Has anyone been using Tymlos?

There is a Tymlos Assist program available. I'm still in the paperwork portion of it and will see what my cost are soon. My Doctor has given me monthly samples up to now. This will be my third month with no side effects so far.

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How did you go? Did you get the assistance and the treatment? I hope so. If you finished the treatment, and are willing to share the results? If you already shared in another thread, please tell me where I can find the info. I'd love to know. Also, did you take any other osteoporosis drugs before Tymlos?

I wish I met the eligibility requirements for Radius Assist for Tymlos. One of the eligibility requirements is "Patient must have neither insurance coverage for nor access to other coverage for TYMLOS." My policy covers it, but only 40% of the cost. I can't pay 60% out of pocket. If my insurance provider did NOT "cover" the drug, I would qualify to get it for free. It's truly baffling.
I'm looking into alternative assistance programs, because I really need this treatment. I had one Prolia shot, and stopped for three reasons. 1) Prolia rebound scares me. 2) I experienced side effects that I was not willing to live with. 3) It makes sense to use a bone builder first, and really do I need to build bone. My DEXA scores are L femoral neck, -3.2, and lumbar -3.7. From what I've read on this forum, if you can tolerate the side-effects of Tymlos, the gain in bone density can be significant. I really need to give it a shot (pun intended).

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@hopefullibrarian I have insurance but got Radius Assist. I think they mean total coverage would exclude you. Double check with Together with Tymlos, where you can have a personal rep.

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How did you go? Did you get the assistance and the treatment? I hope so. If you finished the treatment, and are willing to share the results? If you already shared in another thread, please tell me where I can find the info. I'd love to know. Also, did you take any other osteoporosis drugs before Tymlos?

I wish I met the eligibility requirements for Radius Assist for Tymlos. One of the eligibility requirements is "Patient must have neither insurance coverage for nor access to other coverage for TYMLOS." My policy covers it, but only 40% of the cost. I can't pay 60% out of pocket. If my insurance provider did NOT "cover" the drug, I would qualify to get it for free. It's truly baffling.
I'm looking into alternative assistance programs, because I really need this treatment. I had one Prolia shot, and stopped for three reasons. 1) Prolia rebound scares me. 2) I experienced side effects that I was not willing to live with. 3) It makes sense to use a bone builder first, and really do I need to build bone. My DEXA scores are L femoral neck, -3.2, and lumbar -3.7. From what I've read on this forum, if you can tolerate the side-effects of Tymlos, the gain in bone density can be significant. I really need to give it a shot (pun intended).

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My DEXA was also -3.5 when I started Tymlos. Jumped right in with 8 clicks. Few, tolerable side effects. I inject every morning and keep moving. I’m on my 12th month. Yes, lost hair for a while but started taking Live Conscious Collagen Peptides with my coffee once a day. Hair loss over and hair really thick again. I get aching bones in various parts of my body but tolerable and it goes away. My 12 month checkup is in mid-December so I’ll see what the Doc has to say then!

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It would be nice if that is indeed the case. I've never heard of "Together with Tymlos", only "Radius Assist." I know that they can verify eligibility. After I find out, I'll post an update for others who need assistance paying for Tymlos.

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So glad to hear that you're getting Tymlos treatment. I'm amazed at how effective it is for some people, and hope it is for you too. Please share your next DEXA results when you get them.

After learning about the available treatments, I realized I need to build as much bone as I can while working with specialists to figure out what is out of balance and causing my rapid and early bone loss (I'm 53). Tymlos side effects, if not too extreme, seem worth enduring in order to build bone rather than just trying to maintain what you have.

Because my one and only Prolia shot caused rapid hair loss, I started taking collagen and using a shampoo that slows hair loss while stimulating new growth. It seems to be helping, but I've only been using both for a month now. Time will tell.

I look forward to reading updates about your progress.

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@hopeful librarian they seem to have ended Together with Tymlos in favor of Radius Assist.

The Tymlos site only has clinical educators now.
Your dedicated Clinical Educator is here for you
While taking TYMLOS, you will have access to a dedicated Clinical Educator. They'll start with 1-on-1 injection training and be there for you throughout the duration of your treatment to offer support and answers about taking TYMLOS.

Call to a Clinical Educator 1-855-730-8591

Radius Assist covers cost for those on Medicare plans with some exceptions listed here: Are you on Medicare?

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My hair loss occurred for 4-5 months but now have NO hair loss! I can't say it's the Tymlos or not BUT I was dealing with a severe Sciatic Nerve problem from my lower back down my left leg. 58 PT sessions, muscle relaxers, anti-inflammatories, 2 back injections did not help. During this time I started on Tymlos and about 10 months later after starting Tymlos, I'm feeling major relief to my Sciatic Nerve problem! All we can "think" is maybe the Tymlos is removing the old bone and building new bone that's not hitting that nerve. Not sure...one of the questions I'll ask the doctor when I go back in December for my 12 month visit! Kinda weird, but absolutely amazing!

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