope problem in America, we have far too many dopes in positions of power. Love and Blessings to each and everyone of you who read these comments and Love and Blessings to all of the folks who have created and sustain this absurd situation.

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@susanjc

I am 65 yrs. young and have a Medtronics Pain Pump inplanted. My quality of life has improved greatly and I no longer take oral medications. I would be happy to share my experience with anyone who is interested.

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Dear @impatricia, call Dr. Michael Chankon Park. M Health 909 Fulton St., Mpls MN 612-624-6666. Ask about the pain pump. You may be being refused care because some fool has branded you a "drug seeker". ( I always wanted to say, "Well of course I drug seeker you idiot, I'm in pain and I'm seeking drugs to fix that") Good luck, better days are coming, I just know that is true. Love and Blessings

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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I thought this extra information on Tramadol from Mayo Clinic may be helpful, "Tramadol belongs to the group of medicines called opioid analgesics. It acts in the central nervous system (CNS) to relieve pain. When tramadol is used for a long time, it may become habit-forming (causing mental or physical dependence). Physical dependence may lead to side effects when you stop taking the medicine."
https://www.mayoclinic.org/drugs-supplements/tramadol-oral-route/description/drg-20068050

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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@JustinMcClanahan
Thanks for the info, Justin.
Of course, Tramadol is the only pain med that works for me.
It was prescribed when I had a tooth infection.
It helped EVERYTHING!
I kept one in case i am in 'need to go to the hospital'pain.
Ronnie (GRANDMAr)

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@parus

@gailb I have been reading about genetic testing for different things. Does insurance pay for this type of testing? Probably varies.
A smiling flower face helps me. Hope it helps you and maybe someone else. I do enjoy my small secret garden with BIG color.

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Dr. Jon Ebbert, an addiction specialist at Mayo Clinic, explains how medical marijuana is used to treat pain and disease symptoms, and dispels a few notions about CBD on Mayo Clinic Radio

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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@grandmar and @JustinMcClanahan, yes. I totally agree. Tramadol is certainly my drug of choice. Unfortuunately, my doctor has decided to no longer prescribe ANY opoids, so I take 6 to 9 ES Tylenol each day while I search for another avenue of relief. They aren't as good as Tramadol, and I know they are slowly eating my liver, but at this juncture I'm ready to try most anything. Lyrica doesn't work. Take care, @cognac

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@gailb

@grandmar

Ronnie, I am again amazed by your positive feelings in spite of your extreme pain. You continue to look for the positive in each issue you have. You are an inspiration to others in pain, including me. My pain feels small after reading your posts. I hope your doctors find a conservative treatment for your spine problems. I have a compression fracture in my C7, and when it's inflamed the pain is excruciating. I also have ongoing osteoarthritis, DDD, lumbar issues, spondylitis, etc which I'm sure you've read in my previous posts.

While I am feeling better right now, I notice that my neck and back pain and leg weakness is slowly returning. Your experiences are helping me as I suspect I will be needing additional work one of these months. Thank you so much for sharing your experience and feelings on this site. You're helping so many others in similar positions, in spite of your pain.

Gail
Volunteer Mentor

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Tell your Doctor to wake up, Tramadol is not an opiod

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