Chronic Pain members - Welcome, please introduce yourself
Welcome to the new Chronic Pain group.
I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Why not take a minute and introduce yourself.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@blindeyepug see my comment above. This testing may be beneficial for you, as well.
Kelly, what you've said is really interesting to me. Yes, my docs know that they have to start me on really really low doses of any medication and then maybe work their way up. If I can't get any help here in Tallahassee, I'm considering going to the Mayo Clinic in Jacksonville, FL. It's about a 3-hour drive away, but it'd be worth it.
Talking of which, I have just started taking Humira for PsA. And then I was put on Boniva for newly diagnosed osteoporosis. And I was ill for four days. I've talked to my GP about this and we've agreed that when this wears off in 3 weeks I will try Fosamax. Hopefully the Humira will start to kick in.
The vape oil that I use is in a cartridge and distributed with a vape pen. This is not smoking. The oil cartridge gets heated in the vape pen. It works immediately and although it doesn't last as long as an edible...it calms everything down right away. My search for a pure oil without chemicals has finally been successful. Now there is no coughing. I think the eyedropper oil is hemp oil and you can get it on Amazon as well as other places. I seek the advice of medical marijuana professionals. With this vape product, I do get to choose the best strain and/or get the best potency percentages to alleviate the escalating CMPS and SFN. I have two vape pens....one for my purse and one for home. I charge them once a week. Since I have decided not to take any opioids or other medications with side effects, I have worked out a MM regimen that does a good job and improves my quality of life. I also add daily Yoga, Meditation and Mindfulness practice. Every day....my mind body connection becomes stronger and has greater control over my symptoms.
Hazel, I have talked to my Dr. and he is changing what I am taking. I'm switching you to more THC product. The indica will help relax and sleep. Sativa is more stimulating. Recommend you get either an indica strain or a hybrid strain which has both sativa & indica properties. The hybrid combination may not make you as sleepy during the day.
So I will probably be able to get it by Monday. Will let you know how it works. Let's hope it does.
Hoot
@kdubois @hazelblumberg While I had cirrhosis my reactions to many medications was quite troublesome. Prior to knowing that I had cirrhosis I was diagnosed with Barrett's Esophagus and prescribed PPIs. They really bothered me. We went through four different ones and ended up going back to the first because that was the least troublesome. Now things seem fine.
JK
blindeyeplug, I am Marield65, welcome to the club. I could have written your letter myself. I was on exact same meds. Wellbutrin made me paranoid, no success with Lexapro,Prozac was like I was reborn, it was the miracle drug until it stopped working and now I am on Cymbalta which keeps me going but not like Prozac. I am so scared to think that someday cymbalta will not work and I don't think I can go through another depression, however, I am a pro now at dealing with this awful disease that I should be able to handle it. But it is scary. I think the Doctors all read t the same books. Take care of your self and keep me posted if another miracle medication comes up. Nice to meet you and can I ask you your age? I will be 72 next week and I hope I wake up on my birthday cured.
Hello Marie, @marield65
I do admire your persistence and positive attitude in dealing with your disorder. It sounds like you are a "young 72 year old." Happy birthday a few days early!
What plans do you have for your birthday? (I always give myself a gift for birthdays, Christmas, etc. - my form of self-love).
Teresa
I am 57. I also worry about my depression becoming drug resistant! Happy Birthday early! Waking up cured would be the ultimate gift!!
hopefull, bindeyepug, contentandwell, and John: Thank you for the birthday wishes. My husband and I just bought myself a bullet vita blender because I love shakes, and I've lost around 16 lbs and hope to lose about 5-10 more. And with certain shakes this will help me. But he also takes me and my daughter (who has the same birthday as me) out to dinner along with my son, and his wife. I will have a nice birthday, and my wish as I said is to be well, but after today, I don't think that will be the case.
I felt good when I got up, but after doing shopping yesterday, and a little today, I was dead on my feet this afternoon. Everything hurt. My left knee replacement this past April was so sore, as my back, which I had the fusion, and several pinched nerves. one of which I am going back for shots, and a disc that is bad and the neurosurgeon would like to do another fusion but is holding off, I felt like my joints were burning up and my back was in pain. I put ice on it and took 1 1/2 pain pills, and just felt like crying. It is like 2 steps forward and I'm so happy, and then 3 back. Once the pain pill worked, I felt like my old self again, although a little heady. Again, I was being negative telling myself why me. I use to be so active, now all that has been taken away. I'm happy doing the little things I can do , but when I get whacked like I did today, I start feeling sorry for myself, and I hate doing that.
Plus this week isn't suppose to be a good week, and I look forward to meeting my friends at my gyms pool, and it doesn't look like that will be this week. Maybe one day this week is suppose to be ok. But this is my outlet, going to the pool. How much is going to be taken away from me. I am grateful that I'm still able to do even the little things, but it seems that I pay for it in the end.
I hate being a downer, but that's how I felt today.
Tomorrow I will start fresh with a good day. I promise.
Love to all. Marie