Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Hi new here. Started my journey with Fibromyalgia in 1998. Was lucky enough to get a medical retirement. Went through a bucket full of Meds and finally lost my patience and changed to a Mediterranean diet plus walking 3 miles a day, forced myself I was desperate to get my life back, I was 51. I did by some miracle get my life back that is until two years ago. My need is to find a member who lives in Az, we plan to move when the house sells. Is the anyone in the house who is from Az?

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I am on pain management and would like to know what I’m walking into. I know you all are in a painful way so I will say only that I thought it was impossible for a person to hurt so much, but I learned between fibro, arthritis and 3 back surgeries that it’s not impossible.

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@wsh66

I believe it for all over. A catheter runs up your spine and leaks out about 3 mg of Dilaudid every 24 hours. It has been about 80% affective on all my pain. It has not allowed me to walk without pain. It so much better than large doses of oral drugs. I rarely have any pain when seated or lying down. I used to have serious pain 24 hours a day. My guy is Dr. Park at MHealth in Mpls. 612-624-6666

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Thank you for texting and telling me about it.

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I have chronic pain in the right thigh, said to be due to, neurogenic claudication, with MRI showing DDD and no
specific therapy like, ESI is attempted, due to antiplatelet agents in the treatment of known CAD-LAD stent. I am not
able to walk for more than a minute or two, sit down for pain relief, and try to walk again. I need wheelchair for longer ambulation. This has been so. for nearly 2 years, spine surgery did not offer any help.(from India)

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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Parus. Well I thot it was just me. We cannot ask for pain need without feeling ashamed like we are drug addicts.

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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@parus

Have you told your doctor the specifics about your depression or any other mental health issues? If (s)he has information that you haven't given directly, the assumption is that they learned about it from someone else. If that is the case, it's a serious Hippa violation. I understand that every time I see a doctor, I fill out a form listing all of my meds, and a doctor can surmise that we're being treated for depression, etc. Sometimes I don't feel comfortable with a new doctor knowing about my antidepressants, but they might need to know about them if they're going to prescribe something. Even so, if a new doctor does prescribe something, and I haven't revealed any psychotropics or mental health issues, I can easily go online to find out if the new prescription might be contraindicated, given my other meds, or I can learn if there are any concerning interactions. (I do that with every medication I take.) I found a good website to see interactions and side effects of my meds. http://www.mediguard.com.

Hippa regulations can be a pain, but they do protect our privacy, at least theoretically.

Talking about this with you has made me decide to pay more attention to what I tell my doctors.

Jim

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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Hi Paris I also check my new med for side effects as well as interactions I use Drug.com they are both good

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Hi, Debra here. I'm long overdue for a right hip replacement. Fear has kept me away,then in 2016 the basement stairs broke my right ankle.an operation was performed & I now have 2 metal plates which are SO TIGHT it's all unbearable,hip/ankle combo.i was told operation was necessary,but I doubt it.i regret it
The operation,that is. I must mention that I ride a Bicycle daily,weather permitting,it is MUCH EASIER THAN WALKING,which at times is Excruciating & impossible. I also have wide,triple E feet which are great for Balance, but add one constantly recurring
Corn between my right baby toe and sometimes it's hard to determine which pain is Greater,Hip,Ankle or
Toe??? I take naproxen,no prescription medication and when I hear about prevalent opiod issues,i am glad that isn't me,but there are times when i wish I had something just so I am able to walk.
Lastly,my past orthopedic surgeon ( top 10 in Milwaukee) he referred to medical school of Wisconsin for fibromyalgia. I never followed up,too much to digest

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@parus

Certainly have little good to say about health care in IN. Likely the same no matter where one lives. Even my x-rays show there is pain-take tylenol and aleve together...I do what I can to respect my liver, kidneys and other vital organs. Weather is warming soon so I will get out and walk on hard pavement which is hard on the body. Quit whining as it gets one nowhere. I became brave enough to ask for a small amount of hydrocodone (5 mg) and was told to get out and walk. Left feeling like the dregs of society for even asking.

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One thing helps is Tapping I had lots of pain today tapped about 4times and my pain went from a 10- to 3 try it if you haven't Tapping.com

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Hi I am mike from Oregon 30 years logger broken back 20012 several surgery's latter chronic pain just went off veniflxene suffering horrindus withdraws glad to have found this sight

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