1. < Post-COVID Recovery & COVID-19

Low dose naltrexone for Post-Covid Recovery experiences?

Posted by radapanich @radapanich, May 15, 2023

Does anyone have experiences with low dose naltrexone for long Covid symptoms of significant brain fog, post-exertional fatigue, joint pain, muscle pain - inflammation, insomnia. A few studies in late 2022 indicate that low dose naltrexone 4.5 mg is helpful . Do you know of a specific doctor in NYC who prescribes it?

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smdawson540 | @smdawson540 | Nov 15, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

Has anyone had luck with having insurance cover LDN. It is quite expensive. I am thinking of reaching out to the manufacturer. I see a big difference in my exhaustion level when I take this. They gradually increased the dosage for me. I have vivid dreams but can live with that.

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2 replies
carlosmayo | @carlosmayo | Nov 15, 2023
In reply to @smdawson540 "Has anyone had luck with having insurance cover LDN. It is quite expensive. I am thinking..." + (show)
@smdawson540

Has anyone had luck with having insurance cover LDN. It is quite expensive. I am thinking of reaching out to the manufacturer. I see a big difference in my exhaustion level when I take this. They gradually increased the dosage for me. I have vivid dreams but can live with that.

Jump to this post

I had to fight for months to get insurance (Anthem) to cover compounded LDN. But they were fine covering the liquid form without any hassles, so I have now switched to that.

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smdawson540 | @smdawson540 | Nov 15, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

Thank you so much. I have Anthem. I am going to try getting this in liquid form.

REPLY
smdawson540 | @smdawson540 | Nov 15, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

I reached out to my contact at the Long Covid Clinic and she gave me this link for purchasing LDN, https://valorcompounding.com/low-dose-naltrexone/. They have a flat rate of $45 per 30 pills. Wanted everyone to have this in case you are also having issues with the cost of this medicine. This is better than the $70 per month I was being charged.

REPLY
1 reply
klittr3637 | @klittr3637 | Nov 15, 2023
In reply to @smdawson540 "I reached out to my contact at the Long Covid Clinic and she gave me this..." + (show)
@smdawson540

I reached out to my contact at the Long Covid Clinic and she gave me this link for purchasing LDN, https://valorcompounding.com/low-dose-naltrexone/. They have a flat rate of $45 per 30 pills. Wanted everyone to have this in case you are also having issues with the cost of this medicine. This is better than the $70 per month I was being charged.

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Thanks for the information. I have also been paying 70.00!

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kst | @kst | Nov 15, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

I have been using LDN for about 5 months and have seen some improvement without very many side effects. Call different compounding pharmacies in your state. In Oregon I found one in Portland that will mail it to me . It costs $70 for 90 at 4.5 mg.

REPLY
carlosmayo | @carlosmayo | Nov 16, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

The liquid form is a little more hassle than a pill in that you need to use a syringe to pull up the right amount and then drink it. But the cost is amazing - with insurance coverage it is about $3.50 for six months (yes correct decimal place). I was paying over $1000 a year at the compounding pharmacy with no insurance coverage.

REPLY
smdawson540 | @smdawson540 | Nov 17, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

My CRNP does not seem to be aware of the liquid option. I am now paying $45 vs $70 for 30 pills. $3.50 would be much better. Do you mind my asking who prescribed the liquid for you? Was it through a Long COVID clinic?

REPLY
1 reply
maynard02 | @maynard02 | Nov 19, 2023
In reply to @smdawson540 "My CRNP does not seem to be aware of the liquid option. I am now paying..." + (show)
@smdawson540

My CRNP does not seem to be aware of the liquid option. I am now paying $45 vs $70 for 30 pills. $3.50 would be much better. Do you mind my asking who prescribed the liquid for you? Was it through a Long COVID clinic?

Jump to this post

I used CareFirst Pharmacy in NJ to fill both a liquid and pill prescription from my PCP by mail. They offer pill dosages at varying strengths in 90 tablets per order. So same price of $50 [rounded off] for 0.5 mg up to 4.5mg for 90 tablets. Shipping by USPS adds a couple of bucks. Helpful by phone if you have questions. Liquid price a bit higher. I didn't try to get insurance coverage.

REPLY
carlosmayo | @carlosmayo | Nov 19, 2023
In reply to @prancer20 "Has anyone tried low dose Naltrexone or CQ10? The Long Covid Clinic at Scripps has not..." + (show)
@prancer20

Has anyone tried low dose Naltrexone or CQ10?
The Long Covid Clinic at Scripps has not been very helpful, with the exception of the physical therapists. I am desperately trying to crawl out of this syndrome . I start feeling better then increase my activity and that is followed by fatigue. I will start the low histamine diet and see how that goes.

Jump to this post

This is to correct an earlier post where I said I was taking liquid form LDN and that my insurance will cover it unlike the compounded form. Almost correct ... I have to make up the liquid form from 50mg tablets. So one 50mg tablet is combined with 50ml water to make a 1mg/ml solution. I then use a syringe (no needle) to measure 3ml to take. Insurance (Anthem) covers the tablets so they are amazingly cheap - $5.00 for 30 tablets which for me at 3mg/day is a 450 day supply! Sure beats paying the compounding pharmacy around $80 a month.

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