Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

@migizii

I think the main reason I haven’t been back is that my life turned upside down immediately after coming home after the appointment (and I live a long drive away). Our house burned down 3 hours after arriving home from that appointment in March, 2018 and we are still in the process of rebuilding. We are hoping to finally be back in our home in December. I didn’t even get a chance to really take in all the valuable information I learned at the first round of teaching but have tried to incorporate some of the life balance lessons taught. I really haven’t had the motivation to make the long trip again and I think, some of the time, I continue to live in denial. I also have to travel to Mayo for a lung condition and osteoporosis and as yet, have not been able to coordinate the appointments. I live in northern Minnesota and with winter right around the corner, I don’t look forward to driving down there (my husband is always willing to do the driving in the winter). Perhaps too much info, but thanks for listening.

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@migizii You,ve had a run of bad luck sorry about your house hope you could save some things You will in time get your 2nd breath and forge ahead Keep posting you have a good husband

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@hopeful33250

You certainly have had a lot going on since your last appointment, @migizii
I'm glad that you shared that. I'm also glad that your husband is so supportive of your trips to Mayo.

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Thanks for taking the time to listen. Life gets the best of us sometimes❤️

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@lioness

@migizii You,ve had a run of bad luck sorry about your house hope you could save some things You will in time get your 2nd breath and forge ahead Keep posting you have a good husband

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Thanks so much for your response. It’s nice to remember I have a good husband. I think I’m too hard on him a good deal of the time😔

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Hi, my name is Daun and I am new here. So grateful to be part of a group that offers support, shares, etc. I have had Fibromyalgia since 2006. Thank God I have had the same wonderful doctor through all of this. I desire to offer support to those who have been newly diagnosed or have been traveling this path for as long or longer. There are so many physical, mental, spiritual aspects, even mourning periods that must be validated. Believe it or not, my former boyfriend (now my housemate/friend), was diagnosed with Fibro in 2015. We met in 2013. How ironic, I know. At least we have been a source of support for each other.

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I've had chronic pain for several years now. In 2012 I had flank pain, which was found to be intermittent hydronephrosis. I also had a tumor on the same kidney. I had a partial right nephrectomy in 2012 and ureter reconstruction in 2013. In 2015 I started having chronic pain in my sacrum, hips, and legs. I was diagnosed with bilateral labral tears and was told all my pain was from muscle guarding. Fix my hips and cure my pain. I had labral repair on my left hip but the pain kept getting worse. A year and a half later, after being referred to the pain clinic, I was diagnosed with a gluteus medius tendon tear so I had another surgery to fix that. My pain still has not gotten better. It got to the point that I couldn't stand and I couldn't sit. I was in too much pain. I had a job where I stand most of the day. I was missing so much work I was getting in trouble with my employer. Over this period I have had numerous injections and images trying to find the source of my pain. I've been in physical therapy since 2015. I've had deep tissue massage, chiropractic adjustments, dry needling, etc. Nothing helps. I've been diagnosed with bulging discs in my lumbar spine and some mild stenosis, sacroiliac joint dysfunction, and myofascial pain disorder. Unfortunately I can't take Tylenol, Aleve, Ibuprofen, or aspirin since I get rebound migraines. I try to take a few once in a while and then it takes months for them to go away with Naratriptan. My primary doctor won't prescribe anything else for pain, although my former doctor prescribed Tramadol which took the edge off the pain. In June I had to quit my job since I couldn't stand any more for any length of time without debilitating pain. Fortunately, I got desk job in July. I don't know how to support myself without a job. I'm still very uncomfortable even with sitting. I use a coccyx cushion. I had to change my therapist due to the new insurance carrier's network. The new therapist has come to the conclusion that my pain may be due to scarring from the kidney surgeries causing scar tissue that is tethering some nerves and so now I am getting myofascial release. Perhaps my hip and leg pain is referred from those nerves. Does anyone have a similar history and if so, what treatments have provided relief?

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@daun

Hi, my name is Daun and I am new here. So grateful to be part of a group that offers support, shares, etc. I have had Fibromyalgia since 2006. Thank God I have had the same wonderful doctor through all of this. I desire to offer support to those who have been newly diagnosed or have been traveling this path for as long or longer. There are so many physical, mental, spiritual aspects, even mourning periods that must be validated. Believe it or not, my former boyfriend (now my housemate/friend), was diagnosed with Fibro in 2015. We met in 2013. How ironic, I know. At least we have been a source of support for each other.

