1. < Chronic Pain

Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

gerryg | @gerryg | Apr 21, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

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Thanks for your info I will be working on my problem so far I can deal with my pain but want to be proactive .
Thanks again and good luck with your problems.
Gerryg

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Stephen | @wsh66 | Apr 21, 2018
In reply to @gerryg "I am 72 years old and quite active usually walk 2-3 miles a day and do..." + (show)
@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

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Mhealth is part of the U of MN.I'll try to post hid phone number in Minnesota.

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Stephen | @wsh66 | Apr 21, 2018
In reply to @gerryg "I am 72 years old and quite active usually walk 2-3 miles a day and do..." + (show)
@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

Jump to this post

Dr. Michael Park 612-624-6666. Tell him that Stephen Hodder sent you.

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Stephen | @wsh66 | Apr 21, 2018

when I stop taking oral meds people did tell me that I seemed . sharper than more like myself

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1 reply
Stephen | @wsh66 | Apr 21, 2018
In reply to @stfnwtl89 "I live in us too and have been going thru same thing with my mom. Keep..." + (show)
@stfnwtl89

I live in us too and have been going thru same thing with my mom. Keep calling until you find a dr who will listen to you. We are doing this exact same thing, go to the website for board certified pain specialists and find your state then do some interviewing. Not all pain Drs are specialists and I've found just because they are specialists does not mean they specialize in the pain from a specific disorder. I told my mom we are interviewing dr.'s they are not interviewing her.

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I can't say enough good things about the folks at the pain clinic at M Health in Minneapolis.

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Mentor
John, Volunteer Mentor | @johnbishop | Apr 21, 2018
In reply to @gerryg "I am 72 years old and quite active usually walk 2-3 miles a day and do..." + (show)
@gerryg

I am 72 years old and quite active usually walk 2-3 miles a day and do some exercise 15 minutes for back pain surgeon recently said i have arthritis and he can’t help,except to put a battery powered wire in my back .i’am not happy with that i can’t take pain pills because of other problems
I am looking at getting a second opnion.

Jump to this post

Here's the website:

M Health - University of Minnesota
-- https://www.mhealth.org/

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Mentor
Jim, Volunteer Mentor | @jimhd | Apr 21, 2018
In reply to @hopeful33250 "Hello @gerryg I see that this is your first post on Connect - I would like..." + (show)
@hopeful33250

Hello @gerryg

I see that this is your first post on Connect - I would like to welcome you. I appreciate your post regarding back pain. Have you already had back surgery?

I understand that you are now interested in having the battery powered device implanted to help with your pain. I am glad to hear that you are seeking a second opinion. This is always a wise choice. In considering a second opinion I would encourage you to look for a large medical/research facility such as a university medical center or a facility like a Mayo Clinic.

We have some members who have had the implant with good results. I would like to invite @jimhd who is a volunteer mentor to share his experiences with the implant. Here is the link to a discussion group where this implant is discussed, https://connect.mayoclinic.org/discussion/has-anybody-had-an-implantable-neurostimulator-for-chronic-pain/?pg=3#comment-95485 Please read through these posts and see what others have experienced.

I look forward to hearing from you again.

Teresa

Jump to this post

Welcome Gerry.

I had a Burst DR spinal cord stimulator implant in June of last year and had 80% pain reduction. What a huge relief! I have burning pain in my feet from idiopathic peripheral neuropathy.

Rather than writing about it here, you can read what I've said about it in the group Teresa mentioned. My understanding is that stimulator implants were first developed for back pain.

Jim

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Parus | @parus | Apr 21, 2018

Maybe those who do not live with chronic (and severe) pain do not grasp the concept of hurting all the time. It is hard for me to understand how it is others can keep doing and going. I somehow have it in my mind that everyone hurts like I do, but can keep going-does this make sense? I see others having quality of life and tell myself I am weak because I cannot overcome the pain. Argh, talking in a circle.

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25 replies
liz223 | @liz223 | Apr 21, 2018

I am Liz, 86 years young, married 62 years and I'm glad to be a part of this group. I am more than fond of the Mayo Health Clinic even though I have never been a patient due to the distance from my home. However I have taken both my husband and my mother (while she was living).

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liz223 | @liz223 | Apr 21, 2018
In reply to @colleenyoung "Hi all, I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I..." + (show)
@colleenyoung

Hi all,
I'm Colleen, Community Director and part of Connect's moderator team along with Kelsey. I want to say a special thank you to @leh09 @19lin @seanbeck @suebreen54 @mlemieux @ladyjane85 @lolomarie @zjandre @briansr @salena54 @sharonmay7 for all your contributions and making new members feel welcome.

Cheers to continued connecting on Connect.

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Pablo Luis Mainzer you are amazing!

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