Malignant melanoma of the choroid in the eye

I am getting ipi/nivo immunotherapy infusion. My ocular melanoma metastasized to my lungs - a pet scan showed no other suspect areas. My oncologist discussed using tebe but said I did not have the blood markers that indicated it would work. (I think that is for liver anyway) I have had genome mapping by foundation medicine and may get a recommendation for treatment predicated on their findings.
Is mayo currently treating patients with my problem and if so what are you using. I've talked with many patients on line and it seems that treatments do vary somewhat.

I had ocular melanoma, that was seven years ago. It was successful, but now it went to the liver, I h as d embolization of the tumor and will start immunotherapy. I now it is so hard, to deal with. They say many positive things

I had ocular melanoma with gama knife and has also spread to my liver was set up to start treatment

On March 16, 2023 I was diagnosed with Ciliary body & choroidal melanoma. I also have a "pigment dusting" over the iris. I am being treated at Mayo in Jacksonville. I was given the option to treat the tumor with plaque radiation and just monitor the dusting. Another option was to remove the entire eye. We chose the radiation at this point. That happened 4/21 and removed 4/25. I sometimes wonder if I should have just removed the eye! So far my CT of the abdomen, chest X-ray and bloodwork does not show metastasis in organs BUT, based on notes in this blog, that in some people it took months to show their cancer spreading.

I meet with my oncologist Wednesday. I want to be prepared to ask the right questions. Can anyone contribute and let me know what questions I should be asking.

I had ocular melanoma, that was seven years ago. It was successful, but now it went to the liver, I h as d embolization of the tumor and will start immunotherapy. I now it is so hard, to deal with. They say many positive things

Hi. I was diagnosed and treated in 2018. I had the radiation patch and was cancer free up until today. It has spread to my liver. Is there any body still on here I can talk to? I have so many questions. I also have Multiple Sclerosis and I am worried about how this may affect it.
Has anyone had it spread to their brain? I'm so scared.

@twocents If you haven't seen the Ken Burns documentary about Mayo Clinic, one of the patient cases in the story is about melanoma of the eye, and that patient did very well. You can see the documentary on the PBS website (I think for a fee) and you can purchase a copy from PBS or Mayo. I thought it was wonderful, and that patient with the eye cancer was pregnant during her treatment. Maybe that would help to see a patient experience this treatment and with a good outcome.