Trouble eating with HCM

I am noticing improvement in my stamina and am able to walk up small hills without feeling so out of breath. I also feel a "stability" in my heart. I feel the same 24/7 instead of the ups and downs of my previous heart medicine.

I didn't feel very well for a month when I first started Camzyos. I'm sorry you feel so tired. Personally I found increasing my water intake plus making a natural electrolyte/hydration drink of one freshly squeezed orange, half a lemon, one Tbls. of honey and a few flakes of sea salt really helped me feel better. I sincerely hope you feel better soon.

Yes I have the same problem with eating 🍽 and also am losing weight

Hello @drumsace, and welcome to Mayo Connect. HCM (hypertrophic cardiomyopathy) is a weird condition, isn't it? A lot of us have the same symptoms, and others have something different than us. The eating thing is real in my opinion. I noticed it too, but I did not lose weight. Dang it! I found I could not exercise like I did before the symptoms so the scale kept creeping up. How long have you known you had HCM? What other symptoms do you have?

I recently found my diagnosis in my medical file where it was diagnosed three years ago via a cat scan but no one told me! Brought it up to my cardiologist at my yearly appointment last Thursday November 2nd and she ordered a Echo saying there’s not a current one. I have that done in A week and see her again December 2nd! Iam currently diagnosed with sic sinus node syndrome where my pulse go fast then slow I have A pacemaker and am on beta blockers and other blood pressure meds. My current symptoms are lack of energy, short of breath, dizziness, and get very faint and nauseous when I sand! Requested a appointment with mayos. Have experience with them as a child. Also my mother had HCM.

I wish u the best of luck! Hopefully u can get some help for your symptoms. Once i was placed on metrop and diltiazam my symptoms r very minimal. Mayo is the best place to be. Dr ommen is a rockstar

I can't imagine you are only finding out now! That's crazy! But thankfully your cardiologist is ordering a new echo. Your symptoms sound like HCM for sure. I am happy to hear you are requesting an appointment with the Mayo. That is where I ultimately ended up. Mayo Rochester to be exact. Finest organization on the planet. I hope you will keep us posted on your progress @drumsace. This is a wonderful place to share with each other and find support. Do you have the Mayo appointment request link?

I’m originally from the Midwest and my family always traveled to Rochester in the summer to have our annual physicals so they have a lot of my medical records I also went to college in Rochester for surgery technology and nursing and did all my surgical rotations at St. Mary’s , my last job before retiring was on A heart team so I know all to well what I face surgically. Thanks for your support

I have this symptom too more recent last several months. I feel best in morning on empty stomach. Go though my day feel fine until afternoon the. I have love/hate relationship with eating now bcz I get a “beer belly”, SOB, chest pain within the hour of eating what most would consider a snack portion. I even had food allergy and gut health tested and elimination diet to see if that was cause of “bloating g and wheezing”. Unfortunately I’m pretty sure this is HF progression 😕 Camzyos didn’t work for me; 2 attempts. It made me feel like my Heart pounding outta my chest walking up in the middle of the night. Upcoming echo and cardio appt. Prayers are appreciated; I feel way too young at 40 something to feel this limited