Has anyone experienced internal vibrations?

Hello,

All going ok, relatively speaking. I am at a pretty constant state where I’m happy living with where things are, and perhaps will be forever.

Not cured/gone by any means, but still fluctuating between great days and decent days.

Still walking many miles a week and yes my legs tire afterwards but no big deal.

The bad days are usually when I don’t get enough sleep or I’m sick. The calves will really act up and pop like crazy then.

It still “moves around” on me too. For example a couple of weeks ago the vibrations flared up inside my chest. Very annoying at night! Same as usual, as I regain consciousness, they calm a lot.

I’m still taking the gabakentin. Not sure if it helps or makes a difference.

One interesting thing since I’ve written here a while ago is that over the past 2 years I’ve gotten pretty bad plantar fasciitis in my one foot. A large cause of PF can be tightness in the calves. I have a hunch that the BFS is at the root cause of why I can’t seem to get rid of the PF despite lots of treatments short of surgery.

Hang in there!

I see. I had a similar thing where I was traveling in Europe and during the trip every day it was getting better, where towards the end it was only noticeable when I woke up at night my legs would vibrate, but then I got back to the states and the first night was ok but every day after it got worse and worse again and now its back to how it was originally which is super disappointing. I wonder why it changes like that? If there was brain damage wouldn't that mean you could never get to the great state? So I kind of wonder if something else is going on.

I found out I have high levels of mercury, 31.8 ug/L in my blood whereas 0-15 was considered normal, so it could be that. I also wonder if it could be a pinch in my spine as my neck has always been pushed forward due to years of computer work.

When I'm tired or drink a lot of coffee it definitely is worse than when I sleep a lot. But it's hard to sleep a lot when you wake up with your whole body vibrating and then it becomes hard to go back to sleep.

The waxing and waning part is a mystery of this condition and probably has to do with why Neuros know so little about it.

The good news is that we can have lots of good days.

Interesting about the mercury. There has to be some reason why you continue to register those levels.

“Not a doctor” disclaimer but I doubt it’s a neck pinch at the root cause.

Same here. I returned from Mayo 2 weeks ago. I start the telemed course in November.

Let’s compare notes!

Have them but no luck with doctors they don't know what it is

Thanks for the reply. I have tried B12, but not on a regular basis. Will try that. I’ll just take high doses for a week or two and see if it has any effect. No help for me. I will have to live with my issues for now since I’m getting blocked by every avenue I try to get a diagnosis. I’m just thankful that it’s not worse. I feel for those people going through health issues that are not getting resolutions.

I have learned the brain takes a long time to heal. Just take it one day at a time. My tremors from Fluoxetine are not lettuce up after almost 3 years. Stay positive!

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Could be something in digestive tract that makes your abdomen area treamor after you eat. Too many carbs or eating too late. This has been one of my problems. I am also had problems with trmmors in the chest but mostly when I'm laying down and sleeping most of the time. Can't get any doctors to figure it out. I wish they could just prescribe me and pilll that stops the tremors.
Ive been taking xanax at night least get a few hours of sleep tonight. Its not anxiety!! t's becoming debilitating.