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@daun your fortunate to have another person that gives you support and vica-versa. Ive hard bro since the 90,s you learn to cope .

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@daun

Hi, my name is Daun and I am new here. So grateful to be part of a group that offers support, shares, etc. I have had Fibromyalgia since 2006. Thank God I have had the same wonderful doctor through all of this. I desire to offer support to those who have been newly diagnosed or have been traveling this path for as long or longer. There are so many physical, mental, spiritual aspects, even mourning periods that must be validated. Believe it or not, my former boyfriend (now my housemate/friend), was diagnosed with Fibro in 2015. We met in 2013. How ironic, I know. At least we have been a source of support for each other.

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"Spiritual aspects", are you referring to thr spiritual aspects of fibromyalgia or chronic pain in general. Whichever it is," please elaborate. I've been a pain patient for about 20 years but I also practice Qigong.

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@harleymama

I've had chronic pain for several years now. In 2012 I had flank pain, which was found to be intermittent hydronephrosis. I also had a tumor on the same kidney. I had a partial right nephrectomy in 2012 and ureter reconstruction in 2013. In 2015 I started having chronic pain in my sacrum, hips, and legs. I was diagnosed with bilateral labral tears and was told all my pain was from muscle guarding. Fix my hips and cure my pain. I had labral repair on my left hip but the pain kept getting worse. A year and a half later, after being referred to the pain clinic, I was diagnosed with a gluteus medius tendon tear so I had another surgery to fix that. My pain still has not gotten better. It got to the point that I couldn't stand and I couldn't sit. I was in too much pain. I had a job where I stand most of the day. I was missing so much work I was getting in trouble with my employer. Over this period I have had numerous injections and images trying to find the source of my pain. I've been in physical therapy since 2015. I've had deep tissue massage, chiropractic adjustments, dry needling, etc. Nothing helps. I've been diagnosed with bulging discs in my lumbar spine and some mild stenosis, sacroiliac joint dysfunction, and myofascial pain disorder. Unfortunately I can't take Tylenol, Aleve, Ibuprofen, or aspirin since I get rebound migraines. I try to take a few once in a while and then it takes months for them to go away with Naratriptan. My primary doctor won't prescribe anything else for pain, although my former doctor prescribed Tramadol which took the edge off the pain. In June I had to quit my job since I couldn't stand any more for any length of time without debilitating pain. Fortunately, I got desk job in July. I don't know how to support myself without a job. I'm still very uncomfortable even with sitting. I use a coccyx cushion. I had to change my therapist due to the new insurance carrier's network. The new therapist has come to the conclusion that my pain may be due to scarring from the kidney surgeries causing scar tissue that is tethering some nerves and so now I am getting myofascial release. Perhaps my hip and leg pain is referred from those nerves. Does anyone have a similar history and if so, what treatments have provided relief?

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@harleymama One of the things I have is a fracture back ,bulging disc and spondylitis .n back it has impinged my nerves going into legs burning pain so I fou d putting an ice bag on relieves it so give it a try Lower back and thighs hope you,ll get some relief.

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@harleymama

I've had chronic pain for several years now. In 2012 I had flank pain, which was found to be intermittent hydronephrosis. I also had a tumor on the same kidney. I had a partial right nephrectomy in 2012 and ureter reconstruction in 2013. In 2015 I started having chronic pain in my sacrum, hips, and legs. I was diagnosed with bilateral labral tears and was told all my pain was from muscle guarding. Fix my hips and cure my pain. I had labral repair on my left hip but the pain kept getting worse. A year and a half later, after being referred to the pain clinic, I was diagnosed with a gluteus medius tendon tear so I had another surgery to fix that. My pain still has not gotten better. It got to the point that I couldn't stand and I couldn't sit. I was in too much pain. I had a job where I stand most of the day. I was missing so much work I was getting in trouble with my employer. Over this period I have had numerous injections and images trying to find the source of my pain. I've been in physical therapy since 2015. I've had deep tissue massage, chiropractic adjustments, dry needling, etc. Nothing helps. I've been diagnosed with bulging discs in my lumbar spine and some mild stenosis, sacroiliac joint dysfunction, and myofascial pain disorder. Unfortunately I can't take Tylenol, Aleve, Ibuprofen, or aspirin since I get rebound migraines. I try to take a few once in a while and then it takes months for them to go away with Naratriptan. My primary doctor won't prescribe anything else for pain, although my former doctor prescribed Tramadol which took the edge off the pain. In June I had to quit my job since I couldn't stand any more for any length of time without debilitating pain. Fortunately, I got desk job in July. I don't know how to support myself without a job. I'm still very uncomfortable even with sitting. I use a coccyx cushion. I had to change my therapist due to the new insurance carrier's network. The new therapist has come to the conclusion that my pain may be due to scarring from the kidney surgeries causing scar tissue that is tethering some nerves and so now I am getting myofascial release. Perhaps my hip and leg pain is referred from those nerves. Does anyone have a similar history and if so, what treatments have provided relief?

