Has anyone experienced internal vibrations?

I thinki havewhat everyone is calling internal vibations. It feels like your muscles want to keep moving. like when you were a kd and you would go roller skating for hours and then when you took your skates off you had a weird sensation. I got diagnosed with hereditary spastic paraplegia but the calcium and potassium channel ions are responsible for carrying the instructions telling your muscles when tostop. there are a lot of things that cause this. Mine was found by a mitochondrial genetic test. look into the ion channelopathies. good luck to ya

I have internal vibrations in feet and legs. It is NOT a series of tremors as I do not shake, it goes on inside of body and I don’t know a soul who can detect it.
Tremors I think is a symptom of Parkinson’s, and I don’t believe I have that.

Other research it could be related to thyroid. So I am seeing and endocrinologist as it only started when I got a higher dose of Levothorixine.m
I am seeing an endocrinologist soon.

I can tell there is frustration about this from the ther letters. I hope someone will get a correct diagnosis.

I have them terribly. It’s definitely not anxiety because I have severe anxiety and the symptoms are completely different. Mine feels sometimes like an ocean wave going through my body and the throbbing is so bad I ask people around me if they can hear it or ask my husband if the bed is shaking. It’s not uncommon in sfn I belong to another online group and many people there experience it. I think you are correct in calling it vibrations because as soon as you say “tremors” the Drs assume Parkinson’s, functional movement disorder and such. I just think it’s yet another symptom of a disease they can’t figure out. I will say the only thing that eases mine is infact my anxiety medication (lorazepam) or sometimes I take a benedryl and that helps. I can’t take too much benedryl it makes me depressed. Anyway I’m with you though! Keep us posted if you find anyway to help!

I have them too and it has been diagnosed as central nervous system damage, central sensitization. You can have a brain MRI done to rule out Parkinson's, MS and other things. Maybe you should double check the thyroid. I was on Synthroid for over 30 years and was just taken off by my Mayo doctor, who said maybe I never needed it. Yikes.

What has happened since this was posted?

This has caught my eye. Wow, internal vibrations. I too have had this sensation- for three years. My jaws, which has caused pain and irritation. Seen many dentist and specialist, not help really. My jaws and face even became super swollen for days on end. My face looked odd. But, now it seems to be spreading, can feel it in my arms and legs bilaterally. At night my legs will drive me to extreme irritation. My arms will ache. Ive had a major lifestyle change over the last year and half- but nothing is helping that. Not detox off alcohol, or pharmaceuticals. I'm very detoxed. My right arm is now larger from the shoulder down, then left and sharp pain continues in the elbow. I've noticed that I can barely detect pulses in my arms, when my pulses used to be very strong. All I can come up with is keeping inflammation in my entire body down. I have had some success with this by using tumeric/curcumin regularly, and keeping my diet strictly free of anything that what make my liver unhappy, thus making my adrenals act up. Castor oil used across my abdomen and back has cleared up my GI issues and I'm regular. So grateful for that. We press on- and if anybody has a suggestion that would help these creepy crawly/vibrations, let me know.

@mitfit how did they diagnose this? That is what I think it is because of my cervical/thoracic anatomy, and have had lots of scans and tests, but haven’t gotten to dx. Do you have other symptoms and are they treating or have you found ways to manage/minimize them?

Any updates @crankyunicorn68 ?

I was tested for everything and this was the diagnosis. They rule out other things and then look at your symptoms through this lens. Yes, other issues are being dealt with. I found this interesting: You will not be able to make this "go away," but you will be able to manage it to live more of the life you wish to live. This was a new concept to me, and helpful.

Hello everyone, YES I have had them for about a year now. Finally I found a few natural remedies that has stopped them. As soon as I stop the herbs, they start up again. I will list what I started taking. Just know that any kind of soft drinks or alcohol makes it worse. I did my 6 month home test of the food that trigger it. It truly has something to do with covid. From what I understand long haulers like some of us, never got rid of covid and its in the stomach and intestine. Most Drs don't understand when we say we are buzzing in our sleep and when we sit or even walk. I was also told that I may have Parkinson's and 12 other things. I did find out that in 57 years I am surprisingly now allergic to milk eggs & nuts, but then they found that I have high histamine in my body so changing my diet to no dairy, no grains or wheat really helps. Taking the supplements have really helped. I also did a caster oil tummy thing. I hope this helps, your not going crazy. There is a group now thats studying this. I cant wait to hear the outcome. Best of luck to all of you. Couldnt get the picture to attach so heres what I am taking to stop it. took about 2 weeks.
Vit D3, Slippery Elm Bark, Magnesium, turmeric & Moringa Quersiten Bromlen and Probiotics... I know its alot but together it really works. Good luck