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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Parus | @parus | Apr 14, 2018
In reply to @parus "Chronic pain is so discouraging when there seems no hope in sight. Really been in a..." + (show)
@parus

Chronic pain is so discouraging when there seems no hope in sight. Really been in a lot of pain and nothing to do except feel it. Definitely not fun for any of us. This thing once called life has lost its glimmer.

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@annmayo79 the tailbone thing I understand. A real pain!

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lioness | @lioness | Apr 14, 2018
In reply to @grandmar "Happy Weekend, I was doing some searches and came along a site about medical testing. This..." + (show)
@grandmar

Happy Weekend,
I was doing some searches and came along a site about medical testing. This particular test is for people with back pain. I am NOT advocating you do this. I am suggesting this might need some more investigation. For those of us who have tried it all, this MIGHT be a solution (or not).
This is the link:
https://clinicaltrials.gov/ct2/show/NCT03487731?map_cntry=US&map_state=US%3AFL&rank=8
You might have to copy and paste.
Good luck and let me know if this looks viable for you.....
Ronnie (GRANDMAr)

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Thanks for the info this sounds exciting g for us with back problems It didn't say where the stem cells come from or I missed it but it does sound promising after careful consideration.Linda

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lioness | @lioness | Apr 14, 2018

I'm sorry you are in such a dark place with your pain.I hope you can have a better day ,does hot water showers or pool help you?

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annmayo79 | @annmayo79 | Apr 14, 2018
In reply to @parus "Chronic pain is so discouraging when there seems no hope in sight. Really been in a..." + (show)
@parus

Chronic pain is so discouraging when there seems no hope in sight. Really been in a lot of pain and nothing to do except feel it. Definitely not fun for any of us. This thing once called life has lost its glimmer.

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I made a mistake when I hit "reply" on my own message.

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peach414144 | @peach414144 | Apr 14, 2018
In reply to @parus "I now have even more pain from scar tissue after the placement of a VNS which..." + (show)
@parus

I now have even more pain from scar tissue after the placement of a VNS which was removed in 2010. The pain this causes is not at all pleasant. Pain is something that many of us live with on a daily basis. I also have other pain issues. Suck (a term I abhor) it up and do not darken the door of another pain specialist nor a doctor of any type as they do not want to lose their lives of luxury. Makes good sense.
Why are there pain doctors when they can do nothing?? Currently believing doctors are useless. Pain messes with my mind.

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@ dear parus, yes, i (and i am sure many others) have said the same thing. Why are there pain management doctors when they cannot do anything for the pain. This is so unacceptable. Wish i could help you, me and all the others in pain. Sorry for all of us. peach

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lioness | @lioness | Apr 14, 2018
In reply to @janiss "Hello I have Chronic pain, after fusions to my lower back and Clavicle. After past surgeries..." + (show)
@janiss

Hello
I have Chronic pain, after fusions to my lower back and Clavicle. After past surgeries on several medications and a pain stimulation inplant (this helps dealing with pain it doesn’t make it go away!
I recently tried Yog, made it even worse!
Stretching daily, not walking long distance !
Waiting for my disability to come through so I can go to another specialist out of my current location..

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Of like to hear more about any side effects could you elaborate now it makes you feel as Ronnie questioned.

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grandmaR | @grandmar | Apr 15, 2018
In reply to @parus "I now have even more pain from scar tissue after the placement of a VNS which..." + (show)
@parus

I now have even more pain from scar tissue after the placement of a VNS which was removed in 2010. The pain this causes is not at all pleasant. Pain is something that many of us live with on a daily basis. I also have other pain issues. Suck (a term I abhor) it up and do not darken the door of another pain specialist nor a doctor of any type as they do not want to lose their lives of luxury. Makes good sense.
Why are there pain doctors when they can do nothing?? Currently believing doctors are useless. Pain messes with my mind.

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Happy Peach,
Believe me, I know the frustration of going to a doc who cannot help you.
I went to 5 pain docs before I found someone who could help.
Why 5? That's a long story not worth telling.
I have been seeing my current pain doc for 3 years and he has done great things with my lumbar spine pain.
However, he was not able to do anything with the cervical spine so I opted for surgery.
Truthfully, he failed to be able to help me with my lumbar the last 2 times.
I don't blame him for not being able to hit the spot this time.
Some forms of pain we have are progressive and cannot be helped with shots or pills.
The physiology of our body changes as the diseases progress.
Sometimes surgical interventions are necessary in or to provide any pain relief at all.
Sadly, when it comes to the back and the spine, it is like a dominoes.
One area is bad and once you deal with that, the other areas are irritated, which irritates the next area, etc.
It took me a long time and lots of research to find the right pain doc who could help me.
I am fortunate that my medical insurance allows me that luxury.
I know many people have to stay within certain parameters set by the insurance company.
I don't know what your issues are or what kind of insurance you have, but if you are not happy with your pain doc, research for another one until you find one you like.
BTW....My pain doc does not give me pain meds, just injections.
Good luck to you!!!!!
ronnie

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peach414144 | @peach414144 | Apr 15, 2018
In reply to @parus "I now have even more pain from scar tissue after the placement of a VNS which..." + (show)
@parus

I now have even more pain from scar tissue after the placement of a VNS which was removed in 2010. The pain this causes is not at all pleasant. Pain is something that many of us live with on a daily basis. I also have other pain issues. Suck (a term I abhor) it up and do not darken the door of another pain specialist nor a doctor of any type as they do not want to lose their lives of luxury. Makes good sense.
Why are there pain doctors when they can do nothing?? Currently believing doctors are useless. Pain messes with my mind.

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@ dear grandmar, you are right. I agree with your assessment but, somehow for two different times in my 80 years of life the same chiropractor helped me with two pinched nerves in my cervical spine about eight years age. and now just this month again helped me with two bulging disks and a pinched nerve in the lumbar spine. Took away the pain. Went to him about seven times for each one. And if the pain returns I go back and we do it all over again. I am stunned but it is true. Medicare covers most of the cost. (and I would beg and borrow for the rest.).

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grandmaR | @grandmar | Apr 15, 2018
In reply to @parus "I now have even more pain from scar tissue after the placement of a VNS which..." + (show)
@parus

I now have even more pain from scar tissue after the placement of a VNS which was removed in 2010. The pain this causes is not at all pleasant. Pain is something that many of us live with on a daily basis. I also have other pain issues. Suck (a term I abhor) it up and do not darken the door of another pain specialist nor a doctor of any type as they do not want to lose their lives of luxury. Makes good sense.
Why are there pain doctors when they can do nothing?? Currently believing doctors are useless. Pain messes with my mind.

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Hi Peach
That is FANTASTIC that you have been able to find a chiropractor to help you!!!!
Once we find someone to help us, we grab on and NEVER let go!!!!!
ronnie

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Texas Freedom | @oregongirl | Apr 15, 2018
In reply to @parus "I now have even more pain from scar tissue after the placement of a VNS which..." + (show)
@parus

I now have even more pain from scar tissue after the placement of a VNS which was removed in 2010. The pain this causes is not at all pleasant. Pain is something that many of us live with on a daily basis. I also have other pain issues. Suck (a term I abhor) it up and do not darken the door of another pain specialist nor a doctor of any type as they do not want to lose their lives of luxury. Makes good sense.
Why are there pain doctors when they can do nothing?? Currently believing doctors are useless. Pain messes with my mind.

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Buy supplimental ins. The you never have to beg borrow or steal.

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