Prolia and Hair Loss

Posted by cat22 @cat22, May 13, 2022

Anyone experience hair loss with Prolia? I would also like to hear about those on Prolia with no issues?

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

@grmag

I am having slight hair loss and thinning. I had my first Prolia shot about 6 months ago and am now wondering if I should get another. I am also taking Synthroid after being diagnosed with hypothyroidism. Don't know which is to blame or either. Someone wrote that all the doctors defend the drugs they prescribe. Doubt that they bother to check interactions, etc. I did have alopecia areata several years ago, where clumps of hair came out. I got wigs. So, you might check to see if you have that autoimmune disease. Problem is: you don't know which drug to blame or what to fear most.....

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Three years ago, I wasn't on any prescription drugs and felt great. The only thing I would take is the occasional ibuprofen. Since then, I've been on up to three Rx's at a time--each prescribed by a different doctor. There are definitely known negative interactions. All three of the doctors, at some point expressed serious concerns about the other Rx's. I couldn't get any good and consistent medical advice, so I made a decision to stop two of the drugs. Like you, I can't say for certain what caused my hair loss. It may have been the combination. What I do know, is that, once Prolia was in the mix, the hair loss was not to be ignored.

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@hopefullibrarian

I only had one shot, and my hair started coming out in clumps and breaking off as well. It's been coming out so fast that someone at work recently, in an attempt to be helpful, told be about a great place to buy wigs.
I canceled my next shot too. When I decided to take it, I didn't really know what I was doing. I had just been diagnosed, and didn't know much about osteoporosis. Joining this forum has been very educational for me. I won't start any other treatments before learning all that I can. The book frequently mentioned in various threads, Great Bones by R. Keith McCormick, DC is also helping me to better understand the benefits and risks of the various osteoporosis treatments that are available.

There are shampoos that are supposed to stimilate hair growth. I don't know long Prolia stays in my system, so it may get worse before it gets better. From what I've read though, it is possible to grow it back, but it takes a while.

I hope we both find better treatment options, and can regrow our hair.

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Hi hopefullibrarian, after much reading and thinking and deciding to skip drugs and then to take one I am now awaiting an approval from my insurance for Prolia. Initially my doctor orderedvEvenity but I grew afraid to try it after reading about the Black Box warning. Prolia has a more reassuring long record of use. So I will be having a blood test and then begin Prolia. And hope I won't be looking for wigs. But, better that than fractured spinal bones.

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@lashu

Hi hopefullibrarian, after much reading and thinking and deciding to skip drugs and then to take one I am now awaiting an approval from my insurance for Prolia. Initially my doctor orderedvEvenity but I grew afraid to try it after reading about the Black Box warning. Prolia has a more reassuring long record of use. So I will be having a blood test and then begin Prolia. And hope I won't be looking for wigs. But, better that than fractured spinal bones.

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I was on Evenity and had no problems. The Prolia is still in question. Check out the Prolia Support Group on Facebook. It is not a medical site but people from all over the World have had problems.

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I’ve been taking Prolia shots for over 5 years. However, I’ve noticed that my hair is very thin and my part is getting wider and wider. I didn’t realize prolia could be the reason for it. I have to skip injection this year due to tooth being pulled. So I would be able to have bone loss replaced after tooth removed.

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I have been on Prolia for 4 years and haven’t had any hair loss so far. I’m 72.

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@hopefullibrarian

Three years ago, I wasn't on any prescription drugs and felt great. The only thing I would take is the occasional ibuprofen. Since then, I've been on up to three Rx's at a time--each prescribed by a different doctor. There are definitely known negative interactions. All three of the doctors, at some point expressed serious concerns about the other Rx's. I couldn't get any good and consistent medical advice, so I made a decision to stop two of the drugs. Like you, I can't say for certain what caused my hair loss. It may have been the combination. What I do know, is that, once Prolia was in the mix, the hair loss was not to be ignored.

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Hi hopefulllibrarian, thank you for sharing your experiences. I was wondering about the three Rx's: by that do mean some combination of e.g. Evenity and e.g. Prolia? Or some other types? It would seem unlikely to be on two of the bone building meds at once.
I am sorry to hear Prolia caused your hair loss, or at least that correlation seems to be a strong connection. I will probably stick to my decision to go with Prolia and hope for the best.

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@princessd

I’ve been taking Prolia shots for over 5 years. However, I’ve noticed that my hair is very thin and my part is getting wider and wider. I didn’t realize prolia could be the reason for it. I have to skip injection this year due to tooth being pulled. So I would be able to have bone loss replaced after tooth removed.

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Hi princessd, I wish you a healthy and safe dentist experience: do you have to skip injection for a whole year? couldn't you resume treatment right after the extraction? I also hope your hair stops thinning and hope my won't thin, it's thin enough already. Please post how you are doing with your dental work. I shall be thinking of you and hoping for your very best outcome.

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@meomurian

I have been on Prolia for 4 years and haven’t had any hair loss so far. I’m 72.

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Thank you meomurian, that is such good news, as I will probably start Prolia very soon. It's also nice that one can be on Prolia for a long period of time. Evenity had that shortcoming of a year.
Prolia also seems to be used for some other maladies. Interesting.

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@ams

I had significant hair loss. I feel like I am almost bald now. I also had joint and bone pain and now have jaw pain. That never happened when I was on Fosamax. I feel like I am caught between a rock and a hard place with my bone problems.

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Yes I am having hair loss! I have been thinking and thinking if I had started any news medicines in the last 18+ months and I remembered Prolia! I have had so much blood work done trying to find out why my hair is thinning so bad on top. Now what to do???

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@ingekunga

I have been on Prolia about two years and just now experiencing bad hair loss thought it was stress

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Me too!

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