How do you address the uncertainty?

Posted by malcorozan @malcorozan, Nov 9, 2023

Hello, so glad to find this group! I am a 45yo male, just diagnosed with an ascending aortic aneurysm at 45mm. I also have a bicuspod aortic valve. I am struggling with how to cope with the uncertainty of this diagnosis. I have always been a planner and I have lots of irons in the fire usually. I guess I'm wondering how you decided what to start or continue doing and what to stop or put off? I get a very frustrating response of wait and see from my doctors about when to expect surgery or a rupture. I don't know how to plan my future if I have a big surgery and recovery coming at basically any time?

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@malcorozan
I know how unsettling it can be when you get news like you got from your doctor.
Every case is different because people are different. The uncertainty was the hardest part for me to deal with but I realized quickly that the stress thinking about it was not going to help and more likely could make things worse.
What I did was to improve everything I possibly could that was in my control and then fully accept the things not under my control.
I got rid of (or limited) any toxic or negative people in my life. I put my body in the best shape I could to make it as healthy as possible in the event I needed surgery at any time. I researched and interviewed the best doctors and hospitals that I had access to in case I needed surgery and made sure people close to me knew my choices. I changed my eating habits and improved my diet and the foods I ate. I lost excess weight, (45lbs, but I'm 6'7" so I didn’t really look heavy), and adopted a doctor-approved exercise program. I also got "my affairs" in order to the extent possible.
I basically took a body, mind and soul approach. I learned how to meditate and focused on letting go of the things out of my control. I changed my approach (and response) to adversity and monitored my blood pressure to help train me to remain in a calmer state. But once I really accepted the fact that the things out of my control were truly out of my control, I finally accepted that the worry I had was really the only thing left in my control. And the worry was not helping my condition or state of mind. I finally, years later, went in for surgery and I felt a complete calmness on my way to the hospital, even as I was wheeled into surgery. I did everything I could to improve my outcome. It was out of my control now, except for my state of mind.
I hope you can find the peace that I found, that can be so elusive to people. I think of it as a healthy surrender.
Good luck!

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@terryb3582

@malcorozan
I know how unsettling it can be when you get news like you got from your doctor.
Every case is different because people are different. The uncertainty was the hardest part for me to deal with but I realized quickly that the stress thinking about it was not going to help and more likely could make things worse.
What I did was to improve everything I possibly could that was in my control and then fully accept the things not under my control.
I got rid of (or limited) any toxic or negative people in my life. I put my body in the best shape I could to make it as healthy as possible in the event I needed surgery at any time. I researched and interviewed the best doctors and hospitals that I had access to in case I needed surgery and made sure people close to me knew my choices. I changed my eating habits and improved my diet and the foods I ate. I lost excess weight, (45lbs, but I'm 6'7" so I didn’t really look heavy), and adopted a doctor-approved exercise program. I also got "my affairs" in order to the extent possible.
I basically took a body, mind and soul approach. I learned how to meditate and focused on letting go of the things out of my control. I changed my approach (and response) to adversity and monitored my blood pressure to help train me to remain in a calmer state. But once I really accepted the fact that the things out of my control were truly out of my control, I finally accepted that the worry I had was really the only thing left in my control. And the worry was not helping my condition or state of mind. I finally, years later, went in for surgery and I felt a complete calmness on my way to the hospital, even as I was wheeled into surgery. I did everything I could to improve my outcome. It was out of my control now, except for my state of mind.
I hope you can find the peace that I found, that can be so elusive to people. I think of it as a healthy surrender.
Good luck!

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Excellent advice, I hope I can get everything in order and get to a place of calm like that. Fingers crossed! Thank you!

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I also have one just as big as yours. Relax, as you get past the initial shock, life can go on as normal. My faith and God who has provided in the past assures me that I won’t go before my time😀 That and also to see that my mom who has had an aneurysm in her brain just as big since the 9/11 occurrence and she’s still going strong at the age of 92!
I still walk everyday and play hard pickleball twice or three times per week and live a normal life with my six months check ups. I eat healthy and drink plenty of water😀 the rest is in His hands! You’re going to be fine.🥰 btw I’m almost 70

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I am 65, Inhave a (non-ruptured) celiac artery aneurysm and also a precancerous IPMN tumor in my pancreas, so of course I understand living with uncertainty. But it reminds me of weekly Sunday gatherings when I was young, when my grandmother (in her 60s) would end each visit with”come give me a kiss goodbye cause God might take me. Well she lived to 96. But now that *I’m* 65 her schtick seems much more true. None of us know the future so he need to focus on the NOW. The solution is not to tell friends who worry about their health” oh it will be fine!” And dismiss their concerns. In fact, it might not be ok and eventually, yes the Grim Reaper always wins in the end. So yes, life is fragile, so we must grasp life fully and always be sure to get that goodbye kiss❤️

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i HAVE A ascending aortic aneurysm. THE ECHO SCAN TO DAY SAID 4.3
I'M KIND TIRED OF WORRYING ABOUT IT
THE ARMY WILL FIX IT( IF IT GROWS TO THAT SIZE ) OF 5.5
i QUIT SMOKING AND CHANGED MY DIET
ABOUT ALL I CAN DO ABOUT IT
I GUESS ALL WE CAN DO IT...IS STOP WORRYING ABOUT IT

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Everything always changes
But somehow stays the same
And it all comes down to
Worry Watch and wait

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