Nan how did that go trying the levabuterol for inflammation? I was thinking of doing the same as I have alot of inflammation and airway constriction. I think it is mostly caused from in complete airway clearance (hard to get up mucus). My heart reacts to everything so i have not tried the Levabuterol.
Nan how did that go trying the levabuterol for inflammation? I was thinking of doing the same as I have alot of inflammation and airway constriction. I think it is mostly caused from in complete airway clearance (hard to get up mucus). My heart reacts to everything so i have not tried the Levabuterol.
The levalbuterol inhaler was helpful for airway inflammation, but the neb caused my heart rate to spike - but not as much as albuterol.
Another, newer treatment (was originally for COPD but both my pulmo and primary now use it for asthma and inflamed or reactive airways) is Symbicort (formotorol plus budosenide) It is long-acting as opposed to albuterol/levalbuterol being short acting. I believe it is one of the meds that has contributed to getting my resting heart rate down from the 90's compared to several times daily levalbuterol. Generic versions are now available, which has allowed it to be on more formularies.
The levalbuterol inhaler was helpful for airway inflammation, but the neb caused my heart rate to spike - but not as much as albuterol.
Another, newer treatment (was originally for COPD but both my pulmo and primary now use it for asthma and inflamed or reactive airways) is Symbicort (formotorol plus budosenide) It is long-acting as opposed to albuterol/levalbuterol being short acting. I believe it is one of the meds that has contributed to getting my resting heart rate down from the 90's compared to several times daily levalbuterol. Generic versions are now available, which has allowed it to be on more formularies.
Are you saying the inhaler of Leva caused less reaction than the nebulized version of it? My pulmo said if I try the nebulizer version I can adjust the dosage to be low? So he thought that would be better. I am pretty sure I will react to it any way I try it.
I consulted with a Pulmonologist MD also practicing integrative medicine and she recommended inhaled sulforaphane and taking oxymatrine. Also, found a researcher who recommends nebulized hydrogen peroxide. Conflicting opinions
I consulted with a Pulmonologist MD also practicing integrative medicine and she recommended inhaled sulforaphane and taking oxymatrine. Also, found a researcher who recommends nebulized hydrogen peroxide. Conflicting opinions
Here is my usual opening comment regarding supplements. Please remember that no matter who recommends them, they are not subjected to standardized testing nor held to any standards by the US FDA. If you choose to take them, make sure the company selling them, or the company manufacturing the capsules, subjects them to independent testing by a recognized lab. How to find out? There should be a certification seal on each bottle and a statement on their web site.
Hydrogen peroxide inhaling/nebbing is a no-go. Here is what the CDC has to say about inhaling or ingesting (Note: it is sometimes diluted and used as an oral rinse, with instructions to spit it out.) https://wwwn.cdc.gov/TSP/MMG/MMGDetails.aspx?mmgid=304&toxid=55
Exposure can cause irritation, pneumonitis and edema. It seems unwise to introduce a potentially harmful chemical to already damaged lungs when there are no empirical studies showing the benefits.
Inhaled sulforaphane appears to have potential for improving lung function in some people with asthma, COPD and interstitial lung disease, but there is no literature about its use in Bronchiectasis, and no established dosing. All experiments to date have been very small, and I have not found information about long-term usage. It seems ingesting sulforaphane shows no similar promise.
Oxymatrine is another chemical, extracted from a specific plant in China, with possible beneficial effects for some lung conditions. Again more research is needed, and it comes with the special caveat that overdose is possible. Here it would be crucial to have certified ingredients.
If my doctor recommended either of these, I would be asking a LOT of questions about demonstrated benefits for people like me, and would want to see scientifically sound research before trying them.
@woot You are looking to connect with members that have consulted with an integrative medicine doctor who specializes in progressive and/or chronic disease.
I understand that you are interested in care related to progressive and/or chronic disease. May I ask if you have access to an integrative medicine doctor in your hospital system of would you need to travel for care?
Are you looking for Low-carb Hi-fat (aka Keto) protocol? Or Low-carb Intermittent Fasting? It might help us direct you to others with the same interests.
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Nan how did that go trying the levabuterol for inflammation? I was thinking of doing the same as I have alot of inflammation and airway constriction. I think it is mostly caused from in complete airway clearance (hard to get up mucus). My heart reacts to everything so i have not tried the Levabuterol.
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1 ReactionThe levalbuterol inhaler was helpful for airway inflammation, but the neb caused my heart rate to spike - but not as much as albuterol.
Another, newer treatment (was originally for COPD but both my pulmo and primary now use it for asthma and inflamed or reactive airways) is Symbicort (formotorol plus budosenide) It is long-acting as opposed to albuterol/levalbuterol being short acting. I believe it is one of the meds that has contributed to getting my resting heart rate down from the 90's compared to several times daily levalbuterol. Generic versions are now available, which has allowed it to be on more formularies.
See this discussion for an explanation of the various types of inhaler:
https://connect.mayoclinic.org/discussion/is-anyone-else-confused-about-all-those-inhalers/
Sue
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2 ReactionsAre you saying the inhaler of Leva caused less reaction than the nebulized version of it? My pulmo said if I try the nebulizer version I can adjust the dosage to be low? So he thought that would be better. I am pretty sure I will react to it any way I try it.
I consulted with a Pulmonologist MD also practicing integrative medicine and she recommended inhaled sulforaphane and taking oxymatrine. Also, found a researcher who recommends nebulized hydrogen peroxide. Conflicting opinions
Here is my usual opening comment regarding supplements. Please remember that no matter who recommends them, they are not subjected to standardized testing nor held to any standards by the US FDA. If you choose to take them, make sure the company selling them, or the company manufacturing the capsules, subjects them to independent testing by a recognized lab. How to find out? There should be a certification seal on each bottle and a statement on their web site.
Hydrogen peroxide inhaling/nebbing is a no-go. Here is what the CDC has to say about inhaling or ingesting (Note: it is sometimes diluted and used as an oral rinse, with instructions to spit it out.)
https://wwwn.cdc.gov/TSP/MMG/MMGDetails.aspx?mmgid=304&toxid=55
Exposure can cause irritation, pneumonitis and edema. It seems unwise to introduce a potentially harmful chemical to already damaged lungs when there are no empirical studies showing the benefits.
Inhaled sulforaphane appears to have potential for improving lung function in some people with asthma, COPD and interstitial lung disease, but there is no literature about its use in Bronchiectasis, and no established dosing. All experiments to date have been very small, and I have not found information about long-term usage. It seems ingesting sulforaphane shows no similar promise.
Oxymatrine is another chemical, extracted from a specific plant in China, with possible beneficial effects for some lung conditions. Again more research is needed, and it comes with the special caveat that overdose is possible. Here it would be crucial to have certified ingredients.
If my doctor recommended either of these, I would be asking a LOT of questions about demonstrated benefits for people like me, and would want to see scientifically sound research before trying them.
Sue
-
Like -
Helpful -
Hug
2 ReactionsI’ve been on oar trying to get on a LCIF protocol and an struggling.. Looking for a support group
Are you looking for Low-carb Hi-fat (aka Keto) protocol? Or Low-carb Intermittent Fasting? It might help us direct you to others with the same interests.