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@harleymama
So sorry for the horrible pain you are living with.
Have you talked to a physician about getting a pain pump? Since you have so many limitations, this might be a good choice since the amount of medicine that goes into your body is a lot less than injections and oral meds.
I certainly don't know your financial situation, but have you thought about going on SSI? You would start to collect social security and you would also get Medicare (and Medicaid if you need it).

I hope you find an answer soon!
Ronnie (GRANDMAr)

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@grandmar

@harleymama
So sorry for the horrible pain you are living with.
Have you talked to a physician about getting a pain pump? Since you have so many limitations, this might be a good choice since the amount of medicine that goes into your body is a lot less than injections and oral meds.
I certainly don't know your financial situation, but have you thought about going on SSI? You would start to collect social security and you would also get Medicare (and Medicaid if you need it).

I hope you find an answer soon!
Ronnie (GRANDMAr)

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The doctors won't give me anything for pain, so a pain pump is not an option. I looked at disability but none of the diagnoses I have been given are on the list of coverable conditions. I could apply but the process is long and arduous and I can't work during that time. It can take a year or better to apply, be denied, and then appeal. I'm not sure how to support myself during the process.

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@lioness

@harleymama One of the things I have is a fracture back ,bulging disc and spondylitis .n back it has impinged my nerves going into legs burning pain so I fou d putting an ice bag on relieves it so give it a try Lower back and thighs hope you,ll get some relief.

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Yes, icing is one of the treatment modalities I use.

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@harleymama

Yes, icing is one of the treatment modalities I use.

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@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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@lioness

@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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I have tried all of the above and use them. Sometimes I wonder why I continue to use them since they don't work but I keep after it. I've lost count of how many injections I've received over the last few years. I cannot find a doctor to prescribe anything for pain although I do get Baclofen for muscle spasms. They will prescribe other medications like an antidepressant, Neurontin, Lyrica, etc. but they have all given me terrible side effects from migraines to vertigo. I just don't tolerate many medications. I did use Tramadol for a bit. It was enough to take the edge off and get me through my work day but when they wouldn't renew that, I had to quit my job. I think the CDC and Joint Commission has intimidated the medical community over pain medications, to the point that it has had a negative impact on patients.

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@lioness

@harleymama Im sorry to say but most Dr,s dont know how to help us with pain we have to invent things for ourselves Here are some things I use for pain back and elsewhere Tens unit for muscle relaxer ,heating pad Epsom salts soak ,hot shower, ice pain creams,pain patch ,Lidocane gel or rollon maybe you have used these but just my suggestions .I do use Tramadol at night .Find a Dr that will perscribe for you I also have back injections also at times

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Some very good options for pain control, @lioness.

Liked by lioness

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@harleymama

I have tried all of the above and use them. Sometimes I wonder why I continue to use them since they don't work but I keep after it. I've lost count of how many injections I've received over the last few years. I cannot find a doctor to prescribe anything for pain although I do get Baclofen for muscle spasms. They will prescribe other medications like an antidepressant, Neurontin, Lyrica, etc. but they have all given me terrible side effects from migraines to vertigo. I just don't tolerate many medications. I did use Tramadol for a bit. It was enough to take the edge off and get me through my work day but when they wouldn't renew that, I had to quit my job. I think the CDC and Joint Commission has intimidated the medical community over pain medications, to the point that it has had a negative impact on patients.

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@harleymama you are so right there fortunately I have a good rheumatologist who perscribes it for me When I fractured my back Dr had me on 4 a day for along time it also helped with my fibromyalgia now I take just one at night wish you could ,it would ease it.Maybe a orthopaedic Dr with all your issues would?Just a suggestion

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