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Has anyone consulted an Integrative medicine doctor who specializes in progressive and/or chronic disease?
No but I am also interested.
@woot You are looking to connect with members that have consulted with an integrative medicine doctor who specializes in progressive and/or chronic disease.
Below I have linked related discussions you may find of interest. You may want to scroll through the previous comments to find out member experience and suggestions.
– Chronic Pain: Chronic Pain and Fibromyalgia – alternatives to medications? https://connect.mayoclinic.org/discussion/chronic-pain-and-fibromyalgia-alternatives-to-medications/
– Digestive Health: Functional vs Integrative Medicine https://connect.mayoclinic.org/discussion/functional-vs-integerative-medicine/
You also mentioned the Keto Diet. Below I have linked discussion that may be of interest to you as it related to the Keto Diet in the treatment of illness.
– Chronic Pain: Keto diet https://connect.mayoclinic.org/discussion/keto-diet/
– Autoimmune Diseases: Effects of KETO food plan on autoimmune diseases https://connect.mayoclinic.org/discussion/effects-of-keto-food-plan-on-autoimmune-diseases/
I understand that you are interested in care related to progressive and/or chronic disease. May I ask if you have access to an integrative medicine doctor in your hospital system of would you need to travel for care?
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Thanks for asking, Erica. I live near Duke and University of North Carolina medical schools and clinics. Although they both list Integrative medicine, neither appears to have anything to do with diet. There is an md with no hospital affiliations and no Medicare, etc who has has an Integrative med practice for years. I’m reluctant to consult him. I recently found several articles in PubMed, NIH that looked at Paleo and Keto diets effects on chronic diseases, including pulmonary non infectious chronic disease.
You asked what goals I have in thinking about an integrative med dr. I’m doing everything right to treat and contain my broch/Mac diseases. I see Dr Huitt at National Jewish and a specialist here at University of NC. Successful this year keeping infections at bay. But I ache all over and have unreasonable fatigue. Dr Huitt told me to go gluten free years ago. I strictly follow a gluten free diet. But I want to find out if there’s more I can do. After clicking on all the links you gave me, I’ve decided to try the Paleo diet for 2 weeks before I look for an Int Med doc. Thanks for your help.
@woot. I'd suggest you do a google search to find a health professional near you who practices functional medicine. Their approach is to look "under the hood" to see what is really going on in your body and healing the root causes by the problems. More often than not, problems are being caused by toxins in your body or allergies, such as food allergies, and nutritional deficiencies. They work with you to remove the toxins and add missing nutrients and minerals enabling the body to heal itself. Three times over 74 years conventional medicine failed me, and gifted health care professionals practicing alternative, integrative, or functional medicine got me on the road to better health. They supplemented, rather than replaced, my conventional doctors; and together we made an amazing team working toward the same goal. Good luck on your journey. Nancy
@woot I started seeing a functional medicine doctor almost two years and am not turning back. I will keep my primary care doctor but I now believe the functional medicine is the way to go. I agree with @nla4625 that they can be a supplement to your conventional doctor but they are so much more willing to dive deeper and look at alternative/integrative medicine. My "no progression" of my lung disease has nothing to do with conventional medicine. I did the big three four years ago but the MAC still came back so I've been off drugs for four years and exercise regularly and nebulize with 7% saline and am trying different things with my functional medicine doctor that a conventional doctor wouldn't try. And I don't fault conventional medicine. It is what it is. I just think that functional medicine has so much more to offer. Nan
When you say you are off meds and just fling the saline nebulizer treatment. does that include no inhalers like Spiriva or Qvar too..or arevyou just talking about antibiotics?
That’s great Nanette what kind of things does a functional doctor offer that a conventional doctor would never offer could you share some of that information with us?
Excuse me Nancy I see now where you went into many of the holistic kind of things that your doctor has offered I understand that and thank you I didn’t see your post that was above it thank you very much
@judyhodgern. It probably doesn't happen very often that people with similar names post right after each other. If you're having problems with your lungs and want to know how a functional medicine practitioner might help you, Nan, i.e @nannette has actual experience with this and might be willing to go into more detail. Good luck. Nancy @nla4625
@dee65 I am trying levabuterol for three months for inflammation but I don't normally use an inhaler. Nan
@judyhodgern Well, I read Daniel Pecaut's book Beating Bronchiectasis probably three times and I asked my pulmonologist if he had ever had anyone ask for glutathione to nebulize (one of the things that Pecaut used). He sort of rolled his eyes at me and said "oh that's the stuff that you get at the health food store". So I knew at that point to not press on. That's when I went to a functional medicine doctor and asked him if he could get glutathione for a nebulizer and he did. He also said that glutathione is the single most important antioxidant in the human body. (so much for that "stuff" you get at the health food store). So I've been nebulizing that for a year and a half along with the the 7% saline. Is it helping? Who knows. But at the last CT scan I've had no progression. He also gave me liposomal glutathione to take orally. So that's one of the major things. And I also follow Dr. Mark Hyman, the head of Functional Medicine at Cleveland Clinic and who has written many books…and I'll never forget him one day saying that they did a study of sick people in the hospital and their levels of glutathione were very low or none (don't quote me on this…it was awhile back and I can't remember the exact words) and that they tested a group of people not in the hospital and their levels of glutathione were normal. I always remembered that, I don't know why. The only down side is that glutathione is not cheap and functional medicine is not covered by insurance. He also gives me other supplements and is willing to try things that a traditional doctor might not try. And I am in no way against traditional medicine because it is needed for certain things and important in many ways but medical schools teach a certain curriculum and that's it. They hardly talk about nutrition and anything alternative or integrative. Personally, I believe functional medicine will become more prevalent in the future because it makes so much sense but it will be awhile for it does. And I'm also one of those people who will test just about anything if I think it might help me. I'm careful but I'm not afraid to try things. I mean, look at the Dr. Terry Wahl's story if you want to be inspired. She was in a wheelchair, feeling like she was dying with MS, and started doing research and long story short, reversed her MS with DIET. I'm not sure if she uses the word reversed but she's jogging now, bicycling and has a huge following and has written two books on the ketogenic diet that she used to heal herself and is helping others with autoimmune conditions.
My closest friend is a medical doctor who had excema for years and went to a functional medicine doctor who put her on the Terry Wahl's protocol diet and her excema went away 90% and she had been given steroids for 20 years.(It's a tough diet…something like 6-9 cups of vegetables a day). And that same friend is the one who told me I HAD to exercise when she heard of my diagnosis 5 years ago. And I have been. I think it's key. I said, well, this lung disease is incurable and she said that's only because they haven't found a cure. I loved that answer. Who knows, one day maybe they will. But she said with exercise you will at least be fighting it back. Sorry to have gone on. Hope that answered a little bit of your question. Nan
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